Patrick’s PALS Still Shined Strong Even in the Face of COVID

Patrick’s PALS Still Shined Strong Even in the Face of COVID

Patrick’s PALS 25th Annual 3-on-3 Basketball Tournament & Fundraiser was once again relegated to “Fundraiser Only” status in 2021. BUT, and it’s a BIG but, the spirit, generosity and devotion of so many to this event still shined through. Over $140,000 was raised through a mail campaign, all of it of course going to FRAXA to continue to advance research that will someday lead to effective treatments and ultimately a cure.

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7th Annual 5K Walk for Fragile X in NH Raises Over $3200 For Fragile X Research

7th Annual 5K Walk for Fragile X in NH Raises Over $3200 For Fragile X Research

Derry, New Hampshire served as the picturesque location for the 7th Annual 5K Walk for Fragile X syndrome and Raffles to support FRAXA Research Foundation. On September 12, 2021, around 50 individuals came together to show their support and make a difference in the lives of those with Fragile X syndrome. This year’s walk, which included raffle drawings with baskets and gift cards thanks to the generosity of local businesses and friends, raised over $3,200 for FRAXA to support the funding of effective treatments and ultimately a cure for Fragile X.

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Sincere Gratitude for a Successful #GivingTuesday 2020

Sincere Gratitude for a Successful #GivingTuesday 2020

From the bottom of our hearts, thank you. In a year filled with so much uncertainty, you truly rose to the occasion. From creating Facebook fundraisers to sharing why you give back, each one of you made a difference. With the help of our dedicated supporters and gifts from over 150 amazing donors, FRAXA Research Foundation raised $70,047 on #GivingTuesday.

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Patrick’s PALS 23rd Annual Basketball Tournament Raises $140,000 for Fragile X Research

Patrick’s PALS 23rd Annual Basketball Tournament Raises $140,000 for Fragile X Research

Patrick’s PALS has grown from a twelve-team tournament to a 36-team extravaganza! On four half-courts, 18 first-round games set teams on a path to the winners or losers bracket. After that, it was all about staying alive and avoiding elimination by not losing two games. In the end, two veteran teams faced off for the rights to ensure their names would be engraved on the PALS Trophy: the multiple-past-champion Kline Team and the always-in-the-mix Gray Team (pictured above). Gray entered the finals with one loss, so they needed to beat Kline twice. That they did to become the Champions of Patrick’s PALS XXIII!

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FRAXA Biotech Games, the Beginning of Something Great

FRAXA Biotech Games, the Beginning of Something Great

On September 20, 2018, FRAXA Research Foundation held the First Annual FRAXA Biotech Games™. The event was a “friendly” competition between greater Boston biotech companies and affiliated industry partners and vendors in a series of fun backyard lawn games. 42 teams of 4 players each played cornhole, KanJam, ladder golf and bucketball. Our goal was to establish an annual event in Cambridge, MA, that would unite the biotech community for an afternoon of fun competition, and raise money for biomedical research. We look forward to the upcoming Biotech Games!

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Kathan Pierce Honored as a New England Patriots Difference Maker

Kathan Pierce Honored as a New England Patriots Difference Maker

FRAXA is proud to announce that one of our board members, Kathan Pierce, was recognized by the NFL’s New England Patriots and team owner Robert Kraft for her tireless volunteerism. We are grateful for Kathan’s contributions to FRAXA, and to the Patriots, who announced they are also awarding a $5,000 grant to FRAXA to support Fragile X research.

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Hope for the Holidays Gala Helps Advance Fragile X Research

Hope for the Holidays Gala Helps Advance Fragile X Research

On December 8, 2018, a sold-out crowd of 250 people gathered for the 3rd Annual Hope for the Holidays Gala at the Café Escadrille in Burlington, MA, to raise funds for Fragile X research. For the third year in a row, the Pierces presented a check for $100,000 to FRAXA Research Foundation. We are truly grateful for this ongoing, generous support of our mission to find effective treatments and ultimately a cure for Fragile X.

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Boys Basketball Fundraiser Kicks Off The Season of Giving

Boys Basketball Fundraiser Kicks Off The Season of Giving

On Saturday morning, November 17, 60 boys, their parents and a bunch of volunteers gathered in Newton, MA for the 3rd annual 3 on 3 basketball tournament, sponsored by the Newton Athletic Association (NAA), a program of Newton Community Education. The event is a fun competition of teams of three players competing for bragging rights of which team is king of the local youth basketball program.

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14th Annual Fragile X Poker Run Raises $12,135 for Fragile X Research!

14th Annual Fragile X Poker Run Raises $12,135 for Fragile X Research!

The 14th Annual Fragile X Poker Run was a resounding success. The previous fundraising record of $7,800 was eclipsed by >50%, coming in at $12,135!! This year a very special and moving moment occurred when Amber, who has cerebral palsy, was brought by her parents and positioned in front of the band. She was then serenaded by Mikey through many songs, culminating in Happy Birthday (her 20th). Not a dry eye in the crowd, including Amber and Mikey. Simply magical.

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