Events Recap Archives • Page 2 of 2 • Fragile X Research

$17,469 Raised by Friends of FRAXA Volunteers at Bruins Game

FRAXA Research Foundation Events Recap • FRAXA Updates December 5, 2017June 18, 2018Boston Bruins Foundation

Over 50 #FriendsofFRAXA showed up on the the day after Thanksgiving, November 24, at the Bruins game against the Pittsburgh Penguins to sell 50/50 raffle tickets. Our amazing volunteers sold $34,938 in tickets resulting in $17,469 donated to FRAXA research. This was the highest amount the Bruins sold this year in raffle tickets!

In Their Own Words: Reports From the International Fragile X Workshop

FRAXA Research Foundation Cogram, Patricia • Contractor, Anis • Events Recap • Kooy, Frank • Lee, Jeannie • McGill University • Moine, Herve • Razak, Khaleel • Research Updates • Smith, Carolyn B. • Sonenberg, Nahum • Todd, Peter • Vanderklish, Peter October 29, 2017December 26, 2019amygdala, autism, bumetanide, DgkK, drug repurposing, drug tolerance, EEG, ERK, FDA, Fragile X Meeting, GABA, ganaxolone, glutamate, hyperexcitability, hypersensitivity, metformin, mGluR5, minocycline, mRNAs, NIH, Rett syndrome, seizure, sleep, sound

The 18th International Fragile X and Related Neurodevelopmental Disorders Workshop in Quebec, Canada, was a great success, featuring Fragile X much more heavily than any previous meeting in this series! We asked our speakers to summarize their work in their own words, with brief updates from researchers investigating Fragile X.

18th International Fragile X and Related Neurodevelopmental Disorders Workshop, Quebec, Canada

Fragile X in the Forefront of International Conference

FRAXA Research Foundation Events Recap • Research Updates October 12, 2017June 18, 2018autism, Fragile X Research Foundation of Canada, Fulcrum Therapeutics, Ovid Therapeutics

Today the 18th International Fragile X and Related Neurodevelopmental Disorders Workshop kicks off in Quebec, Canada. For the next six days, scientists from around the world will gather at this workshop to focus on recent breakthroughs in our understanding of Fragile X, autism spectrum disorders (ASD), and related neurodevelopmental disorders. This biennial meeting has been instrumental to the discovery of many disease-causing genes and the development of therapeutic strategies for these disorders.

$75,000 Raised for Fragile X Research by Friends of FRAXA at our Fall Fling

FRAXA Research Foundation Events Recap • Lee, Jeannie September 15, 2017February 21, 2018autism, Boston Bruins Foundation, Fulcrum Therapeutics, Ovid Therapeutics, Q-State Biosciences

On Thursday, September 7 over 150 friends of FRAXA joined us at the Smith Barn at the Peabody Historical Society for the second annual FRAXA Fall Fling. Together we raised over $75,000 for Fragile X research — including a hand-delivered check for $25,000! Families from as far away as Miami, Florida joined us, even with hurricane Irma approaching their home state. Unfortunately, Irma ambushed Weather Channel Storm Tracker and Fragile X parent, Jim Cantore.

Genes and Gems Fundraiser raises $40,000 for Fragile X Research

FRAXA Research Foundation Events Recap April 20, 2017December 26, 2019

On April 8, our fabulous friends of FRAXA in Ohio put on a great show as they held their Genes and Gems fundraiser in Columbus. Over 300 families, friends and supporters of Fragile X research attended. The event included an inspiring presentation by Fragile X physician and researcher, Dr. Craig Erickson, from Cincinnati Children’s Hospital.

TD Bank invites Friends of FRAXA to Watch the Bruins

FRAXA Research Foundation Events Recap April 14, 2017June 18, 2018Boston Bruins Foundation

Fifty friends of FRAXA enjoyed an amazing night at the TD Garden in Boston on March 30. They gathered to watch the Boston Bruins take on the Dallas Stars. It was a great opportunity for us to unite the greater Boston Fragile X community. We were able to convene and thank some of our local families and introduce them to university and biotech scientists who are working to find a cure for Fragile X. The night was made available by a generous donation of the Garden View Room by TD Bank.

Friends of FRAXA, Bob Sweeney, President of the Boston Bruins Foundation

Callum Cup 2017 Raised over $9200 for Fragile X Research

FRAXA Research Foundation Events Recap April 6, 2017December 26, 2019

We are tremendously grateful to the Millburn United men’s soccer team, of Millburn, New Jersey, who held the 2017 Callum Cup on Sunday, July 2, 2017. They were honoring Callum Murphy, son of the team goalkeeper at Millburn United. Together with their friends and families, the team raised over $9000 for Fragile X research! This event was made possible by co-hosts Andrew Murphy and Nick Dawes. Donors, thank you all so much!

This Is My Brother, speech by Elizabeth Clark at FRAXA’s Fall X Ball

FRAXA Research Foundation Community • Events Recap November 8, 2013December 26, 2019

In a heartfelt, humorous and insightful speech, Elizabeth Higgins Clark imparts the inspiration and love she has received from her brother, David, who has Fragile X Syndrome. Fragile X is the most common form of genetically transferred intellectual disability. Clark gave the following speech in Danbury, Connecticut at the 11th Annual Fall X Ball benefitting the FRAXA Research Foundation.