Events to Benefit Fragile X Research

Who runs FRAXA fundraisers? Parents who want a Fragile X cure for their children. Grandparents, brothers, sisters, aunts and uncles, and friends who want a Fragile X cure.

We are truly grateful to all the volunteers who run FRAXA fundraisers. Please join us at an event and feel the magic. Or, run your own event. Help get closer to the cure!

November 2018
Bruins Foundation Raffle

Volunteer for FRAXA at the Boston Bruins Game

Join us on Friday, November 23 to help raise funds for Fragile X research by volunteering when the Boston Bruins host the Pittsburgh Penguins. At each home game, the Boston Bruins Foundation hosts a 50/50 raffle with half the proceeds going to a lucky winner and the other half going to a worthy charity. FRAXA Research Foundation is incredibly fortunate to be the featured charity on Friday, November 23, at 7:30 pm, when the Bruins play the Pittsburgh Penguins at Boston’s TD Garden. ...
Friday, November 23, 2018
7:30 pm
TD Garden
Legends Way, Boston, MA, USA
December 2018
Hope for the Holidays Gala - Pierce Family Fragile X Foundation

Hope for the Holidays Gala 2018

Come enjoy an evening with family and friends as The Pierce Family Fragile X Foundation kicks off the season of giving! There will be great food, cocktails, music, silent auction, live auction and raffles for your enjoyment. Make this night part of your holiday traditions! ...
Saturday, December 8, 2018
7:00 pm - 11:55 pm
Cafe Escadrille
26 Cambridge St, Burlington, Massachusetts 01803
September 2019
Watkins Fall Fling for Fragile X

Watkins Fall Event

Ron and Amy feel so blessed to be surrounded by kind, ...
Saturday, September 7, 2019
6:00 pm
Crosswinds Equestrian Center
17 Crosswinds Ln, Lagrangeville, NY 12540
No event found!

Past Events

November 2018

Garcias Running the NYC Marathon

Joel and Sylvia Garcia are currently training to run the NYC Marathon on November 4th. They will be running for Team FRAXA and are honored to be able to wear the Fragile X name and bring more Fragile X Awareness to the world around us. ...
Sunday, November 4, 2018
8:00 am
New York City Marathon
New York City, NY, USA

MassBio’s Patient Advocacy Summit

Friend of FRAXA and parent Nick Lunger will be participating in 2 panel discussions at the Massachusetts Biotechnology Council (MassBio) Patient Advocacy Summit on November 2, 2018 in Cambridge, MA. He is representing the voice of Fragile X families in this important discussion with biotech leaders about how life sciences companies can more fully incorporate the patient voice into the work they do. ...
Friday, November 2, 2018
8:00 am - 5:00 pm
Hyatt Regency Cambridge
Hyatt Regency Cambridge, Overlooking Boston, 575, Memorial Drive, Cambridge, MA 02139, U.S.
October 2018

Chicago Marathon run in Honor of James

Gail O'Mara is running the 2018 Chicago Marathon to recognize and honor the efforts of her delightful grandson James, who with undaunted spirit has met the challenges of living with Fragile X. ...
Sunday, October 7, 2018
9:30 am
Chicago Marathon
Chicago, Illinois, USA
September 2018

FRAXA Biotech Games

FRAXA Biotech Games are a “friendly” competition between greater Boston area biotech companies, their vendors and partners in a series of back yard lawn games including Cornhole, KanJam, Bucketball and Ladder golf. Who will earn bragging rights as the top company? The Games will benefit Fragile X research at the Bear Lab at the Picower Institute at MIT, supported by FRAXA Research Foundation. ...
Thursday, September 20, 2018
1:00 pm
Kresge Oval at MIT
70 Massachusetts Avenue, MIT, Cambridge, MA, USA

FRAXA Fall Fling

Join us for a delightful evening as we celebrate and raise funds to find a cure for Fragile X, at the historic Smith Barn at Brooksby Farm in Peabody, Mass. ...
Wednesday, September 12, 2018
6:30 pm
Smith Barn at Brooksby Farm
Peabody Historical Society, 38 Felton Street, Peabody, MA 01960
August 2018

Pottery Fundraiser Opening Reception

Sally Ann Endleman will be exhibiting her pottery for the entire month of August, with an opening reception on August 9 from 5 pm to 7 pm. Several of her one of a kind pieces will be on display and for sale. She will also be holding a fundraiser for FRAXA: a selection of pottery will be gifted to individuals contributing to this cause. ...
Thursday, August 9, 2018
5:00 pm - 7:00 pm
Case Memorial Library
176 Tyler City Rd, Orange, CT, USA

Charity Classic Golf Tournament and Dinner

Ravinia Green Charity Classic benefits FRAXA Research Foundation, the ALS Therapy Development Institute/Augies's Quest to Cure ALS, and ClubCorp's Employee Partner Care Foundation. During the event, there will be golf and social activities, lunch, dinner, silent and live auctions, & more! The goal is to raise $60,000 plus in this one day! ...
Wednesday, August 1, 2018
10:30 am - 9:00 pm
Ravinia Green Country Club
1200 Saunders Road, Riverwoods, IL 60015, USA
July 2018
Poker Run for Fragile X

14th Annual Fragile X Poker Run

Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
Saturday, July 28, 2018
12:00 pm
Blue Ridge Parkway
14300 NC Hwy 18 South, Laurel Springs, NC 28644
Niagara Falls goes teal for Fragile X

Niagara Falls to go Teal for Fragile X Awareness

FRAXA is proud to announce that the Niagara Falls Illumination Board will light up Niagara Falls in teal on Fragile X Awareness Day, July 22, 2018!  What a great way to shine a bright light on Fragile X research at such an iconic place. Spread the word, and if you will be in the Buffalo/Niagara Falls area, we want you to come to this event and take lots of photos!! The lighting of the falls in teal will take place July 22 at 10pm.  ...
Sunday, July 22, 2018
10:00 pm
Niagara Falls
6345 Niagara Pkwy, Niagara Falls, ON L2E 6S8, Canada

Callum Cup 2018

The 3rd annual Callum Cup is on Fragile X Awareness Day! Just one week after the World Cup final, join us for great competition and great fun while raising funds for Fragile X research. Everyone is welcome to come out and watch the games or stop by St. Jame's Gate Publick House post game to socialize. ...
Sunday, July 22, 2018
9:00 am
Millburn High School
462 Millburn Ave, Millburn, NJ 07041

Fragile X Awareness at NYSE

Fragile X Awareness front and center at the New York ...
Thursday, July 5, 2018
8:30 am - 10:30 am
New York Stock Exchange
2 Broad St, New York, New York, USA
June 2018
Fundraisers-Hall Golf Event

29th Annual Charity Golf Tournament

Join us at Portsmouth Country Club in Greenland, NH on June 25, 2018 for our 29th Annual Charity Golf Tournament. ...
Monday, June 25, 2018
8:00 am
Portsmouth Country Club
80 Country Club Lane, Greenland, NH 03840, USA
Patrick's PALS XXII

Patrick’s PALS XXII 3-on-3 Basketball Tournament

Patrick's PALS XXII, a 3-on-3 Basketball Tournament established in 1997 by James & Pamela Vershbow (and three very close friends) is on for Saturday June 2, 2018 from 8 AM to 3 PM. The 32-team, double elimination, 4-half-courts-in-use tournament will take place at The Jack Etter Gymnasium inside The Nicholas Athletic Center at Buckingham Browne & Nichols School on Gerry's Landing Road in Cambridge. ...
Saturday, June 2, 2018
8:00 am - 3:00 pm
Buckingham Browne & Nichols School - Nicholas Athletic Center
Gerrys Landing Road, Cambridge, MA, USA
April 2018

Dash for Bash!

Like other boys with Fragile X syndrome, Bash is hoping for an effective treatment and ultimately a cure. I am hoping to assist in this research by running my first marathon on April 8, 2018. Please sponsor me to fund research through the FRAXA Research Foundation. ...
Sunday, April 8, 2018
CHEAP Marathon
Salisbury, MA

Fragile X Conference at Boston Children’s Hospital

FRAXA and the Pierce Foundation are partners with Boston Children's Hospital's Fragile X Program and are pleased to help bring this important Fragile X conference to the greater Boston community. Two FRAXA-supported researchers, Dr. Craig Erickson from Cincinnati Children's Hospital and Dr. Carol Wilkinson from Boston Children's Hospital will present their current work. ...
Saturday, April 7, 2018
9:30 am - 3:00 pm
Boston Children's Hospital at Waltham
9 Hope Avenue, Waltham, MA 02453, USA
No event found!