Events to Benefit Fragile X Research

Join FRAXA’s Fragile X Family Conversations on Apr 22 at 12:00 pm ET to connect with families, share experiences, and gain insights on the Fragile X journey.

This is a family-friendly event hosted by the EHL Fragile X Foundation where kids of all ages can explore and ask questions about their favorite vehicles such as Cape Coral Rescue Fire Truck, Lee County Emergency Medical Ambulance, Cape Coral Police BMW Motorcycles, and the Florida Forestry Swamp Buggy to name a few.

Join FRAXA’s Fragile X Family Conversations on Feb 11 at 12:00 pm to connect with families, share experiences, and gain insights on the Fragile X journey.

Join the Callum Cup VIII on Dec 8, 2024, at Millburn High for a day of soccer & community, raising funds for Fragile X research. Spectators & players welcome!

Join us on Thursday, November 21 to help raise funds for Fragile X research by volunteering when the Boston Bruins host the New Jersey Devils. At each home game, the Boston Bruins Foundation hosts a 50/50 raffle with half the proceeds going to a lucky winner and the other half going to a worthy charity. FRAXA Research Foundation is incredibly fortunate to be the featured charity.

Join FRAXSOCAL for an insightful Zoom event with Dr. Kristen Bzdek, Senior Medical Director at Harmony Biosciences and Medical Lead of the ZYN002 program for Fragile X syndrome. Dr. Bzdek will give an overview of the RECONNECT trial and answer questions. Don’t miss this opportunity to learn more!

Join FRAXSOCAL for Family Fun Day with bowling, pizza, and community at California State Fullerton on Sunday, November 17, 2024, from 1-3:30 pm! This free event is open to those affected by Fragile X Syndrome and their immediate family. Located at Titan Bowling in the Titan Student Union, with free parking available.

Please join us for a Family Fun Night for Fragile X on Saturday, September 14 at the Sardina Dental Group. Stop by anytime 4pm-7pm that day. We will have Carmel Apple Dipping, Face Painting, Fox Meadows Ice Cream, Bounce House, Lawn Games, Raffles and more!

Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way.

World Fragile X Day celebrates families impacted by Fragile X and highlights progress of research to find a cure. On World Fragile X Day we shine a light on Fragile X by illuminating monuments and landmarks around the world. We gather with friends and family to celebrate loved ones who shine in the face of Fragile X.

Please join Carrie Buchanan, MD, Fragile X Program Director at Greenwood Genetic Center, for a webinar on World Fragile X Day, July 22, 2024, at 11 AM ET. She will discuss how individuals with Fragile X experience high levels of anxiety, which can manifest in many different ways.

The Silicon Valley Sunshine Interact Club is hosting a fundraising event in celebration of World Fragile X Day, aiming to raise funds and awareness for Fragile X and the research being conducted on it. We are offering a webinar on July 14th at 2 PM PST with Katie Clapp, the founder of FRAXA. We will host booths at local Palo Alto farmers' markets the weekend before World Fragile X Day.

Please join FRAXA co-founders, Katie Clapp and Dr. Michael Tranfaglia, for a Research Q&A via Zoom on Thursday, May 23, 2024 at 12:00 pm (noon) ET

The Gordon Research Seminar on Fragile X and Autism-Related Disorders is a unique forum for graduate students, post-docs, and other scientists with comparable levels of experience and education to present and exchange new data and cutting edge ideas.

The Gordon Research Seminar on Fragile X and Autism-Related Disorders is a unique forum for graduate students, post-docs, and other scientists with comparable levels of experience and education to present and exchange new data and cutting edge ideas.

Darlene and Pat are hosting their 8th 5K Walk for Fragile X Syndrome on September 18, 2022 in Derry, NH to raise funds for Fragile X research and increase awareness.

Join us for a fun evening of eating the Flatbread Company's amazing pizza and raising money for Fragile X research!

Join us for the 6th Annual FRAXA Cornhole Tournament in Frederick, Maryland hosted by Dan, Jodie, Julianne and Jackson Grove. Dan and Jodie's son Jackson (10) was diagnosed with Fragile X syndrome at the age of 3 and at that time neither them, their friends, family members or local school system knew anything or had even heard about Fragile X. They wanted to help with the awareness efforts and research. As they learned more about FRAXA Research Foundation, they wanted to do all they can to help the amazing efforts in awareness, coping and research towards effective treatment and ultimately a cure!

Gail O'Mara is running the 2018 Chicago Marathon to recognize and honor the efforts of her delightful grandson James, who with undaunted spirit has met the challenges of living with Fragile X.

Sally Ann Endleman will be exhibiting her pottery for the entire month of August, with an opening reception on August 9 from 5 pm to 7 pm. Several of her one of a kind pieces will be on display and for sale. She will also be holding a fundraiser for FRAXA: a selection of pottery will be gifted to individuals contributing to this cause.

Like other boys with Fragile X syndrome, Bash is hoping for an effective treatment and ultimately a cure. I am hoping to assist in this research by running my first marathon on April 8, 2018. Please sponsor me to fund research through the FRAXA Research Foundation.