Events to Benefit Fragile X Research

Please join us for a Family Fun Night for Fragile X on Saturday, September 16 at the Sardina Dental Group. Stop by anytime 4pm-7pm that day. We will have Pick Your Own Apple, Carmel Apple Dipping, Face Painting, Fox Meadows Ice Cream, Bounce House, Lawn Games, Raffles and more!

Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way.

Hey, gaming fam! Check out an insane Twitch stream fundraiser hosted by Zae for World Fragile X Day! From July 22-24, 8pm to midnight EST, Zae will be grinding through Monster Hunter: World (Iceborne DLC), Overwatch 2, Valorant, Pokemon Heartgold,

World Fragile X Day celebrates families impacted by Fragile X and highlights progress of research to find a cure. On World Fragile X Day we shine a light on Fragile X by illuminating monuments and landmarks around the world. We gather with friends and family to celebrate loved ones who shine in the face of Fragile X.

Join Patrick's PALS 3-on-3 basketball tournament and showcase your skills on the court while supporting a great cause! The annual tournament brings together basketball enthusiasts of all ages for a day of fun and friendly competition, with all proceeds going to benefit FRAXA Research Foundation's mission to find effective treatments and ultimately a cure for Fragile X syndrome.

Join us at the Bradford Country Club in Haverhill/Bradford, MA, on May 26, 2023 for our Annual Charity Golf Tournament.

This is a family-friendly event hosted by the EHL Fragile X Foundation where kids of all ages can explore and ask questions about their favorite vehicles such as Cape Coral Rescue Fire Truck, Lee County Emergency Medical Ambulance, Cape Coral Police BMW Motorcycles, and the Florida Forestry Swamp Buggy to name a few.

Join the Fragile X Association of Southern California on Saturday, March 11, 2023 for the 10th Annual 5K Walk/Race for Fragile X and celebrate our Southern California Fragile X Community!

Join us on Tuesday, December 13 to help raise funds for Fragile X research by volunteering when the Boston Bruins host the New York Islanders. At each home game, the Boston Bruins Foundation hosts a 50/50 raffle with half the proceeds going to a lucky winner and the other half going to a worthy charity. FRAXA Research Foundation is incredibly fortunate to be the featured charity on Tuesday, December 13, at 7:00 pm, when the Bruins play the at Boston’s TD Garden.

Darlene and Pat are hosting their 8th 5K Walk for Fragile X Syndrome on September 18, 2022 in Derry, NH to raise funds for Fragile X research and increase awareness.

The 6th annual Callum Cup will be played on Sunday, August, 28, 2022. Join us for great competition and great fun while raising funds for Fragile X research. Everyone is welcome to come out and watch the games or stop by St James Gate in Maplewood post-game to socialize.

Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way.

Join us for a fun evening of eating the Flatbread Company's amazing pizza and raising money for Fragile X research!

The Gordon Research Seminar on Fragile X and Autism-Related Disorders is a unique forum for graduate students, post-docs, and other scientists with comparable levels of experience and education to present and exchange new data and cutting edge ideas.

The Gordon Research Seminar on Fragile X and Autism-Related Disorders is a unique forum for graduate students, post-docs, and other scientists with comparable levels of experience and education to present and exchange new data and cutting edge ideas.

We are creating the Step Up for Fragile X Research Award. This $50,000 grant will fund a research grant that we believe will make a positive difference for our families. We’ve secured $25,000 in matching funds but need to raise another $25,000 to make this vision a reality!

An ongoing ONEHOPE fundraiser aimed at sharing wine while giving hope with 10% of purchases donated to FRAXA.

This year, on Fragile X Awareness Day, a growing number of buildings, bridges, and monuments — including Niagara Falls — will be illuminated in teal to spread the word about Fragile X and celebrate our community. Although we may not be able to gather in groups this year, we still encourage you to briefly visit or drive by lighting displays and share your experience with us.

Join us for the 6th Annual FRAXA Cornhole Tournament in Frederick, Maryland hosted by Dan, Jodie, Julianne and Jackson Grove. Dan and Jodie's son Jackson (10) was diagnosed with Fragile X syndrome at the age of 3 and at that time neither them, their friends, family members or local school system knew anything or had even heard about Fragile X. They wanted to help with the awareness efforts and research. As they learned more about FRAXA Research Foundation, they wanted to do all they can to help the amazing efforts in awareness, coping and research towards effective treatment and ultimately a cure!

Gail O'Mara is running the 2018 Chicago Marathon to recognize and honor the efforts of her delightful grandson James, who with undaunted spirit has met the challenges of living with Fragile X.

Sally Ann Endleman will be exhibiting her pottery for the entire month of August, with an opening reception on August 9 from 5 pm to 7 pm. Several of her one of a kind pieces will be on display and for sale. She will also be holding a fundraiser for FRAXA: a selection of pottery will be gifted to individuals contributing to this cause.

FRAXA is proud to announce that the Niagara Falls Illumination Board will light up Niagara Falls in teal on Fragile X Awareness Day, July 22, 2018!  What a great way to shine a bright light on Fragile X research at such an iconic place. Spread the word, and if you will be in the Buffalo/Niagara Falls area, we want you to come to this event and take lots of photos!! The lighting of the falls in teal will take place July 22 at 10pm. 

Fragile X Awareness front and center at the New York Stock Exchange! A huge thank you to Lou Barbera for making this happen for all Fragile X families. On July 5 FRAXA will help bring attention to Fragile X by

The Buck Snort restaurant and sports bar will be donating $1.00 for each Swamp Donkey burger sold through the whole month of July at 3 of their locations: Council Bluffs 25 Scott Street www.bucksnortrestaurants.com/council-bluffs/ Glenwood 419 Sharp Street www.bucksnortrestaurants.com/glenwood/ Nebraska

Like other boys with Fragile X syndrome, Bash is hoping for an effective treatment and ultimately a cure. I am hoping to assist in this research by running my first marathon on April 8, 2018. Please sponsor me to fund research through the FRAXA Research Foundation.