Wieber Family Journey

Wieber Family Journey

When Zach and Leslie Wieber started their family, they were unaware of Fragile X syndrome. Then in 2012, they received the news that changed their lives. Their sons, now ages 13, 11, and almost 10, all live with Fragile X syndrome. Like many parents, the Wiebers felt relief and fear when their children were diagnosed.

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Sincere Gratitude for a Successful #GivingTuesday 2020

Sincere Gratitude for a Successful #GivingTuesday 2020

From the bottom of our hearts, thank you. In a year filled with so much uncertainty, you truly rose to the occasion. From creating Facebook fundraisers to sharing why you give back, each one of you made a difference. With the help of our dedicated supporters and gifts from over 150 amazing donors, FRAXA Research Foundation raised $70,047 on #GivingTuesday.

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Landmarks Light Up Fragile X Awareness Day 2020

Landmarks Light Up Fragile X Awareness Day 2020

This year, on Fragile X Awareness Day, a growing number of buildings, bridges, and monuments — including Niagara Falls — will be illuminated in teal to spread the word about Fragile X and celebrate our community. Although we may not be able to gather in groups this year, we still encourage you to briefly visit or drive by lighting displays and share your experience with us.

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We’re All In This Together, One Day At A Time.

We’re All In This Together, One Day At A Time.

As many of you know, FRAXA’s mission is to find effective treatment options and ultimately a cure for Fragile X. Right now though, we know that we have to pivot. The Fragile X community has always been the center of our mission and today, there are other ways we can be helpful. We would like to host virtual gatherings that will benefit the Fragile X community and help us all feel connected.

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FRAXA Welcomes Elle to the Team!

FRAXA Welcomes Elle to the Team!

Ellen Skala, known as Elle, has joined FRAXA Research Foundation as Program Coordinator. Elle is excited to work on the FRAXA team and we are excited to have her on board! She has experience in grant writing and personal fundraising campaigns. In her new role as program coordinator, Elle will communicate with FRAXA supporters throughout the country, connecting them to the mission and assisting them in fundraising and awareness-raising activities.

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