On January 15, TD Garden was the stage for an exciting hockey game where the Boston Bruins shut out the New Jersey Devils with an impressive 3-0 victory. Beyond the thrilling hockey action, the day was marked by a spirit of unity and generosity, thanks to the remarkable efforts of #TeamWally, the LivJoy Foundation, and FRAXA volunteers.
#TeamWally, a dedicated group of family and friends, gathered in honor of 4-year-old Wallace “Wally” David Schutz, who lives with Fragile X syndrome. Alongside them, the LivJoy Foundation, founded by Brian and Rachel Clouse, stood strong in tribute to their daughters, Livia and Amanda Joy, who also face challenges of Fragile X.
What made this day truly exceptional was the collective effort of 49 volunteers, just one away from the maximum permitted for FRAXA. These dedicated individuals came together to sell 50/50 raffle tickets at the game. The enthusiasm of our volunteers was unmatched, making it hard for hockey fans to pass by without purchasing tickets.
Erich Schutz, expressing the sentiments of the entire team, shared, "We had a blast and are already talking about doubling it next year!"
The raffle’s final pot reached an astounding $123,210! Half will go to one lucky winner and the other half will be distributed among three deserving charities: FRAXA, Home Base, and the Bourque Family Foundation.
A heartfelt thank you goes out to everyone who purchased and sold 50/50 tickets. The volunteers from #TeamWally, the LivJoy Foundation and other friends of FRAXA ensured the day was a triumph, showing how collaboration and determination continue to drive Fragile X research forward.
This marked the 7th year that FRAXA has participated in the Bruins 50/50 charity event. We extend our heartfelt thanks to the Boston Bruins Foundation for organizing this event and graciously inviting us to be a part of it. Their support has been instrumental in our ability to continue advancing research and increasing awareness for Fragile X syndrome.