Starting 2021 Filled with Gratitude and Determination!

2020 tested us all, but our incredible community and supporters helped FRAXA push through one of the hardest years yet.

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Sincere Gratitude for a Successful #GivingTuesday 2020

From the bottom of our hearts—thank you! With 150+ donors, FRAXA raised $70,047 on #GivingTuesday. Your support brings hope to Fragile X families.

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Doris Buffett

A Tribute to Doris Buffett, Philanthropist

Doris Buffett, sister of Warren Buffett, passed at 92. She donated over $100M and called FRAXA “the gold standard” in grassroots charities.

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Fragile X Community Launches #TealTakeover

From a few Zoom calls came an idea to celebrate Fragile X Awareness Day with three online events: the #TealTakeover!

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Talking Step Up for Fragile X

Thanks to Talk Fragile X for featuring FRAXA’s Ellen Skala! She shared exciting details about our virtual event, Step Up for Fragile X!

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Landmarks Light Up Fragile X Awareness Day 2020

On Fragile X Awareness Day 2020, 67 landmarks across the US & Canada lit up teal! Explore the map & celebrate this growing global movement.

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Talk Fragile X Podcast with Dave Bjork

Thank you, Talk Fragile X, for featuring FRAXA’s Dave Bjork on your podcast! We’re grateful for the chance to share our mission and research progress.

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We’re All In This Together, One Day At A Time.

FRAXA remains dedicated to finding a cure for Fragile X. To support our community, we’re launching virtual gatherings to help us stay connected.

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FRAXA is Thinking About You

With COVID-19 changing daily life, we know it’s hard—especially for Fragile X families. FRAXA is here to support you every step of the way.

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Fragile X Researcher, Cara Westmark, PhD

Ketogenic Diet Eases Symptoms in Fragile X Male Mice

Westmark Lab is studying sleep patterns in Fragile X mice, working with UW-Madison to develop tools that speed EEG data analysis

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Dan Vershbow, Mary Higgins Clark, Michael Tranfaglia, Katie Clapp

A Tribute to Mary Higgins Clark

Mary Higgins Clark, beloved author and Fragile X advocate, passed at 92. Her $1M gift in 1997 helped put FRAXA on the map for research.

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Thankful is an Understatement

Thanks to our incredible supporters, FRAXA met its $750K goal before 2020—proof that together, we can overcome any challenge!

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Jim Cantore Assists on an Absolutely Successful #GivingTuesday

With Jim Cantore’s help and 130+ donors, FRAXA raised $95,500 on #GivingTuesday—funding two year-long Fragile X research grants!

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A Personal Touch to Supporting Fragile X Research

As the holidays near, take a moment to make a difference. Your year-end gift to FRAXA helps change the future for Fragile X families.

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Ellen Skala

FRAXA Welcomes Elle to the Team!

FRAXA welcomes Ellen “Elle” Skala as Program Coordinator! She brings grant writing & fundraising experience to support our mission.

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20 Landmarks Will Light Up for Fragile X Awareness Day

20 landmarks in the US & Canada will light up teal on July 22 for International Fragile X Awareness Day, spreading hope and awareness!

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David and Cecil Rosenthal Fragile X Brothers killed at Pittsburgh synagogue massacre

Fragile X Brothers Two of the Pittsburgh Synagogue Massacre Victims

We mourn Cecil & David Rosenthal, beloved brothers with Fragile X, lost in the Tree of Life tragedy. Their kindness and faith will never be forgotten.

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Brett Soars To Eagle

Inspired by others, Brett aimed for Eagle Scout. Some badges were tough, but Scouting’s special needs path helped him reach his goal.

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Kathan Pierce Named Patriots Difference Maker of the Week!

FRAXA’s Kathan Pierce, co-founder of The Pierce Family Fragile X Foundation, is the 2018 Patriots Difference Maker of the Week!

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Niagara Falls went Teal for Fragile X Awareness

Niagara Falls glowed teal on July 22 for Fragile X Awareness Day! Huge thanks to the Illumination Board for this stunning show of support.

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Todd-Haenfler

Fragile X Research Impacted by a Small Group of Thoughtful, Committed Citizens

Congrats to FXAM! Their months of effort paid off with a $35K grant to support Dr. Todd’s groundbreaking Fragile X CRISPR research.

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ringing the bell at the NYSE

Ringing the Bell at the New York Stock Exchange for Fragile X Awareness

FRAXA and NFXF rang the NYSE opening bell to raise awareness for Fragile X—an incredible moment shared worldwide on CNBC!

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Takeaways from Fragile X Advocacy Day

At my first Fragile X Advocacy Day, I met with Congress and families, advocating together for research and hope.

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Newly Diagnosed with Fragile X – What Comes Next?

In 2012, Jessica Haugen & Jeff Eliason learned their 1-year-old son Larry had Fragile X. The news brought shock, denial, and heartbreak.

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FRAXA Funded Research

Current Research Grants (37)