2020 tested us all, but our incredible community and supporters helped FRAXA push through one of the hardest years yet.
From the bottom of our hearts—thank you! With 150+ donors, FRAXA raised $70,047 on #GivingTuesday. Your support brings hope to Fragile X families.
Doris Buffett, sister of Warren Buffett, passed at 92. She donated over $100M and called FRAXA “the gold standard” in grassroots charities.
From a few Zoom calls came an idea to celebrate Fragile X Awareness Day with three online events: the #TealTakeover!
Thanks to Talk Fragile X for featuring FRAXA’s Ellen Skala! She shared exciting details about our virtual event, Step Up for Fragile X!
On Fragile X Awareness Day 2020, 67 landmarks across the US & Canada lit up teal! Explore the map & celebrate this growing global movement.
Thank you, Talk Fragile X, for featuring FRAXA’s Dave Bjork on your podcast! We’re grateful for the chance to share our mission and research progress.
FRAXA remains dedicated to finding a cure for Fragile X. To support our community, we’re launching virtual gatherings to help us stay connected.
With COVID-19 changing daily life, we know it’s hard—especially for Fragile X families. FRAXA is here to support you every step of the way.
Westmark Lab is studying sleep patterns in Fragile X mice, working with UW-Madison to develop tools that speed EEG data analysis
Mary Higgins Clark, beloved author and Fragile X advocate, passed at 92. Her $1M gift in 1997 helped put FRAXA on the map for research.
Thanks to our incredible supporters, FRAXA met its $750K goal before 2020—proof that together, we can overcome any challenge!
With Jim Cantore’s help and 130+ donors, FRAXA raised $95,500 on #GivingTuesday—funding two year-long Fragile X research grants!
As the holidays near, take a moment to make a difference. Your year-end gift to FRAXA helps change the future for Fragile X families.
FRAXA welcomes Ellen “Elle” Skala as Program Coordinator! She brings grant writing & fundraising experience to support our mission.
20 landmarks in the US & Canada will light up teal on July 22 for International Fragile X Awareness Day, spreading hope and awareness!
We mourn Cecil & David Rosenthal, beloved brothers with Fragile X, lost in the Tree of Life tragedy. Their kindness and faith will never be forgotten.
Inspired by others, Brett aimed for Eagle Scout. Some badges were tough, but Scouting’s special needs path helped him reach his goal.
FRAXA’s Kathan Pierce, co-founder of The Pierce Family Fragile X Foundation, is the 2018 Patriots Difference Maker of the Week!
Niagara Falls glowed teal on July 22 for Fragile X Awareness Day! Huge thanks to the Illumination Board for this stunning show of support.
Congrats to FXAM! Their months of effort paid off with a $35K grant to support Dr. Todd’s groundbreaking Fragile X CRISPR research.
FRAXA and NFXF rang the NYSE opening bell to raise awareness for Fragile X—an incredible moment shared worldwide on CNBC!
At my first Fragile X Advocacy Day, I met with Congress and families, advocating together for research and hope.
In 2012, Jessica Haugen & Jeff Eliason learned their 1-year-old son Larry had Fragile X. The news brought shock, denial, and heartbreak.
Categories
FRAXA Funded Research
Current Research Grants (37)
Select Grant Year2025 Grants (19)2024 Grants (34)2023 Grants (35)2022 Grants (32)2021 Grants (24)2020 Grants (20)2019 Grants (24)2018 Grants (29)2017 Grants (26)2016 Grants (25)2015 Grants (19)2014 Grants (16)2013 Grants (26)2012 Grants (30)2011 Grants (27)2006-2010 Grants (80)2001-2005 Grants (58)1994-2000 Grants (28)
Select ResearcherAbolghasemi, Armita (1)Albeck, David (1)Alger, Bradley (1)Allada, Ravi (1)Allen, Nicola (1)Annear, Dale (2)Bacigalupo, Juan (1)Bagni, Claudia (3)Bailey, Don (2)Banerjee, Probal (1)Banke, Tue (2)Bardoni, Barbara (6)Barnes, Stephanie (3)Bassell, Gary (3)Bauchwitz, Robert (1)Bear, Mark (16)Beasley, Lindsay (1)Bergdolt, Lara (1)Berry-Kravis, Elizabeth (17)Bettio, Luis (1)Bhakar, Asha (1)Bhattacharya, Aditi (2)Bhattacharyya, Anita (5)Bilousova, Tina (1)Binder, Devin (4)Bloom, David (1)Borreca, Antonella (4)Bosch, Miquel (1)Boussadia, Zaira (2)Brager, Darrin (1)Braun, Katarina (1)Brenman, Jay (1)Brennan, Francis (1)Briault, Sylvain (4)Broadie, Kendal (1)Brown, W Ted (1)Budylin, Tatyana (1)Caku, Artuela (2)Canal, Clinton E. (4)Carthew, Richard (1)Carullo, Paulina (2)Castren, Maija (1)Cea-Del Rio, Christian (1)Ceman, Stephanie (1)Chattarji, Sumantra (3)Chen, Chloe (2)Cheng, Ning (1)Choi, Catherine (3)Christie, Brian (2)Ciranna, Lucia (1)Cline, Holly (1)Cogram, Patricia (8)Contractor, Anis (2)Corbin, Francois (3)Corbin, Joshua (1)Coulson, Rochelle (2)Cowan, Christopher (1)Cowan, Justin (1)Cox, Charles (1)Crnic, Linda (1)Croom, Katilynne (1)Darnell, Jennifer (1)Darnell, Robert (1)Davidovic, Laetitia (1)Davidson, Beverly (1)de la Torre, Rafael (2)De Stefano, Lisa (1)de Vrij, Femke (1)Deacon, Robert (2)Dempsey, Graham (1)Deng, James (1)Deng, Pan-Yue (1)Denman, Robert (2)Di Marino, Daniele (1)Dierssen, Mara (2)Dijck, Anke Van (2)Dionne, Olivier (1)Disney, Matthew (1)Dobkin, Carl (1)Dockendorff, Thomas (1)Doering, Laurie (1)Dumontier, Dimitri (1)Dunaevsky, Anna (1)Dykens, Elisabeth (1)El Idrissi, Abdeslem (1)El-Osta, Assam (1)Erickson, Craig (13)Ethell, Iryna (6)Fallon, Justin (2)Feng, Jia (1)Feng, Yue (1)Fink, James (1)Finucane, Brenda (1)Francesconi, Anna (1)Frick, Andreas (2)Galera-López, Lorena (1)Gan, Wen-Biao (2)Gantois, Ilse (2)Gao, Fen-Biao (1)Gao, Pan (1)Garkun, Yury (1)Gatto, Cheryl (1)Gelfand, Vladimir (1)Geoffroy, Andrea (1)Germain, Noelle (1)Giangrande, Angela (1)Gibson, Jay (2)Goncalves, Tiago (1)Greenough, William (1)Grokoski, Kamila Castro (1)Gross, Christina (2)Guiotto, Annamaria (1)Gurney, Mark (2)Gutierrez, Alejandra (1)Ha, Seong Eon (1)Haenfler, Jill (1)Hagerman, Paul (1)Hagerman, Randi (2)Haggarty, Stephen (1)Hassan, Bassem (1)He, Qionger (2)Heaney, Chelcie (1)Hessl, David (1)Higashimori, Haruki (1)Hogan, Carolyn Ann (1)Holley, Andrew (1)Hoogeveen, Andre (1)Huber, Kimberly (8)Huganier, Richard (1)Huntsman, Molly (2)Ingolia, Nicholas (1)Jaffrey, Samie (3)Jiang, Yong-Hui (1)Jin, Peng (5)Johnson-Glenberg, Mina (1)Johnston, Daniel (2)Jonak, Carrie (1)Jonas, Elizabeth (3)Jongens, Tom (4)Jope, Richard (1)Joyce, Karen (1)Kaczmarek, Leonard (7)Kandel, Eric (1)Kanellpoulos, Alexandros (1)Kang, Yunhee (2)Kaufmann, Walter (1)Khandjian, Edouard (1)Kim, Hwan (1)Kim, J. Wren (1)Kind, Peter (2)Kindler, Stephan (1)King, Margaret (2)Klann, Eric (2)Klug, Achim (1)Klyachko, Vitaly (4)Koeglsperger, Thomas (1)Kooy, Frank (8)Kosti, Adam (1)Kourdougli Nazim (1)Kreienkamp, Hans-Jurgen (1)Krzisch Marine Anais (1)Kumar, Vikas (1)Kumar, Vipendra (1)Kumari, Daman (1)Kurosaki, Tatsuaki (3)Larson, John (1)Lauder, Jean (1)Lauterborn, Julie (1)LeDoux, Joseph (1)Lee, Hungoo (2)Lee, Jeannie (10)Lepage, Jean-Francois (2)Levy, Richard (1)Li, Wenqi (1)Li, Xuekun (1)Licznerski, Pawel (1)Lieberman, David (1)Lombroso, Paul (1)Lovelace, Jonny (2)Mack, Kenneth (1)Malter, James (1)Mandel, Jean-Louis (1)Mansvelder, Huibert (1)Manzoni, Olivier (1)Maquat, Lynne (5)Marro, Samuele (1)Marsillo, Alexandra (1)Martin, Stéphane (1)Martire, Alberto (4)Mato Santos, Susana (1)Maurin, Thomas (3)McBride, Sean (4)McCamphill, Patrick (3)McCullagh, Elizabeth (1)McDougle, Christopher (1)McKenna, Mary (1)Meffert, Mollie (1)Men, Yuqin (1)Mihailescu, Mihaela (1)Moine, Herve (3)Morishita, Hirofumi (1)Morris, David (1)Moses, Kevin (1)Mourrain, Philippe Jacques (2)Moy, Sheryl (1)Muddashetty, Ravi (1)Murgia, Alessandra (1)Nelson, Charles A. (3)Nelson, David (3)Neri, Giovanni (3)Njem, Nadine (1)O'Malley, Karen (1)O’Donnell, Cian (1)Oh, Ji-eun (2)Oliviera Laura (1)Oostra, Ben (2)Osterweil, Emily (5)Ozaita, Andres (2)Paribello, Carlo (1)Paylor, Richard (1)Pedapati, Ernest (2)Pepper, Anita (1)Pichon, Jacques (3)Pirbhoy, Patricia (3)Portera-Cailliau, Carlos (2)Pouchelon, Gabrielle (1)Pouladi, Mahmoud (2)Pronot, Marie (1)Protic, Dragana (1)Raab-Graham, Kimberly (1)Rattazzi, Mario (1)Razak, Khaleel (7)Regan, Lynne (1)Reis, Surya (1)Renwick, Neil (1)Reynolds, Kathryn (1)Richards, Robert (1)Richter, Joel (10)Romagnoli, Alice (1)Rotman, Ziv (1)Ruppert, Kathryn (1)Saraf, Tanishka (1)Sawacha, Zimi (1)Schaefer, Tori (1)Schmitt, Lauren (1)Scott, Angela (1)Segal, Menahem (1)Sejnowski, Terrence (1)Senter, Rebecca (2)Shah, Sneha (8)Shen, Minjie (1)Siegel, Jennifer (1)Silva, Alcino (1)Simpson, Sara Kornfeld (1)Siomi, Haruhiko (1)Siomi, Mikko (1)Sirois, Carissa (1)Skoulakis, Efthimios (1)Smith, Carolyn B. (4)Smith, Elizabeth (1)Smith, Laura N. (1)Smith, Stephen E.P. (1)Soderling, Scott (1)Sonenberg, Nahum (6)Spolaor, Fabiola (1)Stackhouse, Tracy (1)Stamenkovic, Vera (1)Stanfield, Andrew (1)Steward, Oswald (2)Svendsen, Clive (1)Svoboda, Karel (2)Tang, Weiping (1)Tartaglia, Nicole (1)Tartakoff, Alan (1)Tejada-Simons, MariVi (1)Tempio, Alessandra (1)Thacker, Jonathan (1)Tiedge, Henri (1)Todd, Peter (9)Tonegawa, Susumu (1)Toth, Miklos (2)Tremblay, Marie-Eve (1)Tsai, Nien-Pei (1)Tsai, Yuan-Chen (1)Turner, Raymond (3)Tuschl, Thomas (1)Usdin, Karen (1)Utami, Kagistia (1)van der Lei, Mathijs (3)Vanderklish, Peter (8)Wang, Gordon (2)Wang, Hongbing (1)Warren, Stephen (2)Watanabe, Momoko (1)Weiler, Ivan Jeanne (1)Weisz, Eliana D. (1)Wen, Zhexing (4)Wernig, Marius (1)Westmark, Cara (5)Whitehead, Kathryn (1)Wilhelm, Michael (1)Wilkinson, Carol (5)Willemsen, Rob (1)Williams, Leena E. (1)Winograd, Claudia (1)Wong, Robert (1)Worley, Paul (1)Wright, Damien (1)Xu, Jie (1)Xu, Zhiyan (1)Yalan, Zhang (1)Yang, Wang-Yong (1)Yang, Yongjie (2)Yerneni, Saigopalakrishna (1)Yin, Jerry (1)Yrigollen, Carolyn (1)Yuskaitis, Christopher (1)Zang, Tong (1)Zhan, Xiaoqin (3)Zhao, Xinyu (7)Zhong, Jun (1)Zhu, Julius (2)Zoupi, Lida (1)Zukin, Suzanne (2)
Select Research TypeBiomarkers (32)Clinical (26)Curative Therapies (22)Disease Mechanisms (145)Drug Repurposing (26)Resources (4)Treatment Targets (145)
Select OrganizationAgency for Science, Technology and Research (A*STAR) (1)Albert Einstein College of Medicine (3)Baylor College of Medicine (3)Boston Children's Hospital (2)Brown University (2)Carnegie Mellon University (1)Case Western Reserve University (1)Centre for Genomic Regulation (1)Children's Hospital of Philadelphia (CHOP) (1)Children's National Medical Center (1)Chinese Academy of Science (1)Cincinnati Children's Hospital (6)CNR - Institute of Neuroscience (1)CNRS Bordeaux (1)CNRS Valbonne (1)Cold Spring Harbor Laboratory (5)College of Staten Island (1)Columbia University (2)Cornell University (6)Drexel University (1)Duke University (1)Duquesne University (1)Emory University (8)Erasmus University Rotterdam (4)Flanders University (1)FLENI Foundation (1)Geisinger Health System (1)Harvard University (6)Icahn School of Medicine at Mount Sinai (1)IGBMC. France (1)INSERM Valbonne, France (2)Institut de Pharmacologie Moléculaire et Cellulaire (1)Institute of Cellular and Developmental Biology (1)ISERM Marseille, France (1)Italian National Institute of Health (2)John Hopkins University (2)Laval University, Quebec (1)Ludwig Maximilian University Medical School (1)Massachusetts General Hospital (3)Massachusetts Institute of Technology (MIT) (11)Mayo Clinic (1)McGill University (5)Mclean Hospital (1)McMaster University, Canada (1)Mercer University (3)Michigan State University (1)National Center for Biological Sciences (1)National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) (1)National Institute of Mental Health (2)Neurocentre Magendie, France (2)New York State Institute for Basic Research (5)New York University (4)Northwestern University (4)Peter MacCallum Cancer Institute, Australia (1)Polytechnic University of Marche (1)Quiver Bioscience (1)Rockefeller University (2)Rowan University (2)Rush University Medical Center (8)Salk Institute (2)Scripps Research Institute (4)Seattle Children’s Research Institute (1)Special Hospital for Cerebral Palsy and Developmental Neurology, Serbia (1)Stanford University (4)State University of New York (2)Surrey Place Centre Toronto (1)Tokushima University, Japan (1)Tufts University School of Medicine (2)Universita Cattolica del S Cuore (3)Universita di Catania, Italy (1)Universite Louis Pasteur (1)University of Adelaide, Australia (1)University of Amsterdam, Netherlands (1)University of Antwerp, Belgium (6)University of British Columbia (1)University of Calgary, Canada (3)University of California at Berkeley (1)University of California at Davis (3)University of California at Los Angeles (3)University of California at Riverside (9)University of California at San Francisco (1)University of California, Irvine (3)University of Chile (3)University of Colorado (4)University of Edinburgh, Scotland (4)University of Florida (1)University of Hamburg, Germany (1)University of Helsinki Finland (1)University of Houston (1)University of Illinois at Urbana-Champaign (4)University of Illinois Chicago (1)University of Indiana (1)University of Leeds (1)University of Maryland (2)University of Massachusetts (6)University of Miami (1)University of Michigan (3)University of Nebraska Medical Center (1)University of North Carolina (4)University of Orleans, France (1)University of Oxford (1)University of Padua (1)University of Pennsylvania (2)University of Rochester (3)University of Sherbrooke, Canada (5)University of Strasbourg, France (1)University of Tennessee (1)University of Texas at Austin (2)University of Texas at Southwestern (7)University of Victoria (2)University of Virginia (1)University of Washington (2)University of Wisconsin (14)University Pompeu Fabra (2)Vanderbilt University (1)VIB, Leuven, Belgium (1)Wake Forest School of Medicine (1)Washington University (2)Weizmann Institute, Germany (1)Yale University (9)
