Holly Roos Joins the FRAXA Team!

FRAXA Research Foundation is excited that long time Fragile X advocate and well-known figure within the Fragile X community, Holly Roos, is joining our team as Community Services Director. We are thrilled with the energy and enthusiasm Holly brings to the team.

After the diagnosis of her 2 children in 2003, Holly dedicated herself to making a difference in the Fragile X community, with over 10 years focused directly on volunteer engagement. Her experience in fundraising, advocacy, education, and awareness span the past 18 years and have earned her awards and recognition both locally and nationally.

Holly lives with her children, Parker and A, in Central Illinois.

We look forward to the help Holly will bring to our dedicated team!