#teamwally shares a joyful outdoor moment supporting Fragile X awareness as the kids explore a steering wheel together

Cognitive Rigidity: a Hallmark of Fragile X and Autism

Cognitive rigidity shapes daily life in Fragile X, driving anxiety and repetitive behaviors. Learn its impact on treatment and independence.

Read More »

Together for a Brighter Future: Celebrating the 5th World Fragile X Day

Celebrate the 5th World Fragile X Day on July 22! Landmarks worldwide will shine teal to raise awareness and support Fragile X families.

Read More »
Researcher analyzing gait patterns on a treadmill for Fragile X syndrome motor function study.

Fragile X and Fatigue: Study Reveals How Muscle Function is Altered in Children

FRAXA-funded research shows how Fragile X syndrome muscle function affects walking and fatigue, offering insights for future treatments.

Read More »

Kicking Off Our 2024 Giving Season With Gratitude and Hope

FRAXA’s 2024 Annual Appeal begins with a $100K gift from the Berg and Schatz families, funding new Fragile X research teams and advancing a cure.

Read More »

Patrick’s PALS 28th Annual Basketball Tournament for FRAXA Breaks Record

Recap of Patrick’s PALS 28: a successful 3-on-3 basketball fundraiser in Boston, raising $170,000+ for FRAXA Research Foundation.

Read More »

Celebrate World Fragile X Day: July 22, 2024 – Global Landmarks Light Up

Celebrate World Fragile X Day on July 22, 2024 by lighting up landmarks. Join us in honoring Fragile X research and supporting affected families worldwide.

Read More »

Shape Our Conversation: FRAXA Feedback Survey

Share your thoughts in our short survey—your insights matter in our 30th year of progress.

Read More »

$100,000 Matching Challenge From The Robert & Ardis James Foundation

We are thrilled to announce FRAXA’s most significant and unique matching challenge thanks to the Robert & Ardis James Foundation.

Read More »

FRAXA Research Foundation Partners with Autism BrainNet

FRAXA’s collaboration with Autism BrainNet can accelerate Fragile X syndrome research by collecting vital postmortem brain tissue.

Read More »

Coming Together for Rare Disease Day 2023

Today we mark Rare Disease Day. FRAXA is committed to advancing research on Fragile X, one of the most common rare diseases worldwide.

Read More »

A Note of Thanks and Hope on This Giving Tuesday

Fragile X research matters. Each discovery brings us closer to treatments for autism and other brain disorders. Thanks to you, we have hope.

Read More »

Cape Coral Touch-A-Truck, Free, Family-Friendly Event

Join EHL Fragile X Foundation’s free Touch-A-Truck in Cape Coral! Explore fire trucks, police bikes, ambulances, swamp buggies, and more.

Read More »

Making Mittens for Fragile X

Carol spends over 2 hours crafting each fleece-lined mitten. Her handmade creations warm hands and support Fragile X research.

Read More »

Climbing 3 Mountains for Fragile X Research

Michael Leonard climbed three mountains in 24 hours to honor his son, Cole, who lives with Fragile X syndrome. A father’s love knows no limits.

Read More »

FRAXA’s Most Successful End-Of-Year Campaign Ever!

Together, we made history! FRAXA’s 2021 campaign was our most successful ever, fueling hope for treatments and a cure for Fragile X.

Read More »

Fundraising Never Tasted So Good

Ice cream for a cause! Lancaster Sweet Shoppe donated proceeds to FRAXA, raising $15,205 in honor of JT. Sweet treats, sweeter impact.

Read More »

Fragile X Syndrome and Air Travel

If you wish to participate in a letter writing campaign you can copy the letter below and start sending it the CEOs listed at the bottom of the page.

Read More »

Wieber Family Journey

In 2012, Zach and Leslie Wieber learned all three of their sons have Fragile X syndrome it was a moment filled with both relief and fear.

Read More »

USA Today, “Fragile X treatment: Decades later, progress in rare genetic condition”

USA Today profiled FRAXA co-founders Mike Tranfaglia, Katie Clapp, and their son Andy, highlighting how science is transforming rare disease care.

Read More »
Drs. Oostra, Warren, and Nelson discovered the Fragile X gene and its FRAXA mutation in 1991.

Memorial Tribute to Dr. Stephen T. Warren

Dr. Stephen T. Warren, who discovered the Fragile X gene (FRAXA) in 1991, passed away June 6, 2021. Donations in his honor support FRAXA Research.

Read More »

We Started Out Small, Now Look…

Join FRAXA in lighting up the world on July 22 for World Fragile X Day—together, we shine teal for Fragile X awareness!

Read More »

NPR Feature – A Fragile X Treatment May Be On The Horizon

NPR’s Jon Hamilton looks back on a decade of Fragile X progress and the Tranfaglia family’s quest for a cure. Hear their story on NPR Short Wave.

Read More »

Holly Roos Joins the FRAXA Team!

We’re thrilled to welcome Holly Roos, longtime Fragile X advocate, as FRAXA’s new Community Services Director!

Read More »

COVID-19 Vaccines Pose Little Risk to Rare Disease Patients, FDA, CDC Say

COVID-19 vaccines recently approved worldwide are expected to pose little risk to the rare disease community, including Fragile X patients.

Read More »

Categories

FRAXA Funded Research

Current Research Grants (39)