Families Come from Multiple States for Flatbread Pizza Fundraiser

August 19, 2022

We met Katie and other Fragile X families who welcomed us with open arms—it’s a wonderful feeling to know we’re not alone.

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World Fragile X Day Is Lighting the Way for Fragile X Research

August 8, 2022

On July 22, 383 landmarks worldwide lit up for World Fragile X Day—shining bright to raise awareness and celebrate research progress.

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Why Pharma Companies Take on Fragile X, Explained

June 30, 2022

Research aimed at finding Fragile X syndrome treatments is exploding. Why are so many companies investing? FRAXA CSO Dr. Michael Tranfaglia explains many reasons Fragile X is a hot topic.

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Charity Golf Tournament on Memorial Day Weekend Helps Fund Fragile X Research

June 29, 2022

Brothers Pete & Dave Hall’s 33rd Annual Golf Tournament raised $28K for FRAXA, bringing their 15-year total to over $262K!

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Transcriptional Signatures Sensitive to Cognition-Improving Pharmacological Treatments in Fragile X Syndrome

June 27, 2022

This team is defining Fragile X “molecular signatures” to use as biomarkers. They’ll test CBD and other drugs in mice and compare findings to human brain data.

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Built Jobsite BBQ Raising Funds for Fragile X Research

May 5, 2022

Built employee Jason and his team hosted a BBQ fundraiser for FRAXA after his sons, Jaxson and Alex, were diagnosed with Fragile X.

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Repurposing FDA-Approved Drugs to Treat Major Depressive Disorder in Fragile X Syndrome

April 24, 2022

Depression is common in Fragile X, but current antidepressants need FMRP to work. Researchers will screen FDA-approved drugs to find effective options for FXS.

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FMR1 Renamed to Fragile X Messenger Ribonucleoprotein 1

April 13, 2022

The FMR1 gene is renamed to “Fragile X Messenger Ribonucleoprotein 1” gene. The Fragile X protein, FMRP, is "Fragile X Messenger Ribonucleoprotein." "Mental retardation" is not used.

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VLM Commodities Charity Week Raises $10,000 for Fragile X Research

April 8, 2022

“Living with Fragile X is what we do—we keep going forward,” Lou shared. “FRAXA gives purpose, and I’m proud to support Charity Week.”

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How FRAXA Prioritizes Research, Explained

April 7, 2022

Dr. Mike Tranfaglia explains how FRAXA prioritizes research. "It’s not either-or. It’s not we have a definitive treatment or we have a new drug treatment or we have a repurposing treatment.

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Cape Coral Touch-A-Truck, Free, Family-Friendly Event

March 31, 2022

Join EHL Fragile X Foundation’s free Touch-A-Truck in Cape Coral! Explore fire trucks, police bikes, ambulances, swamp buggies, and more.

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Wine and Friends Are a Great Blend for Fragile X Research

March 25, 2022

Debra and Kevin hosted their first annual event for FRAXA in honor of their grandson Jackson, who has Fragile X syndrome.

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What FRAXA Is Excited about in the Upcoming Fragile X Research Grants, Explained

March 24, 2022

Many new clinical trials are starting, with existing and investigational drugs and other treatment strategies that have been tested in the Fragile X mouse models moving to patients in clinical trials.

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Gordon Research Conference for Fragile X and Autism-Related Disorders, Explained

March 17, 2022

The Fragile X and Autism-Related Disorders Gordon Research Conference is a biannual event, an international forum for the presentation and discussion of frontier research in these conditions.

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Making Mittens for Fragile X

February 25, 2022

Carol spends over 2 hours crafting each fleece-lined mitten. Her handmade creations warm hands and support Fragile X research.

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Meet Archie!

February 18, 2022

Archie really loves fire engines and trains as well as bells. Archie has had a few struggles this past year as his mom was diagnosed with cancer but thankfully she’s now cancer free.

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Banerjee team at College of Staten Island

Correcting Fragile X Syndrome Deficits by Targeting Neonatal PKCε Signaling in the Brain

February 17, 2022

Enhancing PKCε in early development normalized oxytocin, AMPAR signaling, and adult behavior in Fragile X mice, highlighting PKCε as a promising therapeutic target.

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Climbing 3 Mountains for Fragile X Research

February 4, 2022

Michael Leonard climbed three mountains in 24 hours to honor his son, Cole, who lives with Fragile X syndrome. A father’s love knows no limits.

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Potential Upcoming Advances in Fragile X Research

February 3, 2022

Dr. Peter Kind and Dr. Nahum Sonenberg share their optimism about the next 10 years of Fragile X research. They discuss where they think the next big discoveries will emerge.

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Lovamix: Clinical Trial of Combined Treatment of Minocycline and Lovastatin in Fragile X Syndrome

February 3, 2022

FRAXA funded the LovaMiX trial of lovastatin + minocycline for Fragile X. 2022 results show safety and support continued study of this dual-target treatment approach.

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FRAXA’s Most Successful End-Of-Year Campaign Ever!

January 11, 2022

Together, we made history! FRAXA’s 2021 campaign was our most successful ever, fueling hope for treatments and a cure for Fragile X.

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Neurodevelopmental Drug Development Summit Presentation

January 7, 2022

FRAXA president and co-founder, Katie Clapp, and and FRAXA Scientific Advisor, Dr. Elizabeth Berry-Kravis, presented at the Neurodevelopmental Drug Development Summit.

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Meet Jonathan!

December 26, 2021

Jonathan has changed a lot as he’s gotten older. He’s become calmer and less aggressive and has developed into a very social man! He still struggles with anxiety.

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10 Year Vision for Collaborations That Transform Fragile X and Autism Research

December 20, 2021

FRAXA’s Dr. Mike Tranfaglia talks with Autism Science Foundation’s Allison Singer about collaborations between the Fragile X community and other disability organizations as we look to the next 10 years.

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Categories

FRAXA Funded Research

Current Research Grants (37)