The 20th Annual Fragile X Poker Run in Sparta, NC celebrated two decades of community, music, and fundraising for Fragile X research.
Fragile X syndrome fundraising took center stage at Patrick’s PALS 29, raising over $150,000 at Boston’s premier 3-on-3 basketball event.
Callum Cup VIII, Millburn FC’s annual charity match, scored big with $19,400 raised for Fragile X research, bringing total funds to $148,000!
The 19th Annual Fragile X Poker Run, hosted by Jimmy, Dana & Mikey Charlton, brought friends & family together in Sparta, NC.
Recap of World Fragile X Day 2024, a global event spearheaded by FRAXA. Explore beautiful photos of landmark illuminations around the world.
The Hall family’s golf tournament raised $35,000 for Fragile X research—bringing their total contributions to over $327,000 for FRAXA!
Recap of Patrick’s PALS 28: a successful 3-on-3 basketball fundraiser in Boston, raising $170,000+ for FRAXA Research Foundation.
Celebrating FRAXA’s 7th year at Bruins 50/50 Event: teamwork and community unite for Fragile X research.
The Callum Cup in Millburn, NJ raised $26K for Fragile X research—a charity soccer match celebrating community and compassion!
Thanks to 191 donors, FRAXA raised $333,517 on #GivingTuesday 2023—advancing research and hope for Fragile X families.
Recap of Patrick’s PALS 27: a successful 3-on-3 basketball fundraiser at Bentley University, raising $150,000+ for FRAXA Research Foundation.
FRAXA supporters met the $100K Giving Tuesday challenge—raising $269,744! Your actions truly spoke louder than words. Thank you!
Thank you for making #GivingTuesday historic! With matching gifts, FRAXA raised $269,774—an incredible show of support!
The Callum Cup is back! This beloved Millburn FC charity match has raised $94,600 for Fragile X research over 7 amazing years.
We met Katie and other Fragile X families who welcomed us with open arms—it’s a wonderful feeling to know we’re not alone.
Patrick’s PALS 3-on-3 Basketball Tournament returned after 3 years, raising nearly $150K for FRAXA with help from Shady Hill School!
On July 22, 383 landmarks worldwide lit up for World Fragile X Day—shining bright to raise awareness and celebrate research progress.
Brothers Pete & Dave Hall’s 33rd Annual Golf Tournament raised $28K for FRAXA, bringing their 15-year total to over $262K!
Built employee Jason and his team hosted a BBQ fundraiser for FRAXA after his sons, Jaxson and Alex, were diagnosed with Fragile X.
“Living with Fragile X is what we do—we keep going forward,” Lou shared. “FRAXA gives purpose, and I’m proud to support Charity Week.”
Debra and Kevin hosted their first annual event for FRAXA in honor of their grandson Jackson, who has Fragile X syndrome.
Michael Leonard climbed three mountains in 24 hours to honor his son, Cole, who lives with Fragile X syndrome. A father’s love knows no limits.
Patrick’s PALS 25th Annual Fundraiser raised $140K for FRAXA in 2021, proof that the spirit and generosity behind this event never fade.
The 16th Annual Fragile X Poker Run brought friends from 10 states and Israel together, raising $29K for FRAXA research!
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FRAXA Funded Research
Current Research Grants (38)
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Select ResearcherAbolghasemi, Armita (1)Albeck, David (1)Alger, Bradley (1)Allada, Ravi (1)Allen, Nicola (1)Annear, Dale (2)Bacigalupo, Juan (1)Bagni, Claudia (3)Bailey, Don (2)Banerjee, Probal (1)Banke, Tue (2)Bardoni, Barbara (6)Barnes, Stephanie (3)Bassell, Gary (3)Bauchwitz, Robert (1)Bear, Mark (16)Beasley, Lindsay (1)Bergdolt, Lara (1)Berry-Kravis, Elizabeth (17)Bettio, Luis (1)Bhakar, Asha (1)Bhattacharya, Aditi (2)Bhattacharyya, Anita (5)Bilousova, Tina (1)Binder, Devin (4)Bloom, David (1)Borreca, Antonella (4)Bosch, Miquel (1)Boussadia, Zaira (2)Brager, Darrin (1)Braun, Katarina (1)Brenman, Jay (1)Brennan, Francis (1)Briault, Sylvain (4)Broadie, Kendal (1)Brown, W Ted (1)Budylin, Tatyana (1)Caku, Artuela (2)Canal, Clinton E. (4)Carthew, Richard (1)Carullo, Paulina (2)Castren, Maija (1)Cea-Del Rio, Christian (1)Ceman, Stephanie (1)Chattarji, Sumantra (3)Chen, Chloe (2)Cheng, Ning (1)Choi, Catherine (3)Christie, Brian (2)Ciranna, Lucia (1)Cline, Holly (1)Cogram, Patricia (8)Contractor, Anis (2)Corbin, Francois (3)Corbin, Joshua (1)Coulson, Rochelle (2)Cowan, Christopher (1)Cowan, Justin (1)Cox, Charles (1)Crnic, Linda (1)Croom, Katilynne (1)Darnell, Jennifer (1)Darnell, Robert (1)Davidovic, Laetitia (1)Davidson, Beverly (1)de la Torre, Rafael (2)De Stefano, Lisa (1)de Vrij, Femke (1)Deacon, Robert (2)Dempsey, Graham (1)Deng, James (1)Deng, Pan-Yue (1)Denman, Robert (2)Di Marino, Daniele (1)Dierssen, Mara (2)Dijck, Anke Van (2)Dionne, Olivier (1)Disney, Matthew (1)Dobkin, Carl (1)Dockendorff, Thomas (1)Doering, Laurie (1)Dumontier, Dimitri (1)Dunaevsky, Anna (1)Dykens, Elisabeth (1)El Idrissi, Abdeslem (1)El-Osta, Assam (1)Erickson, Craig (13)Ethell, Iryna (6)Fallon, Justin (2)Feng, Jia (1)Feng, Yue (1)Fink, James (1)Finucane, Brenda (1)Francesconi, Anna (1)Frick, Andreas (2)Galera-López, Lorena (1)Gan, Wen-Biao (2)Gantois, Ilse (2)Gao, Fen-Biao (1)Gao, Pan (1)Garkun, Yury (1)Gatto, Cheryl (1)Gelfand, Vladimir (1)Geoffroy, Andrea (1)Germain, Noelle (1)Giangrande, Angela (1)Gibson, Jay (2)Goncalves, Tiago (1)Greenough, William (1)Grokoski, Kamila Castro (1)Gross, Christina (2)Guiotto, Annamaria (1)Gurney, Mark (2)Gutierrez, Alejandra (1)Ha, Seong Eon (1)Haenfler, Jill (1)Hagerman, Paul (1)Hagerman, Randi (2)Haggarty, Stephen (1)Hassan, Bassem (1)He, Qionger (2)Heaney, Chelcie (1)Hessl, David (1)Higashimori, Haruki (1)Hogan, Carolyn Ann (1)Holley, Andrew (1)Hoogeveen, Andre (1)Huber, Kimberly (8)Huganier, Richard (1)Huntsman, Molly (2)Ingolia, Nicholas (1)Jaffrey, Samie (3)Jiang, Yong-Hui (1)Jin, Peng (5)Johnson-Glenberg, Mina (1)Johnston, Daniel (2)Jonak, Carrie (1)Jonas, Elizabeth (3)Jongens, Tom (4)Jope, Richard (1)Joyce, Karen (1)Kaczmarek, Leonard (7)Kandel, Eric (1)Kanellpoulos, Alexandros (1)Kang, Seo-Jun (1)Kang, Yunhee (2)Kaufmann, Walter (1)Khandjian, Edouard (1)Kim, Hwan (1)Kim, J. Wren (1)Kind, Peter (2)Kindler, Stephan (1)King, Margaret (2)Klann, Eric (2)Klug, Achim (1)Klyachko, Vitaly (4)Koeglsperger, Thomas (1)Kooy, Frank (8)Kosti, Adam (1)Kourdougli Nazim (1)Kreienkamp, Hans-Jurgen (1)Krzisch Marine Anais (1)Kumar, Vikas (1)Kumar, Vipendra (1)Kumari, Daman (1)Kurosaki, Tatsuaki (3)Larson, John (1)Lauder, Jean (1)Lauterborn, Julie (1)LeDoux, Joseph (1)Lee, Hungoo (2)Lee, Hye Young (1)Lee, Jeannie (10)Lepage, Jean-Francois (2)Levy, Richard (1)Li, Wenqi (1)Li, Xuekun (1)Licznerski, Pawel (1)Lieberman, David (1)Lombroso, Paul (1)Lovelace, Jonny (2)Mack, Kenneth (1)Malter, James (1)Mandel, Jean-Louis (1)Mansvelder, Huibert (1)Manzoni, Olivier (1)Maquat, Lynne (5)Marro, Samuele (1)Marsillo, Alexandra (1)Martin, Stéphane (1)Martire, Alberto (4)Mato Santos, Susana (1)Maurin, Thomas (3)McBride, Sean (4)McCamphill, Patrick (3)McCullagh, Elizabeth (1)McDougle, Christopher (1)McKenna, Mary (1)Meffert, Mollie (1)Men, Yuqin (1)Mihailescu, Mihaela (1)Moine, Herve (3)Morishita, Hirofumi (1)Morris, David (1)Moses, Kevin (1)Mourrain, Philippe Jacques (2)Moy, Sheryl (1)Muddashetty, Ravi (1)Murgia, Alessandra (1)Nelson, Charles A. (3)Nelson, David (3)Neri, Giovanni (3)Njem, Nadine (1)O'Malley, Karen (1)O’Donnell, Cian (1)Oh, Ji-eun (2)Oliviera Laura (1)Oostra, Ben (2)Osterweil, Emily (5)Ozaita, Andres (2)Paribello, Carlo (1)Paylor, Richard (1)Pedapati, Ernest (2)Pepper, Anita (1)Pichon, Jacques (3)Pirbhoy, Patricia (3)Portera-Cailliau, Carlos (2)Pouchelon, Gabrielle (1)Pouladi, Mahmoud (2)Pronot, Marie (1)Protic, Dragana (1)Raab-Graham, Kimberly (1)Rattazzi, Mario (1)Razak, Khaleel (7)Regan, Lynne (1)Reis, Surya (1)Renwick, Neil (1)Reynolds, Kathryn (1)Richards, Robert (1)Richter, Joel (10)Romagnoli, Alice (1)Rotman, Ziv (1)Ruppert, Kathryn (1)Saraf, Tanishka (1)Sawacha, Zimi (1)Schaefer, Tori (1)Schmitt, Lauren (1)Scott, Angela (1)Segal, Menahem (1)Sejnowski, Terrence (1)Senter, Rebecca (2)Shah, Sneha (8)Shen, Minjie (1)Siegel, Jennifer (1)Silva, Alcino (1)Simpson, Sara Kornfeld (1)Siomi, Haruhiko (1)Siomi, Mikko (1)Sirois, Carissa (1)Skoulakis, Efthimios (1)Smith, Carolyn B. (4)Smith, Elizabeth (1)Smith, Laura N. (1)Smith, Stephen E.P. (1)Soderling, Scott (1)Sonenberg, Nahum (6)Spolaor, Fabiola (1)Stackhouse, Tracy (1)Stamenkovic, Vera (1)Stanfield, Andrew (1)Steward, Oswald (2)Svendsen, Clive (1)Svoboda, Karel (2)Tang, Weiping (1)Tartaglia, Nicole (1)Tartakoff, Alan (1)Tejada-Simons, MariVi (1)Tempio, Alessandra (1)Thacker, Jonathan (1)Tiedge, Henri (1)Todd, Peter (9)Tonegawa, Susumu (1)Toth, Miklos (2)Tremblay, Marie-Eve (1)Tsai, Nien-Pei (1)Tsai, Yuan-Chen (1)Turner, Raymond (3)Tuschl, Thomas (1)Usdin, Karen (1)Utami, Kagistia (1)van der Lei, Mathijs (3)Vanderklish, Peter (8)Wang, Gordon (2)Wang, Hongbing (1)Warren, Stephen (2)Watanabe, Momoko (1)Weiler, Ivan Jeanne (1)Weisz, Eliana D. (1)Wen, Zhexing (4)Wernig, Marius (1)Westmark, Cara (5)Whitehead, Kathryn (1)Wilhelm, Michael (1)Wilkinson, Carol (5)Willemsen, Rob (1)Williams, Leena E. (1)Winograd, Claudia (1)Wong, Robert (1)Worley, Paul (1)Wright, Damien (1)Xu, Jie (1)Xu, Zhiyan (1)Yalan, Zhang (1)Yang, Wang-Yong (1)Yang, Yongjie (2)Yerneni, Saigopalakrishna (1)Yin, Jerry (1)Yrigollen, Carolyn (1)Yuskaitis, Christopher (1)Zang, Tong (1)Zhan, Xiaoqin (3)Zhao, Xinyu (7)Zhong, Jun (1)Zhu, Julius (2)Zoupi, Lida (1)Zukin, Suzanne (2)
Select Research TypeBiomarkers (32)Clinical (26)Curative Therapies (23)Disease Mechanisms (145)Drug Repurposing (26)Resources (4)Treatment Targets (145)
Select OrganizationAgency for Science, Technology and Research (A*STAR) (1)Albert Einstein College of Medicine (3)Baylor College of Medicine (3)Boston Children's Hospital (2)Brown University (2)Carnegie Mellon University (1)Case Western Reserve University (1)Centre for Genomic Regulation (1)Children's Hospital of Philadelphia (CHOP) (1)Children's National Medical Center (1)Chinese Academy of Science (1)Cincinnati Children's Hospital (6)CNR - Institute of Neuroscience (1)CNRS Bordeaux (1)CNRS Valbonne (1)Cold Spring Harbor Laboratory (5)College of Staten Island (1)Columbia University (2)Cornell University (6)Drexel University (1)Duke University (1)Duquesne University (1)Emory University (8)Erasmus University Rotterdam (4)Flanders University (1)FLENI Foundation (1)Geisinger Health System (1)Harvard University (6)Icahn School of Medicine at Mount Sinai (1)IGBMC. France (1)INSERM Valbonne, France (2)Institut de Pharmacologie Moléculaire et Cellulaire (1)Institute of Cellular and Developmental Biology (1)ISERM Marseille, France (1)Italian National Institute of Health (2)John Hopkins University (2)Laval University, Quebec (1)Ludwig Maximilian University Medical School (1)Massachusetts General Hospital (3)Massachusetts Institute of Technology (MIT) (11)Mayo Clinic (1)McGill University (5)Mclean Hospital (1)McMaster University, Canada (1)Mercer University (3)Michigan State University (1)National Center for Biological Sciences (1)National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) (1)National Institute of Mental Health (2)Neurocentre Magendie, France (2)New York State Institute for Basic Research (5)New York University (4)Northwestern University (4)Peter MacCallum Cancer Institute, Australia (1)Polytechnic University of Marche (1)Quiver Bioscience (1)Rockefeller University (2)Rowan University (2)Rush University Medical Center (8)Salk Institute (2)Scripps Research Institute (4)Seattle Children’s Research Institute (1)Special Hospital for Cerebral Palsy and Developmental Neurology, Serbia (1)Stanford University (4)State University of New York (2)Surrey Place Centre Toronto (1)Tokushima University, Japan (1)Tufts University School of Medicine (2)Universita Cattolica del S Cuore (3)Universita di Catania, Italy (1)Universite Louis Pasteur (1)University of Adelaide, Australia (1)University of Amsterdam, Netherlands (1)University of Antwerp, Belgium (6)University of British Columbia (1)University of Calgary, Canada (3)University of California at Berkeley (1)University of California at Davis (3)University of California at Los Angeles (3)University of California at Riverside (9)University of California at San Francisco (1)University of California, Irvine (3)University of Chile (3)University of Colorado (4)University of Edinburgh, Scotland (4)University of Florida (1)University of Hamburg, Germany (1)University of Helsinki Finland (1)University of Houston (1)University of Illinois at Urbana-Champaign (4)University of Illinois Chicago (1)University of Indiana (1)University of Leeds (1)University of Maryland (2)University of Massachusetts (6)University of Miami (1)University of Michigan (3)University of Nebraska Medical Center (1)University of North Carolina (4)University of Orleans, France (1)University of Oxford (1)University of Padua (1)University of Pennsylvania (2)University of Rochester (3)University of Sherbrooke, Canada (5)University of Strasbourg, France (1)University of Tennessee (1)University of Texas at Austin (2)University of Texas at San Antonio (1)University of Texas at Southwestern (7)University of Victoria (2)University of Virginia (1)University of Washington (2)University of Wisconsin (14)University Pompeu Fabra (2)Vanderbilt University (1)VIB, Leuven, Belgium (1)Wake Forest School of Medicine (1)Washington University (2)Weizmann Institute, Germany (1)Yale University (9)
