Together we raised $760K and earned a $600K match from the Sunshine Lady Foundation, fueling hope for Fragile X treatments and a cure!
Over 50 #FriendsofFRAXA volunteers sold $34,938 in 50/50 raffle tickets at the Bruins game—raising $17,469 for Fragile X research!
After 20 years, FRAXA co-founder Kathy May returns, saying, “There will be a cure. FRAXA is the reason for this hope.”
Did you know? National Fragile X Awareness Day began in 2000, thanks to FRAXA and advocate David Busby’s work in Washington, DC.
Rolling Stone’s Paul Solotaroff shares his son Luke’s Fragile X journey, exploring what adulthood looks like for families like ours.
FRAXA welcomed intern Emily Fluet from the University of St. Andrews, who transformed our Fragile X A–Z and Medication Guide into online resources!
The Bruins Foundation pledged $90K to FRAXA, funding new Fragile X research at Gateway Farm in Merrimac, MA.
Two WPI student teams are working with FRAXA to improve our website and create a mobile app as part of their Interactive Qualifying Project.
FXTAS affects many in our Fragile X community. Research aims to uncover its cause and guide more effective treatments.
At FRAXA’s 11th Annual Fall X Ball, Elizabeth Higgins Clark spoke with humor and heart about her brother David, who has Fragile X.
In honor of Makenzie, diagnosed with Fragile X at 16 months, our family crafts and sells handmade items to support FRAXA research
Darren’s story reminds us how loved he was and how fragile life can be. His father’s memoir honors his life and raises Fragile X awareness.
We’re deeply grateful to Doris Buffett and her Sunshine Lady Foundation for donating over $3M to FRAXA and inspiring Fragile X families.
Researchers met in Southbridge, MA, to advance Fragile X treatments. Congrats to Drs. Bear, Osterweil & Berry-Kravis on their awards!
Doris Buffett’s $500K challenge inspired over 2,600 donors to raise $3.5M+ for Fragile X research—a true grassroots success!
Categories
FRAXA Funded Research
Current Research Grants (38)
Select Grant Year2025 Grants (20)2024 Grants (34)2023 Grants (35)2022 Grants (32)2021 Grants (24)2020 Grants (20)2019 Grants (24)2018 Grants (29)2017 Grants (26)2016 Grants (25)2015 Grants (19)2014 Grants (16)2013 Grants (26)2012 Grants (30)2011 Grants (27)2006-2010 Grants (80)2001-2005 Grants (58)1994-2000 Grants (28)
Select ResearcherAbolghasemi, Armita (1)Albeck, David (1)Alger, Bradley (1)Allada, Ravi (1)Allen, Nicola (1)Annear, Dale (2)Bacigalupo, Juan (1)Bagni, Claudia (3)Bailey, Don (2)Banerjee, Probal (1)Banke, Tue (2)Bardoni, Barbara (6)Barnes, Stephanie (3)Bassell, Gary (3)Bauchwitz, Robert (1)Bear, Mark (16)Beasley, Lindsay (1)Bergdolt, Lara (1)Berry-Kravis, Elizabeth (17)Bettio, Luis (1)Bhakar, Asha (1)Bhattacharya, Aditi (2)Bhattacharyya, Anita (5)Bilousova, Tina (1)Binder, Devin (4)Bloom, David (1)Borreca, Antonella (4)Bosch, Miquel (1)Boussadia, Zaira (2)Brager, Darrin (1)Braun, Katarina (1)Brenman, Jay (1)Brennan, Francis (1)Briault, Sylvain (4)Broadie, Kendal (1)Brown, W Ted (1)Budylin, Tatyana (1)Caku, Artuela (2)Canal, Clinton E. (4)Carthew, Richard (1)Carullo, Paulina (2)Castren, Maija (1)Cea-Del Rio, Christian (1)Ceman, Stephanie (1)Chattarji, Sumantra (3)Chen, Chloe (2)Cheng, Ning (1)Choi, Catherine (3)Christie, Brian (2)Ciranna, Lucia (1)Cline, Holly (1)Cogram, Patricia (8)Contractor, Anis (2)Corbin, Francois (3)Corbin, Joshua (1)Coulson, Rochelle (2)Cowan, Christopher (1)Cowan, Justin (1)Cox, Charles (1)Crnic, Linda (1)Croom, Katilynne (1)Darnell, Jennifer (1)Darnell, Robert (1)Davidovic, Laetitia (1)Davidson, Beverly (1)de la Torre, Rafael (2)De Stefano, Lisa (1)de Vrij, Femke (1)Deacon, Robert (2)Dempsey, Graham (1)Deng, James (1)Deng, Pan-Yue (1)Denman, Robert (2)Di Marino, Daniele (1)Dierssen, Mara (2)Dijck, Anke Van (2)Dionne, Olivier (1)Disney, Matthew (1)Dobkin, Carl (1)Dockendorff, Thomas (1)Doering, Laurie (1)Dumontier, Dimitri (1)Dunaevsky, Anna (1)Dykens, Elisabeth (1)El Idrissi, Abdeslem (1)El-Osta, Assam (1)Erickson, Craig (13)Ethell, Iryna (6)Fallon, Justin (2)Feng, Jia (1)Feng, Yue (1)Fink, James (1)Finucane, Brenda (1)Francesconi, Anna (1)Frick, Andreas (2)Galera-López, Lorena (1)Gan, Wen-Biao (2)Gantois, Ilse (2)Gao, Fen-Biao (1)Gao, Pan (1)Garkun, Yury (1)Gatto, Cheryl (1)Gelfand, Vladimir (1)Geoffroy, Andrea (1)Germain, Noelle (1)Giangrande, Angela (1)Gibson, Jay (2)Goncalves, Tiago (1)Greenough, William (1)Grokoski, Kamila Castro (1)Gross, Christina (2)Guiotto, Annamaria (1)Gurney, Mark (2)Gutierrez, Alejandra (1)Ha, Seong Eon (1)Haenfler, Jill (1)Hagerman, Paul (1)Hagerman, Randi (2)Haggarty, Stephen (1)Hassan, Bassem (1)He, Qionger (2)Heaney, Chelcie (1)Hessl, David (1)Higashimori, Haruki (1)Hogan, Carolyn Ann (1)Holley, Andrew (1)Hoogeveen, Andre (1)Huber, Kimberly (8)Huganier, Richard (1)Huntsman, Molly (2)Ingolia, Nicholas (1)Jaffrey, Samie (3)Jiang, Yong-Hui (1)Jin, Peng (5)Johnson-Glenberg, Mina (1)Johnston, Daniel (2)Jonak, Carrie (1)Jonas, Elizabeth (3)Jongens, Tom (4)Jope, Richard (1)Joyce, Karen (1)Kaczmarek, Leonard (7)Kandel, Eric (1)Kanellpoulos, Alexandros (1)Kang, Seo-Jun (1)Kang, Yunhee (2)Kaufmann, Walter (1)Khandjian, Edouard (1)Kim, Hwan (1)Kim, J. Wren (1)Kind, Peter (2)Kindler, Stephan (1)King, Margaret (2)Klann, Eric (2)Klug, Achim (1)Klyachko, Vitaly (4)Koeglsperger, Thomas (1)Kooy, Frank (8)Kosti, Adam (1)Kourdougli Nazim (1)Kreienkamp, Hans-Jurgen (1)Krzisch Marine Anais (1)Kumar, Vikas (1)Kumar, Vipendra (1)Kumari, Daman (1)Kurosaki, Tatsuaki (3)Larson, John (1)Lauder, Jean (1)Lauterborn, Julie (1)LeDoux, Joseph (1)Lee, Hungoo (2)Lee, Hye Young (1)Lee, Jeannie (10)Lepage, Jean-Francois (2)Levy, Richard (1)Li, Wenqi (1)Li, Xuekun (1)Licznerski, Pawel (1)Lieberman, David (1)Lombroso, Paul (1)Lovelace, Jonny (2)Mack, Kenneth (1)Malter, James (1)Mandel, Jean-Louis (1)Mansvelder, Huibert (1)Manzoni, Olivier (1)Maquat, Lynne (5)Marro, Samuele (1)Marsillo, Alexandra (1)Martin, Stéphane (1)Martire, Alberto (4)Mato Santos, Susana (1)Maurin, Thomas (3)McBride, Sean (4)McCamphill, Patrick (3)McCullagh, Elizabeth (1)McDougle, Christopher (1)McKenna, Mary (1)Meffert, Mollie (1)Men, Yuqin (1)Mihailescu, Mihaela (1)Moine, Herve (3)Morishita, Hirofumi (1)Morris, David (1)Moses, Kevin (1)Mourrain, Philippe Jacques (2)Moy, Sheryl (1)Muddashetty, Ravi (1)Murgia, Alessandra (1)Nelson, Charles A. (3)Nelson, David (3)Neri, Giovanni (3)Njem, Nadine (1)O'Malley, Karen (1)O’Donnell, Cian (1)Oh, Ji-eun (2)Oliviera Laura (1)Oostra, Ben (2)Osterweil, Emily (5)Ozaita, Andres (2)Paribello, Carlo (1)Paylor, Richard (1)Pedapati, Ernest (2)Pepper, Anita (1)Pichon, Jacques (3)Pirbhoy, Patricia (3)Portera-Cailliau, Carlos (2)Pouchelon, Gabrielle (1)Pouladi, Mahmoud (2)Pronot, Marie (1)Protic, Dragana (1)Raab-Graham, Kimberly (1)Rattazzi, Mario (1)Razak, Khaleel (7)Regan, Lynne (1)Reis, Surya (1)Renwick, Neil (1)Reynolds, Kathryn (1)Richards, Robert (1)Richter, Joel (10)Romagnoli, Alice (1)Rotman, Ziv (1)Ruppert, Kathryn (1)Saraf, Tanishka (1)Sawacha, Zimi (1)Schaefer, Tori (1)Schmitt, Lauren (1)Scott, Angela (1)Segal, Menahem (1)Sejnowski, Terrence (1)Senter, Rebecca (2)Shah, Sneha (8)Shen, Minjie (1)Siegel, Jennifer (1)Silva, Alcino (1)Simpson, Sara Kornfeld (1)Siomi, Haruhiko (1)Siomi, Mikko (1)Sirois, Carissa (1)Skoulakis, Efthimios (1)Smith, Carolyn B. (4)Smith, Elizabeth (1)Smith, Laura N. (1)Smith, Stephen E.P. (1)Soderling, Scott (1)Sonenberg, Nahum (6)Spolaor, Fabiola (1)Stackhouse, Tracy (1)Stamenkovic, Vera (1)Stanfield, Andrew (1)Steward, Oswald (2)Svendsen, Clive (1)Svoboda, Karel (2)Tang, Weiping (1)Tartaglia, Nicole (1)Tartakoff, Alan (1)Tejada-Simons, MariVi (1)Tempio, Alessandra (1)Thacker, Jonathan (1)Tiedge, Henri (1)Todd, Peter (9)Tonegawa, Susumu (1)Toth, Miklos (2)Tremblay, Marie-Eve (1)Tsai, Nien-Pei (1)Tsai, Yuan-Chen (1)Turner, Raymond (3)Tuschl, Thomas (1)Usdin, Karen (1)Utami, Kagistia (1)van der Lei, Mathijs (3)Vanderklish, Peter (8)Wang, Gordon (2)Wang, Hongbing (1)Warren, Stephen (2)Watanabe, Momoko (1)Weiler, Ivan Jeanne (1)Weisz, Eliana D. (1)Wen, Zhexing (4)Wernig, Marius (1)Westmark, Cara (5)Whitehead, Kathryn (1)Wilhelm, Michael (1)Wilkinson, Carol (5)Willemsen, Rob (1)Williams, Leena E. (1)Winograd, Claudia (1)Wong, Robert (1)Worley, Paul (1)Wright, Damien (1)Xu, Jie (1)Xu, Zhiyan (1)Yalan, Zhang (1)Yang, Wang-Yong (1)Yang, Yongjie (2)Yerneni, Saigopalakrishna (1)Yin, Jerry (1)Yrigollen, Carolyn (1)Yuskaitis, Christopher (1)Zang, Tong (1)Zhan, Xiaoqin (3)Zhao, Xinyu (7)Zhong, Jun (1)Zhu, Julius (2)Zoupi, Lida (1)Zukin, Suzanne (2)
Select Research TypeBiomarkers (32)Clinical (26)Curative Therapies (23)Disease Mechanisms (145)Drug Repurposing (26)Resources (4)Treatment Targets (145)
Select OrganizationAgency for Science, Technology and Research (A*STAR) (1)Albert Einstein College of Medicine (3)Baylor College of Medicine (3)Boston Children's Hospital (2)Brown University (2)Carnegie Mellon University (1)Case Western Reserve University (1)Centre for Genomic Regulation (1)Children's Hospital of Philadelphia (CHOP) (1)Children's National Medical Center (1)Chinese Academy of Science (1)Cincinnati Children's Hospital (6)CNR - Institute of Neuroscience (1)CNRS Bordeaux (1)CNRS Valbonne (1)Cold Spring Harbor Laboratory (5)College of Staten Island (1)Columbia University (2)Cornell University (6)Drexel University (1)Duke University (1)Duquesne University (1)Emory University (8)Erasmus University Rotterdam (4)Flanders University (1)FLENI Foundation (1)Geisinger Health System (1)Harvard University (6)Icahn School of Medicine at Mount Sinai (1)IGBMC. France (1)INSERM Valbonne, France (2)Institut de Pharmacologie Moléculaire et Cellulaire (1)Institute of Cellular and Developmental Biology (1)ISERM Marseille, France (1)Italian National Institute of Health (2)John Hopkins University (2)Laval University, Quebec (1)Ludwig Maximilian University Medical School (1)Massachusetts General Hospital (3)Massachusetts Institute of Technology (MIT) (11)Mayo Clinic (1)McGill University (5)Mclean Hospital (1)McMaster University, Canada (1)Mercer University (3)Michigan State University (1)National Center for Biological Sciences (1)National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) (1)National Institute of Mental Health (2)Neurocentre Magendie, France (2)New York State Institute for Basic Research (5)New York University (4)Northwestern University (4)Peter MacCallum Cancer Institute, Australia (1)Polytechnic University of Marche (1)Quiver Bioscience (1)Rockefeller University (2)Rowan University (2)Rush University Medical Center (8)Salk Institute (2)Scripps Research Institute (4)Seattle Children’s Research Institute (1)Special Hospital for Cerebral Palsy and Developmental Neurology, Serbia (1)Stanford University (4)State University of New York (2)Surrey Place Centre Toronto (1)Tokushima University, Japan (1)Tufts University School of Medicine (2)Universita Cattolica del S Cuore (3)Universita di Catania, Italy (1)Universite Louis Pasteur (1)University of Adelaide, Australia (1)University of Amsterdam, Netherlands (1)University of Antwerp, Belgium (6)University of British Columbia (1)University of Calgary, Canada (3)University of California at Berkeley (1)University of California at Davis (3)University of California at Los Angeles (3)University of California at Riverside (9)University of California at San Francisco (1)University of California, Irvine (3)University of Chile (3)University of Colorado (4)University of Edinburgh, Scotland (4)University of Florida (1)University of Hamburg, Germany (1)University of Helsinki Finland (1)University of Houston (1)University of Illinois at Urbana-Champaign (4)University of Illinois Chicago (1)University of Indiana (1)University of Leeds (1)University of Maryland (2)University of Massachusetts (6)University of Miami (1)University of Michigan (3)University of Nebraska Medical Center (1)University of North Carolina (4)University of Orleans, France (1)University of Oxford (1)University of Padua (1)University of Pennsylvania (2)University of Rochester (3)University of Sherbrooke, Canada (5)University of Strasbourg, France (1)University of Tennessee (1)University of Texas at Austin (2)University of Texas at San Antonio (1)University of Texas at Southwestern (7)University of Victoria (2)University of Virginia (1)University of Washington (2)University of Wisconsin (14)University Pompeu Fabra (2)Vanderbilt University (1)VIB, Leuven, Belgium (1)Wake Forest School of Medicine (1)Washington University (2)Weizmann Institute, Germany (1)Yale University (9)
