Darren’s Smile – This is a very difficult post to write because it is about a son, Darren, who has passed away. Darren’s dad has written a memoir – a beautiful tribute to his son.
Darren had Fragile X syndrome. He lived a rich life and was very much loved. Sadly he died because of a choking incident at the group home where he lived.
There’s not much written about the risk of choking for people who have Fragile X, but I do wonder if it is a particular risk that we should remember.
Read Darren’s Smile at http://fraxa.org/pdf/Darren.pdf