World Fragile X Day Archives

GEXVal Completes FRAXA-DVI, Receives FDA Orphan Drug Designation, and Prepares for Phase 2a Trial

February 28, 2026

Orphan Drug Designation positions GXV-001 for next steps after FRAXA-DVI completion as GEXVal prepares a Phase 2a Fragile X trial in Europe.

Together for a Brighter Future: Celebrating the 5th World Fragile X Day

April 17, 2025

Celebrate the 5th World Fragile X Day on July 22! Landmarks worldwide will shine teal to raise awareness and support Fragile X families.

World Fragile X Day 2024: A Global Celebration of Awareness and Research Progress

August 12, 2024

Recap of World Fragile X Day 2024, a global event spearheaded by FRAXA. Explore beautiful photos of landmark illuminations around the world.

Understanding Anxiety in Fragile X: Insights from Dr. Carrie Buchanan’s Webinar

August 1, 2024

Dr. Carrie Buchanan shares strategies to manage anxiety in individuals with Fragile X syndrome, including non-pharmacological treatments and medication options.

Celebrate World Fragile X Day: July 22, 2024 – Global Landmarks Light Up

May 29, 2024

Celebrate World Fragile X Day on July 22, 2024 by lighting up landmarks. Join us in honoring Fragile X research and supporting affected families worldwide.

10 Year Vision for Fragile X Research – Dr. Elizabeth Berry-Kravis & Dr. Patricia Cogram

December 22, 2022

FRAXA Investigators Dr. Patricia Cogram and Dr. Elizabeth Berry-Kravis reflect on progress that has been made and visualize what they see happening in the next 10 years for people living with Fragile X syndrome.

World Fragile X Day Is Lighting the Way for Fragile X Research

August 8, 2022

On July 22, 383 landmarks worldwide lit up for World Fragile X Day—shining bright to raise awareness and celebrate research progress.

Potential Upcoming Advances in Fragile X Research

February 3, 2022

Dr. Peter Kind and Dr. Nahum Sonenberg share their optimism about the next 10 years of Fragile X research. They discuss where they think the next big discoveries will emerge.

10 Year Vision for Collaborations That Transform Fragile X and Autism Research

December 20, 2021

FRAXA’s Dr. Mike Tranfaglia talks with Autism Science Foundation’s Allison Singer about collaborations between the Fragile X community and other disability organizations as we look to the next 10 years.

20 Years of Advancing Fragile X Research: Progress Toward a Cure

September 13, 2021

MIT Professor Mark Bear traces the discoveries that give us great optimism of finding effective treatments and ultimately a cure for Fragile X syndrome.

Tetra’s Fragile X Clinical Trial – The Most Successful So Far

September 7, 2021

Dr. Mark Gurney of Tetra Therapeutics, discusses how one of the earliest clues to the biology of Fragile X led to the most successful Fragile X clinical trial to date: a phase 2 trial of a PDE4D inhibitor.

Raising Awareness and Funds for Fragile X Research at Barre3

August 23, 2021

“A fun and sweaty way to unite the community!” FRAXA thanks Katie Bolin and Barre3’s Katie Heaps for supporting Fragile X awareness.

Fragile X Syndrome: In Pursuit of a Cure Webinar

July 29, 2021

Global webinar “Fragile X Syndrome: In Pursuit of a Cure” on July 22, 2021 commemorated World Fragile X Day. Over 5,000 registered from more than 50 countries.

2021 FRAXA Awards – Recognizing Perseverance and Dedication

July 22, 2021

In conjunction with World Fragile X Day 2021, FRAXA Research Foundation recognizes its annual award recipients. We are fortunate to partner with these individuals for Fragile X families.