Boston Bruins Foundation Archives • Fragile X Research

Charity Golf Tournament on Memorial Day Weekend Helps Fund Fragile X Research

FRAXA Research Foundation Events Recap June 29, 2022Boston Bruins Foundation

Brothers Pete and Dave Hall hosted their 33rd Annual Charity Golf Tournament on Memorial Day weekend. For the fifteenth consecutive year the money raised from this long-standing event has gone to FRAXA. This year’s total of over $28,000 pushes the 15 year total to over $262,000!

Bruins 50/50 Benefits Fragile X Research

FRAXA Research Foundation Events Recap November 9, 2021Boston Bruins Foundation

As the Bruins took to the ice to score a big win over the Detroit Red Wings, FRAXA volunteers took to the concourse selling 50/50 tickets to fans. This incredible opportunity, made possible by the Boston Bruins Foundation, raised a grand total of $28,040 which was split between FRAXA and one lucky winner!

Boston Bruins Fans and Volunteers raise $18,500 for Fragile X Research

FRAXA Research Foundation Events Recap December 18, 2019Boston Bruins Foundation

For the 5th year in row, the Bruins Foundation chose FRAXA as a beneficiary of their 50/50 raffle to benefit a lucky charity. This year’s game was held on November 23, 2019 against the Minnesota Wild. Not only were the Bruins able to take home a win, but FRAXA received half of a whopping $37,000 raised that night!

$17,469 Raised by Friends of FRAXA Volunteers at Bruins Game

FRAXA Research Foundation Community • Events Recap December 5, 2017November 22, 2021Boston Bruins Foundation

Over 50 #FriendsofFRAXA showed up on the the day after Thanksgiving, November 24, at the Bruins game against the Pittsburgh Penguins to sell 50/50 raffle tickets. Our amazing volunteers sold $34,938 in tickets resulting in $17,469 donated to FRAXA research. This was the highest amount the Bruins sold this year in raffle tickets!

$75,000 Raised for Fragile X Research by Friends of FRAXA at our Fall Fling

FRAXA Research Foundation Events Recap • Lee, Jeannie September 15, 2017February 21, 2018autism, Boston Bruins Foundation, Fulcrum Therapeutics, Ovid Therapeutics, Q-State Biosciences

On Thursday, September 7 over 150 friends of FRAXA joined us at the Smith Barn at the Peabody Historical Society for the second annual FRAXA Fall Fling. Together we raised over $75,000 for Fragile X research — including a hand-delivered check for $25,000! Families from as far away as Miami, Florida joined us, even with hurricane Irma approaching their home state. Unfortunately, Irma ambushed Weather Channel Storm Tracker and Fragile X parent, Jim Cantore.

TD Bank invites Friends of FRAXA to Watch the Bruins

FRAXA Research Foundation Events Recap April 14, 2017June 18, 2018Boston Bruins Foundation

Fifty friends of FRAXA enjoyed an amazing night at the TD Garden in Boston on March 30. They gathered to watch the Boston Bruins take on the Dallas Stars. It was a great opportunity for us to unite the greater Boston Fragile X community. We were able to convene and thank some of our local families and introduce them to university and biotech scientists who are working to find a cure for Fragile X. The night was made available by a generous donation of the Garden View Room by TD Bank.

Repurposing Drugs to Dampen Hyperactive Nonsense-Mediated Decay in Fragile X Syndrome

FRAXA Research Foundation 2015 Grants • 2016 Grants • Disease Mechanisms • Drug Repurposing • Kurosaki, Tatsuaki • Maquat, Lynne • Research Grant Results • Treatment Targets • University of Rochester September 8, 2016February 11, 2021Boston Bruins Foundation, mRNAs, NIH, Roche

With a $90,000 grant from the FRAXA Research Foundation, Dr. Lynne Maquat and Dr. Tatsuaki Kurosaki will investigate nonsense-mediated mRNA decay (NMD) in Fragile X. NMD is a “housekeeping” process that cells use to prevent faulty proteins from being made. But there is too much of it in Fragile X syndrome. There are already available drugs that suppress NMD – including caffeine.

Boston Bruins Grant Funds New Fragile X Research

FRAXA Research Foundation Community May 28, 2015November 22, 2021autism, Boston Bruins Foundation, drug repurposing, mRNAs, Roche

Bruins Foundation Executive Director Bob Sweeney pledging a $90,000 donation to FRAXA Research today at Shared Living Collaborative’s Gateway Farm in Merrimac, MA. The award will enable the organization to fund an entirely new research project aimed at developing new treatments for Fragile X, a genetic syndrome that is the most common inherited cause of autism.