Fifty friends of FRAXA enjoyed an amazing night at the TD Garden in Boston on March 30. They gathered to watch the Boston Bruins take on the Dallas Stars. It was a great opportunity for us to unite the greater Boston fragile X community. We were able to convene and thank some of our local families and introduce them to university and biotech scientists who are working to find a cure for fragile X.
The night was made available by a generous donation of the Garden View Room by TD Bank.
Many children with fragile X were able to join in, including Preston who enjoyed the special treat of riding the Zamboni around the ice after the second period!
Another happy participant was Eric, whose mom, Clare, wrote:
Seeing a game with my husband and son at the Garden was priceless. Eric was able to get up and walk around the box and so many SMILES were sent his way! I looked at other parents looking at him as he did some of his hand flaps and awkward body movements, and their soft smiles let me know we were in a safe place to enjoy a magical evening.
Although Eric didn’t interact with the other children with fragile X there, we made a point of showing him others who share his diagnosis. That’s powerful stuff!!
A big Thank You from us to TD Bank and the Bruins and especially player Frank Vatrano. Eric was too anxious to go up to greet him but Frank’s signed hockey stick is currently in his bed next to his pillow! We will cheer for him extra hard when we see him on the ice.
All of us at FRAXA are grateful to TD Bank and the Boston Bruins for making this a very special night. Thank you also to Bob Sweeney, President of the Boston Bruins Foundation, for stopping by and for your ongoing support.