Katie Clapp

Kicking Off Our 2024 Giving Season With Gratitude and Hope

November 14, 2024

FRAXA’s 2024 Annual Appeal begins with a $100K gift from the Berg and Schatz families, funding new Fragile X research teams and advancing a cure.

Fragile X Syndrome and Cancer Research: Unexpected Links and Opportunities for Collaboration

April 11, 2023

Discover unexpected links between Fragile X Syndrome and cancer. Studies show people with Fragile X have much lower cancer rates. Explore new opportunities for collaboration in this promising research.

A Note of Thanks and Hope on This Giving Tuesday

November 29, 2022

Fragile X research matters. Each discovery brings us closer to treatments for autism and other brain disorders. Thanks to you, we have hope.

Centers for Collaborative Research in Fragile X Receive $25 Million Over Next 5 Years

October 6, 2020

NIH announced $25 million to fund three new Centers for Collaborative Research in Fragile X, supported by NICHD, NIMH, and NINDS.

Dan Vershbow, Mary Higgins Clark, Michael Tranfaglia, Katie Clapp

A Tribute to Mary Higgins Clark

February 5, 2020

Mary Higgins Clark, beloved author and Fragile X advocate, passed at 92. Her $1M gift in 1997 helped put FRAXA on the map for research.

President Clinton celebrating Children's Health Act

Federal Funding for Fragile X Research Faces Snags

February 21, 2019

Federal support for Fragile X research is declining. NIH and the Department of Defense are reducing investment, making advocacy more important than ever.

#GivingTuesday 2018 – Thanks to you!

November 30, 2018

You did it! The Fragile X community raised over $50K on #GivingTuesday—matched by our Board! Thank you for fueling our annual appeal.

Can CRISPR Cure Fragile X Syndrome?

February 28, 2018

CRISPR/Cas9 was used by MIT researchers to remove the molecular tags that keep the mutant gene shut off in Fragile X syndrome neurons and resulted in some of them producing protein normally. Much work is being done right now, with exciting new discoveries coming at a fast and furious pace.

FRAXA funds 1 million in Fragile X research

Fragile X Cure One Step Closer with FRAXA Support of $1 Million in New Research

April 26, 2016

4 Countries – 10 Teams – $1 Million for finding new treatment targets, to pinpointing outcome measures for future clinical trials, to attempting to reactivate the gene which is silenced in Fragile X syndrome, these innovative scientists will bring us closer to a cure.

Spreading Sunshine

April 11, 2012

We’re deeply grateful to Doris Buffett and her Sunshine Lady Foundation for donating over $3M to FRAXA and inspiring Fragile X families.

Results of First Fenobam Trial in Adults with Fragile X Published

July 1, 2009

Fenobam showed positive results in a Phase IIa Fragile X trial. FRAXA supplied data that helped the drug earn Orphan status and move into clinical testing.