Centers for Collaborative Research in Fragile X Receive $25 Million Over Next 5 Years

National Institutes of Health (NIH) has announced funding for three Centers for Collaborative Research in Fragile X. The centers will receive $25 million over the next 5 years. Funding for the centers comes from the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), National Institute of Mental Health (NIMH), and the National Institute of Neurological Disorders and Stroke (NINDS).

The Centers and their Principal Investigators are:

All five Principal Investigators leading these centers have received multiple years of funding from FRAXA Research Foundation.

Thank You to All Fragile X Advocates Who Made These Centers Possible!

Twenty years ago, Congress launched three Centers for Collaborative Research in Fragile X as part of The Children’s Health Act of 2000, signed into law after intense advocacy efforts by FRAXA Research Foundation and families around the US who live with Fragile X.

Every five years, the NIH holds a new competition to choose the winners of this major funding. Together they have made great progress in advancing Fragile X research and we have great hopes for their discoveries over the coming years!


As a Fragile X advocate, I am thrilled that the the Centers of Excellence for Fragile X Research program FRAXA helped create 20 long years ago has been renewed. What a beautiful memorial tribute to my friend David Busby.

Jeffrey Cohen, JD