July 2021
»16th Annual Fragile X Poker Run
Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
August 2021
»2021 FRAXA Charity Golf Tournament
Join us at the Bradford Country Club in Haverhill/Bradford, MA, on August 20, 2020 for our Annual Charity Golf Tournament. ...
No event found!
Past Events
December 2020
»Integrating Human and Mouse Studies in Fragile X Syndrome – an NIH Center Approach
A virtual seminar series focused on current topics in Fragile X research. This seminar features Craig A. Erickson, MD, Ernest Pedapati, MD, MS, FAAP, Devin K. Binder, MD, PhD, and Kimberly M. Huber, PhD presenting about an NIH Center approach to integrating human and mouse studies in Fragile X. ...
»Towards Understanding the Role of FMRP in Human Brain Development Using Brain Organoids
A virtual seminar series focused on current topics in Fragile X research. Dr. Zhexing Wen and Peng Jin, PhD will present about the role of FMRP in human brain development using brain organoids. ...
November 2020
»Interneuron Dysfunction in Autism
A virtual meeting via zoom focusing on 3 major themes of Interneurons in development, Molecular diversity of interneurons and Interneurons and circuit dysfunction. This event will feature 3 FRAXA funded researchers! ...
October 2020
»Use of EEG as a Biomarker for Diagnosis and Outcomes in Neurodevelopmental Disorders
A series webinars focused on current topics in Fragile X research featuring Charles A. Nelson III, PhD, Professor at Harvard Medical School and Carol Wilkinson, MD, PhD, Instructor at Boston Children's Hospital. ...
September 2020
»Healx Drug Repurposing Programme for Fragile X Syndrome
A webinar series focused on current topics in Fragile X research. David Brown, MD, PhD, Ivan Angulo-Herrera, PhD and Anthony Hall of Healx will present about the Drug Repurposing Programme for Fragile X syndrome....
»FRAXA Biotech Games 2020
FRAXA Biotech Games™ brings together the biotech community to network in a friendly setting, form new relationships and potential collaborations while raising money for a great cause! ...
August 2020
»2020 FRAXA Charity Golf Tournament
Join us at the Bradford Country Club in Haverhill/Bradford, MA, on August 28, 2020 for our 31th Annual Charity Golf Tournament. ...
»Virtual Fragile X Gathering
We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
»Mechanisms and Biomarkers of Sensory Hypersensitivity in the fmr1 Knockout Mouse
This is the second in a series of webinars focused on current topics in Fragile X research. Devin K. Binder, MD, PhD, Professor, University of California at Riverside Medical School and Khaleel Razak, PhD, Professor, University of California at Riverside will present. ...
»Virtual Fragile X Gathering
We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
»GRC Connects: Fragile X and Autism Related Disorders Mentorship Panel
The panel at this GRC Connects event is comprised of a comprehensive group of clinicians, established researchers, and policy makers ready to discuss their own career trajectories and how they envision the future of ASD research and funding. Questions from the audience will be invited and discussion encouraged. ...
July 2020
»16th Annual Fragile X Poker Run – CANCELED
Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
»Step Up for Fragile X
Join us on Saturday, July 25 at 12 pm Eastern time as we all gather virtually to Step Up for Fragile X. Whether you like to walk, run, bike, dance, or play a sport, every move you make can help spread awareness for Fragile X syndrome. ...
»Landmarks Light Up Fragile X Awareness Day 2020
This year, on Fragile X Awareness Day, a growing number of buildings, bridges, and monuments — including Niagara Falls — will be illuminated in teal to spread the word about Fragile X and celebrate our community. Although we may not be able to gather in groups this year, we still encourage you to briefly visit or drive by lighting displays and share your experience with us. ...
»Yoga Sculpt Fragile X Awareness Fundraiser
Join CorePower Instructor, Taylor Kinnerup, for a fun Yoga Sculpt class to raise awareness and funds for Fragile X research, benefitting the FRAXA Research Foundation. ...
»Virtual Fragile X Gathering
We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
June 2020
»Brain Organoids and Therapeutic Development for Fragile X and Other Rare Diseases
This is the first in a series of webinars focused on current topics in Fragile X research. Alysson Muotri, PhD, Professor, University of California San Diego Stem Cell Program, and Fabio C. Tucci, PhD, Chief Operating Officer and co-founder, Epigen Biosciences, will present. ...
»Virtual Fragile X Gathering
We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
»Virtual Fragile X Gathering
We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
»Patient Advocacy + Virtual Summit
The Patient Advocacy + summit, organized by Swissnex is a series of workshops to help pharmaceutical executives and life science entrepreneurs understand the important role of patient advocacy in bringing about innovation, and insights for collaborating with nonprofits to accelerate product development for patients with unmet needs. Dave Bjork will be leading one of the workshops to share how FRAXA is collaborating with biopharma companies to advance treatment innovation for Fragile X syndrome. ...
May 2020
»Patrick’s PALS XXIV 3-on-3 Basketball Tournament
Patrick’s PALS 3-on-3 Basketball Tournament is a 32-team, double elimination event to raise funds for Fragile X research. With four half-courts in constant use, this is the place to be! ...
»7th Annual Fragile X Cornhole Tournament – CANCELED
Join us for the 6th Annual FRAXA Cornhole Tournament in Frederick, Maryland hosted by Dan, Jodie, Julianne and Jackson Grove. Dan and Jodie's son Jackson (10) was diagnosed with Fragile X syndrome at the age of 3. ...
December 2019
»Hope for the Holidays Gala 2019
Come enjoy an evening with family and friends as The Pierce Family Fragile X Foundation kicks off the season of giving!
There will be great food, cocktails, music, silent auction, live auction and raffles for your enjoyment.
Make this night part of your holiday traditions! ...
»Lighting Up Prudential Tower for Fragile X
Join FRAXA in Boston on Wednesday, December 4 at 4:30pm to raise Fragile X awareness. We are hosting a 'flip the switch' ceremony in the Prudential Center. Dr. Mark Bear, Picower Professor at Massachusetts Institute of Technology (MIT), will speak. Event is free; space is limited. ...
No event found!
