July 2019
»Callum Cup 2019
The 4th annual Callum Cup is the day before Fragile X Awareness Day! Join us for great competition and great fun while raising funds for Fragile X research. Everyone is welcome to come out and watch the games or stop by St. Jame's Gate Publick House post game to socialize. ...
»Landmarks Light Up Fragile X Awareness Day
On Fragile X Awareness Day, July 22, 2019, at least 11 buildings, bridges, and monuments -- including Niagara Falls -- will be illuminated in teal to spread the word about Fragile X syndrome. ...
»Fragile X July Jam
Join us for a Summer evening of fun, while supporting families living with Fragile X syndrome! New Hampshire alone has more than 100 families affected by it! We need research and development for a cure! ...
»15th Annual Fragile X Poker Run
Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
September 2019
»Watkins Fall Event
Ron and Amy feel so blessed to be surrounded by kind, ...
November 2019
»Genes & Gems
Join us for Genes & Gems, Columbus, Ohio, supporting research to find effective treatments and ultimately a cure for Fragile X syndrome. ...
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Past Events
June 2019
»Princeton Collection 5K Fun Run/Walk
A run/walk that starts from the corner of McKenzie and South Parker Road (at 138 Parker Rd) for just $10 per person. Join us as we raise funds for effective treatments and a cure for Fragile X. ...
»6th Annual Fragile X Cornhole Tournament
Join us for the 6th Annual FRAXA Cornhole Tournament in Frederick, Maryland hosted by Dan, Jodie, Julianne and Jackson Grove. Dan and Jodie's son Jackson (10) was diagnosed with Fragile X syndrome at the age of 3 and at that time neither them, their friends, family members or local school system knew anything or had even heard about Fragile X. They wanted to help with the awareness efforts and research. As they learned more about FRAXA Research Foundation, they wanted to do all they can to help the amazing efforts in awareness, coping and research towards effective treatment and ultimately a cure! ...
»Patrick’s PALS XXIII 3-on-3 Basketball Tournament
Patrick’s PALS 3-on-3 Basketball Tournament is a 32-team, double elimination event to raise funds for Fragile X research. With four half-courts in constant use, the Jack Etter Gymnasium inside the Nicholas Athletic Center at Buckingham Browne & Nichols School in Cambridge is the place to be from 8 am to 3 pm. ...
May 2019
»30th Annual Charity Golf Tournament
Join us at Portsmouth Country Club in Greenland, NH on May 20, 2019 for our 30th Annual Charity Golf Tournament. ...
»Fran for Fragile X CrossFit Workout
Join us for the ultimate Crossfit workout at FRAN for Fragile X. Please register here, and don't forget to choose your Heat time and T-shirt size. ...
April 2019
»Dash for Disability 5K Walk/Run
A student-led 5K run/walk to raise money and awareness for Fragile X syndrome at the Asheville School in Asheville, NC. ...
March 2019
»Bowling for Fragile X Research
For the second year Vanshi Shah is holding a bowling fundraiser in honor of his brother who has Fragile X syndrome. Everyone is invited to bowl with their friends and family while contributing towards Fragile X research to find effective treatments and ultimately a cure. All money raised will go to FRAXA. ...
December 2018
»Patriots Foundation Honor Kathan Pierce
Kathan has been invited to take part in a special in-game ceremony at the Patriots final regular season home game against the New York Jets on Sunday, December 30, 2018. ...
»Hope for the Holidays Gala 2018
Come enjoy an evening with family and friends as The Pierce Family Fragile X Foundation kicks off the season of giving!
There will be great food, cocktails, music, silent auction, live auction and raffles for your enjoyment.
Make this night part of your holiday traditions! ...
»HHP Shopping Day to Benefit FRAXA
25% of everything sold on December 4, 2018 (not including shipping or tax) will go to FRAXA Research Foundation. ...
November 2018
»Volunteer for FRAXA at the Boston Bruins Game
Join us on Friday, November 23 to help raise funds for Fragile X research by volunteering when the Boston Bruins host the Pittsburgh Penguins. At each home game, the Boston Bruins Foundation hosts a 50/50 raffle with half the proceeds going to a lucky winner and the other half going to a worthy charity. FRAXA Research Foundation is incredibly fortunate to be the featured charity on Friday, November 23, at 7:30 pm, when the Bruins play the Pittsburgh Penguins at Boston’s TD Garden. ...
»Garcias Running the NYC Marathon
Joel and Sylvia Garcia are currently training to run the NYC Marathon on November 4th. They will be running for Team FRAXA and are honored to be able to wear the Fragile X name and bring more Fragile X Awareness to the world around us. ...
»MassBio’s Patient Advocacy Summit
Friend of FRAXA and parent Nick Lunger will be participating in 2 panel discussions at the Massachusetts Biotechnology Council (MassBio) Patient Advocacy Summit on November 2, 2018 in Cambridge, MA. He is representing the voice of Fragile X families in this important discussion with biotech leaders about how life sciences companies can more fully incorporate the patient voice into the work they do. ...
October 2018
»Chicago Marathon run in Honor of James
Gail O'Mara is running the 2018 Chicago Marathon to recognize and honor the efforts of her delightful grandson James, who with undaunted spirit has met the challenges of living with Fragile X. ...
September 2018
»FRAXA Biotech Games 2018
FRAXA Biotech Games are a “friendly” competition between greater Boston area biotech companies, their vendors and partners in a series of back yard lawn games including Cornhole, KanJam, Bucketball and Ladder golf. Who will earn bragging rights as the top company? The Games will benefit Fragile X research at the Bear Lab at the Picower Institute at MIT, supported by FRAXA Research Foundation. ...
»FRAXA Fall Fling
Join us for a delightful evening as we celebrate and raise funds to find a cure for Fragile X, at the historic Smith Barn at Brooksby Farm in Peabody, Mass. ...
August 2018
»Pottery Fundraiser Opening Reception
Sally Ann Endleman will be exhibiting her pottery for the entire month of August, with an opening reception on August 9 from 5 pm to 7 pm. Several of her one of a kind pieces will be on display and for sale. She will also be holding a fundraiser for FRAXA: a selection of pottery will be gifted to individuals contributing to this cause. ...
»Charity Classic Golf Tournament and Dinner
Ravinia Green Charity Classic benefits FRAXA Research Foundation, the ALS Therapy Development Institute/Augies's Quest to Cure ALS, and ClubCorp's Employee Partner Care Foundation. During the event, there will be golf and social activities, lunch, dinner, silent and live auctions, & more! The goal is to raise $60,000 plus in this one day! ...
July 2018
»14th Annual Fragile X Poker Run
Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
»Niagara Falls to go Teal for Fragile X Awareness
FRAXA is proud to announce that the Niagara Falls Illumination Board will light up Niagara Falls in teal on Fragile X Awareness Day, July 22, 2018!
What a great way to shine a bright light on Fragile X research at such an iconic place. Spread the word, and if you will be in the Buffalo/Niagara Falls area, we want you to come to this event and take lots of photos!! The lighting of the falls in teal will take place July 22 at 10pm. ...
»Fragile X Awareness at NYSE
Fragile X Awareness front and center at the New York ...
June 2018
»29th Annual Charity Golf Tournament
Join us at Portsmouth Country Club in Greenland, NH on June 25, 2018 for our 29th Annual Charity Golf Tournament. ...
»Patrick’s PALS XXII 3-on-3 Basketball Tournament
Patrick's PALS XXII, a 3-on-3 Basketball Tournament established in 1997 by James & Pamela Vershbow (and three very close friends) is on for Saturday June 2, 2018 from 8 AM to 3 PM. The 32-team, double elimination, 4-half-courts-in-use tournament will take place at The Jack Etter Gymnasium inside The Nicholas Athletic Center at Buckingham Browne & Nichols School on Gerry's Landing Road in Cambridge. ...
No event found!