Events to Benefit Fragile X Research

Who runs FRAXA fundraisers? Parents, grandparents, brothers, sisters, aunts and uncles, and friends who want a effective treatments and a cure for Fragile X.

We are truly grateful to all the FRAXA Ambassadors and volunteers who run FRAXA fundraisers. Please join us at an event and feel the magic. Or, run your own event. Help get closer to effective treatments and a cure!

December 2020
No event found!

Past Events

November 2020

»Interneuron Dysfunction in Autism

A virtual meeting via zoom focusing on 3 major themes of Interneurons in development, Molecular diversity of interneurons and Interneurons and circuit dysfunction. This event will feature 3 FRAXA funded researchers! ...
Monday, November 16, 2020 - Wednesday, November 18, 2020
All Day
Virtual/Online
October 2020
September 2020

»Healx Drug Repurposing Programme for Fragile X Syndrome

A webinar series focused on current topics in Fragile X research. David Brown, MD, PhD, Ivan Angulo-Herrera, PhD and Anthony Hall of Healx will present about the Drug Repurposing Programme for Fragile X syndrome....
Tuesday, September 29, 2020
11:00 am - 12:30 pm
Virtual/Online

»FRAXA Biotech Games 2020

FRAXA Biotech Games™ brings together the biotech community to network in a friendly setting, form new relationships and potential collaborations while raising money for a great cause! ...
Thursday, September 10, 2020
Virtual/Online
August 2020

»2020 FRAXA Charity Golf Tournament

Join us at the Bradford Country Club in Haverhill/Bradford, MA, on August 28, 2020 for our 31th Annual Charity Golf Tournament. ...
Friday, August 28, 2020
Bradford Country Club
201 Chadwick Rd, Haverhill, MA 01835

»Virtual Fragile X Gathering

We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
Thursday, August 27, 2020
7:00 pm - 8:00 pm
Virtual/Online

»Virtual Fragile X Gathering

We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
Thursday, August 13, 2020
7:00 pm - 8:00 pm
Virtual/Online

»GRC Connects: Fragile X and Autism Related Disorders Mentorship Panel

The panel at this GRC Connects event is comprised of a comprehensive group of clinicians, established researchers, and policy makers ready to discuss their own career trajectories and how they envision the future of ASD research and funding. Questions from the audience will be invited and discussion encouraged. ...
Saturday, August 8, 2020
12:00 pm - 1:30 pm
Virtual/Online
July 2020

»16th Annual Fragile X Poker Run – CANCELED

Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
Friday, July 31, 2020 - Sunday, August 2, 2020
Blue Ridge Parkway
14300 NC Hwy 18 South, Laurel Springs, NC 28644

»Step Up for Fragile X

Join us on Saturday, July 25 at 12 pm Eastern time as we all gather virtually to Step Up for Fragile X. Whether you like to walk, run, bike, dance, or play a sport, every move you make can help spread awareness for Fragile X syndrome. ...
Saturday, July 25, 2020
12:00 pm

»Landmarks Light Up Fragile X Awareness Day 2020

This year, on Fragile X Awareness Day, a growing number of buildings, bridges, and monuments — including Niagara Falls — will be illuminated in teal to spread the word about Fragile X and celebrate our community. Although we may not be able to gather in groups this year, we still encourage you to briefly visit or drive by lighting displays and share your experience with us. ...
Wednesday, July 22, 2020

»Yoga Sculpt Fragile X Awareness Fundraiser

Join CorePower Instructor, Taylor Kinnerup, for a fun Yoga Sculpt class to raise awareness and funds for Fragile X research, benefitting the FRAXA Research Foundation. ...
Saturday, July 18, 2020
12:00 pm - 1:00 pm
Virtual/Online

»Virtual Fragile X Gathering

We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
Thursday, July 9, 2020
7:00 pm - 8:00 pm
Virtual/Online
June 2020

»Virtual Fragile X Gathering

We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
Tuesday, June 23, 2020
10:00 am - 11:00 am
Virtual/Online

»Virtual Fragile X Gathering

We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
Thursday, June 11, 2020
7:00 pm - 8:00 pm
Virtual/Online

»Patient Advocacy + Virtual Summit

The Patient Advocacy + summit, organized by Swissnex is a series of workshops to help pharmaceutical executives and life science entrepreneurs understand the important role of patient advocacy in bringing about innovation, and insights for collaborating with nonprofits to accelerate product development for patients with unmet needs. Dave Bjork will be leading one of the workshops to share how FRAXA is collaborating with biopharma companies to advance treatment innovation for Fragile X syndrome.  ...
Tuesday, June 2, 2020
8:30 am - 11:00 am
Virtual/Online
May 2020
Early-round action at PALS 23

»Patrick’s PALS XXIV 3-on-3 Basketball Tournament – CANCELLED

Patrick’s PALS 3-on-3 Basketball Tournament is a 32-team, double elimination event to raise funds for Fragile X research. With four half-courts in constant use, this is the place to be! ...
Saturday, May 30, 2020
8:00 am - 3:00 pm
Buckingham Browne & Nichols School - Nicholas Athletic Center
Gerrys Landing Road, Cambridge, MA, USA

»7th Annual Fragile X Cornhole Tournament – CANCELED

Join us for the 6th Annual FRAXA Cornhole Tournament in Frederick, Maryland hosted by Dan, Jodie, Julianne and Jackson Grove. Dan and Jodie's son Jackson (10) was diagnosed with Fragile X syndrome at the age of 3. ...
Saturday, May 30, 2020
9:00 am
Urbana District Park
Urbana Pike, Frederick, MD, USA
December 2019
2018 Hope for the Holidays

»Hope for the Holidays Gala 2019

Come enjoy an evening with family and friends as The Pierce Family Fragile X Foundation kicks off the season of giving! There will be great food, cocktails, music, silent auction, live auction and raffles for your enjoyment. Make this night part of your holiday traditions! ...
Saturday, December 7, 2019
7:00 pm - 11:00 pm
Cafe Escadrille
26 Cambridge St, Burlington, Massachusetts 01803

»Lighting Up Prudential Tower for Fragile X

Join FRAXA in Boston on Wednesday, December 4 at 4:30pm to raise Fragile X awareness. We are hosting a 'flip the switch' ceremony in the Prudential Center. Dr. Mark Bear, Picower Professor at Massachusetts Institute of Technology (MIT), will speak. Event is free; space is limited. ...
Wednesday, December 4, 2019
4:30 pm - 7:00 pm
Prudential Center Boston
800 Boylston St, Boston, MA 02199
November 2019

»FRAXA Night at the Boston Bruins Game

On Saturday, November 23, help raise funds for Fragile X research when the Boston Bruins host the Minnesota Wild. At each home game, the Boston Bruins Foundation hosts a 50/50 raffle with half the proceeds going to a lucky winner and the other half going to a worthy charity. FRAXA Research Foundation is incredibly fortunate to be the featured charity on November 23 at 7:00 pm. You can buy raffle tickets at the game or, if you are in Massachusetts, online sales will open soon. ...
Saturday, November 23, 2019
7:00 pm
TD Garden
Legends Way, Boston, MA, USA
genes & Gems

»Genes & Gems

Join us for Genes & Gems, Columbus, Ohio, supporting research to find effective treatments and ultimately a cure for Fragile X syndrome. ...
Saturday, November 16, 2019
7:00 pm
Renaissance Columbus Hotel
409 Altair Pkwy, Westerville, OH 43082, USA
September 2019
No event found!
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