Events to Benefit Fragile X Research

Who runs FRAXA fundraisers? Parents, grandparents, brothers, sisters, aunts and uncles, and friends who want a effective treatments and a cure for Fragile X.

We are truly grateful to all the FRAXA Ambassadors and volunteers who run FRAXA fundraisers. Please join us at an event and feel the magic. Or, run your own event. Help get closer to effective treatments and a cure!

No event found!

Past Events

September 2022

8th Annual 5K Walk for Fragile X Syndrome and Raffles

Darlene and Pat are hosting their 8th 5K Walk for Fragile X Syndrome on September 18, 2022 in Derry, NH to raise funds for Fragile X research and increase awareness. ...
Sep 18, 2022
8:30 am - 12:00 pm
Derry Rail Trail at Sabatino's North Italian Restaurant
1 E Broadway, Derry, NH 03038
August 2022

Callum Cup VI

The 6th annual Callum Cup will be played on Sunday, August, 28, 2022. Join us for great competition and great fun while raising funds for Fragile X research. Everyone is welcome to come out and watch the games or stop by St James Gate in Maplewood post-game to socialize. ...
Aug 28, 2022
9:00 am
Millburn Library Field
Library Field, Millburn, NJ
July 2022

17th Annual Fragile X Poker Run

Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
Jul 29, 2022 - Jul 31, 2022
Alleghany Inn
Alleghany Inn, Sparta, NC 28675

Flatbread Artisan Pizza Benefit

Join us for a fun evening of eating the Flatbread Company's amazing pizza and raising money for Fragile X research! ...
Jul 26, 2022
5:00 pm - 9:00 pm
Flatbread Pizza
5 Market Square, Amesbury, MA 01913

World Fragile X Day

World Fragile X Day celebrates families impacted by Fragile X and highlights progress of research to find a cure. On World Fragile X Day we shine a light on Fragile X by illuminating monuments and landmarks around the world. We gather with friends and family to celebrate loved ones who shine in the face of Fragile X. ...
Jul 22, 2022
June 2022

Patrick’s PALS XXVI

Patrick’s PALS 3-on-3 Basketball Tournament is a 32-team, double elimination event to raise funds for Fragile X research. With four half-courts in constant use, this is the place to be! ...
Jun 4, 2022
Shady Hill School
178 Coolidge Hill, Cambridge MA 02138
May 2022

2022 FRAXA Charity Golf Tournament

Join us at the Bradford Country Club in Haverhill/Bradford, MA, on May 27, 2022 for our Annual Charity Golf Tournament. ...
May 27, 2022
8:00 am
Bradford Country Club
201 Chadwick Rd, Haverhill, MA 01835

Gordon Research Conference 2022 Fragile X and Autism-Related Disorders

The Gordon Research Seminar on Fragile X and Autism-Related Disorders is a unique forum for graduate students, post-docs, and other scientists with comparable levels of experience and education to present and exchange new data and cutting edge ideas. ...
May 15, 2022 - May 20, 2022
Renaissance Tuscany Il Ciocco
Via Giovanni Pascoli, Lucca (Barga), Italy

Gordon Research Seminar 2022 Fragile X and Autism-Related Disorders

The Gordon Research Seminar on Fragile X and Autism-Related Disorders is a unique forum for graduate students, post-docs, and other scientists with comparable levels of experience and education to present and exchange new data and cutting edge ideas. ...
May 14, 2022 - May 15, 2022
Renaissance Tuscany Il Ciocco
Via Giovanni Pascoli, Lucca (Barga), Italy
April 2022

Step Up for Fragile X Research 2022

We are creating the Step Up for Fragile X Research Award. This $50,000 grant will fund a research grant that we believe will make a positive difference for our families. We’ve secured $25,000 in matching funds but need to raise another $25,000 to make this vision a reality! ...
Apr 21, 2022 - May 31, 2022
All Day

Cape Coral Touch-A-Truck 2022

The EHL Fragile X Foundation is proud to share it’s annual Touch-A-Truck event is back! This free, family friendly event is an awesome experience where kids of all ages can explore and ask questions about their favorite vehicles. ...
Apr 2, 2022
9:00 am - 3:00 pm
Lafayette Street
Lafayette Street, Cape Coral, FL
August 2021

Callum Cup V

The 5th annual Callum Cup will be played on Sunday, August, 29, 2021. Join us for great competition and great fun while raising funds for Fragile X research. If you're interested in playing, contact Andrew via email at glasfurd31@gmail.com. Everyone is welcome to come out and watch the games or stop by The Grove in East Brunswick post game to socialize. ...
Aug 29, 2021
10:00 am
The Fields Sports Complex
July 2021

16th Annual Fragile X Poker Run

Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
Jul 31, 2021 - Aug 2, 2021
Alleghany Inn
Alleghany Inn, Sparta, NC 28675
July 2020

Landmarks Light Up Fragile X Awareness Day 2020

This year, on Fragile X Awareness Day, a growing number of buildings, bridges, and monuments — including Niagara Falls — will be illuminated in teal to spread the word about Fragile X and celebrate our community. Although we may not be able to gather in groups this year, we still encourage you to briefly visit or drive by lighting displays and share your experience with us. ...
Jul 22, 2020
July 2019

Fragile X July Jam

Join us for a Summer evening of fun, while supporting families living with Fragile X syndrome! New Hampshire alone has more than 100 families affected by it! We need research and development for a cure! ...
Jul 22, 2019
4:00 pm - 8:00 pm
Derry Rail Trail at Sabatino's North Italian Restaurant
1 E Broadway, Derry, NH 03038
June 2019

6th Annual Fragile X Cornhole Tournament

Join us for the 6th Annual FRAXA Cornhole Tournament in Frederick, Maryland hosted by Dan, Jodie, Julianne and Jackson Grove. Dan and Jodie's son Jackson (10) was diagnosed with Fragile X syndrome at the age of 3 and at that time neither them, their friends, family members or local school system knew anything or had even heard about Fragile X. They wanted to help with the awareness efforts and research. As they learned more about FRAXA Research Foundation, they wanted to do all they can to help the amazing efforts in awareness, coping and research towards effective treatment and ultimately a cure! ...
Jun 1, 2019
9:00 am
Urbana District Park
Urbana Pike, Frederick, MD, USA
October 2018

Chicago Marathon run in Honor of James

Gail O'Mara is running the 2018 Chicago Marathon to recognize and honor the efforts of her delightful grandson James, who with undaunted spirit has met the challenges of living with Fragile X. ...
Oct 7, 2018
9:30 am
Chicago Marathon
Chicago, Illinois, USA
August 2018

Pottery Fundraiser Opening Reception

Sally Ann Endleman will be exhibiting her pottery for the entire month of August, with an opening reception on August 9 from 5 pm to 7 pm. Several of her one of a kind pieces will be on display and for sale. She will also be holding a fundraiser for FRAXA: a selection of pottery will be gifted to individuals contributing to this cause. ...
Aug 9, 2018
5:00 pm - 7:00 pm
Case Memorial Library
176 Tyler City Rd, Orange, CT, USA
July 2018
Niagara Falls goes teal for Fragile X

Niagara Falls to go Teal for Fragile X Awareness

FRAXA is proud to announce that the Niagara Falls Illumination Board will light up Niagara Falls in teal on Fragile X Awareness Day, July 22, 2018!  What a great way to shine a bright light on Fragile X research at such an iconic place. Spread the word, and if you will be in the Buffalo/Niagara Falls area, we want you to come to this event and take lots of photos!! The lighting of the falls in teal will take place July 22 at 10pm.  ...
Jul 22, 2018
10:00 pm
Niagara Falls
6345 Niagara Pkwy, Niagara Falls, ON L2E 6S8, Canada
April 2018

Dash for Bash!

Like other boys with Fragile X syndrome, Bash is hoping for an effective treatment and ultimately a cure. I am hoping to assist in this research by running my first marathon on April 8, 2018. Please sponsor me to fund research through the FRAXA Research Foundation. ...
Apr 8, 2018
CHEAP Marathon
Salisbury, MA
No event found!