Events to Benefit Fragile X Research

Who runs FRAXA fundraisers? Parents, grandparents, brothers, sisters, aunts and uncles, and friends who want a effective treatments and a cure for Fragile X.

We are truly grateful to all the FRAXA Ambassadors and volunteers who run FRAXA fundraisers. Please join us at an event and feel the magic. Or, run your own event. Help get closer to effective treatments and a cure!

September 2019
November 2019
genes & Gems

»Genes & Gems

Join us for Genes & Gems, Columbus, Ohio, supporting research to find effective treatments and ultimately a cure for Fragile X syndrome. ...
Saturday, November 16, 2019
7:00 pm
Renaissance Columbus Hotel
409 Altair Pkwy, Westerville, OH 43082, USA
No event found!

Past Events

July 2019

»15th Annual Fragile X Poker Run

Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
Friday, July 26, 2019 - Sunday, July 28, 2019
Blue Ridge Parkway
14300 NC Hwy 18 South, Laurel Springs, NC 28644

»Fragile X July Jam

Join us for a Summer evening of fun, while supporting families living with Fragile X syndrome! New Hampshire alone has more than 100 families affected by it! We need research and development for a cure! ...
Monday, July 22, 2019
4:00 pm - 8:00 pm
Sabatino's North Italian Restaurant
1 E Broadway, Derry, NH 03038

»Landmarks Light Up Fragile X Awareness Day

On Fragile X Awareness Day, July 22, 2019, at least 11 buildings, bridges, and monuments -- including Niagara Falls -- will be illuminated in teal to spread the word about Fragile X syndrome. ...
Monday, July 22, 2019
All of the day
Callum Cup

»Callum Cup 2019

The 4th annual Callum Cup is the day before Fragile X Awareness Day! Join us for great competition and great fun while raising funds for Fragile X research. Everyone is welcome to come out and watch the games or stop by St. Jame's Gate Publick House post game to socialize. ...
Sunday, July 21, 2019
9:00 am
Millburn High School
462 Millburn Ave, Millburn, NJ 07041
June 2019

»Princeton Collection 5K Fun Run/Walk

A run/walk that starts from the corner of McKenzie and South Parker Road (at 138 Parker Rd) for just $10 per person. Join us as we raise funds for effective treatments and a cure for Fragile X. ...
Saturday, June 15, 2019
8:00 am - 10:00 am
Corner of McKenzie and South Parker Road
138 Parker Rd, Plainsboro, NJ

»6th Annual Fragile X Cornhole Tournament

Join us for the 6th Annual FRAXA Cornhole Tournament in Frederick, Maryland hosted by Dan, Jodie, Julianne and Jackson Grove. Dan and Jodie's son Jackson (10) was diagnosed with Fragile X syndrome at the age of 3 and at that time neither them, their friends, family members or local school system knew anything or had even heard about Fragile X. They wanted to help with the awareness efforts and research. As they learned more about FRAXA Research Foundation, they wanted to do all they can to help the amazing efforts in awareness, coping and research towards effective treatment and ultimately a cure! ...
Saturday, June 1, 2019
9:00 am
Urbana District Park
Urbana Pike, Frederick, MD, USA

»Patrick’s PALS XXIII 3-on-3 Basketball Tournament

Patrick’s PALS 3-on-3 Basketball Tournament is a 32-team, double elimination event to raise funds for Fragile X research. With four half-courts in constant use, the Jack Etter Gymnasium inside the Nicholas Athletic Center at Buckingham Browne & Nichols School in Cambridge is the place to be from 8 am to 3 pm. ...
Saturday, June 1, 2019
8:00 am - 3:00 pm
Buckingham Browne & Nichols School - Nicholas Athletic Center
Gerrys Landing Road, Cambridge, MA, USA
May 2019
Hall Tournament photo

»30th Annual Charity Golf Tournament

Join us at Portsmouth Country Club in Greenland, NH on May 20, 2019 for our 30th Annual Charity Golf Tournament. ...
Monday, May 20, 2019
8:00 am
Portsmouth Country Club
80 Country Club Lane, Greenland, NH 03840, USA

»Fran for Fragile X CrossFit Workout

Join us for the ultimate Crossfit workout at FRAN for Fragile X. Please register here, and don't forget to choose your Heat time and T-shirt size. ...
Saturday, May 4, 2019
9:30 am - 12:30 pm
Crossfit Scioto
1066 Ridge St, Columbus, Ohio 43215, USA
April 2019

»Dash for Disability 5K Walk/Run

A student-led 5K run/walk to raise money and awareness for Fragile X syndrome at the Asheville School in Asheville, NC. ...
Saturday, April 6, 2019
Asheville School
360 Asheville School Road, Asheville, NC 28806, USA
March 2019
Bowling FRAXA Fragile X Fundraiser

»Bowling for Fragile X Research

For the second year Vanshi Shah is holding a bowling fundraiser in honor of his brother who has Fragile X syndrome. Everyone is invited to bowl with their friends and family while contributing towards Fragile X research to find effective treatments and ultimately a cure. All money raised will go to FRAXA. ...
Saturday, March 23, 2019
11:00 am - 1:00 pm
Woodbridge Bowling Center
346 Main Street, Woodbridge, NJ, USA
December 2018

»Patriots Foundation Honor Kathan Pierce

Kathan has been invited to take part in a special in-game ceremony at the Patriots final regular season home game against the New York Jets on Sunday, December 30, 2018. ...
Sunday, December 30, 2018
1:00 pm
Gillette Stadium
Patriot Place, Foxborough, MA, USA
Hope for the Holidays Gala - Pierce Family Fragile X Foundation

»Hope for the Holidays Gala 2018

Come enjoy an evening with family and friends as The Pierce Family Fragile X Foundation kicks off the season of giving! There will be great food, cocktails, music, silent auction, live auction and raffles for your enjoyment. Make this night part of your holiday traditions! ...
Saturday, December 8, 2018
7:00 pm - 11:55 pm
Cafe Escadrille
26 Cambridge St, Burlington, Massachusetts 01803
November 2018
Bruins Foundation Raffle

»Volunteer for FRAXA at the Boston Bruins Game

Join us on Friday, November 23 to help raise funds for Fragile X research by volunteering when the Boston Bruins host the Pittsburgh Penguins. At each home game, the Boston Bruins Foundation hosts a 50/50 raffle with half the proceeds going to a lucky winner and the other half going to a worthy charity. FRAXA Research Foundation is incredibly fortunate to be the featured charity on Friday, November 23, at 7:30 pm, when the Bruins play the Pittsburgh Penguins at Boston’s TD Garden. ...
Friday, November 23, 2018
7:30 pm
TD Garden
Legends Way, Boston, MA, USA

»Garcias Running the NYC Marathon

Joel and Sylvia Garcia are currently training to run the NYC Marathon on November 4th. They will be running for Team FRAXA and are honored to be able to wear the Fragile X name and bring more Fragile X Awareness to the world around us. ...
Sunday, November 4, 2018
8:00 am
New York City Marathon
New York City, NY, USA

»MassBio’s Patient Advocacy Summit

Friend of FRAXA and parent Nick Lunger will be participating in 2 panel discussions at the Massachusetts Biotechnology Council (MassBio) Patient Advocacy Summit on November 2, 2018 in Cambridge, MA. He is representing the voice of Fragile X families in this important discussion with biotech leaders about how life sciences companies can more fully incorporate the patient voice into the work they do. ...
Friday, November 2, 2018
8:00 am - 5:00 pm
Hyatt Regency Cambridge
Hyatt Regency Cambridge, Overlooking Boston, 575, Memorial Drive, Cambridge, MA 02139, U.S.
October 2018

»Chicago Marathon run in Honor of James

Gail O'Mara is running the 2018 Chicago Marathon to recognize and honor the efforts of her delightful grandson James, who with undaunted spirit has met the challenges of living with Fragile X. ...
Sunday, October 7, 2018
9:30 am
Chicago Marathon
Chicago, Illinois, USA
September 2018

»FRAXA Biotech Games 2018

FRAXA Biotech Games are a “friendly” competition between greater Boston area biotech companies, their vendors and partners in a series of back yard lawn games including Cornhole, KanJam, Bucketball and Ladder golf. Who will earn bragging rights as the top company? The Games will benefit Fragile X research at the Bear Lab at the Picower Institute at MIT, supported by FRAXA Research Foundation. ...
Thursday, September 20, 2018
1:00 pm
Kresge Oval at MIT
70 Massachusetts Avenue, MIT, Cambridge, MA, USA

»FRAXA Fall Fling

Join us for a delightful evening as we celebrate and raise funds to find a cure for Fragile X, at the historic Smith Barn at Brooksby Farm in Peabody, Mass. ...
Wednesday, September 12, 2018
6:30 pm
Smith Barn at Brooksby Farm
Peabody Historical Society, 38 Felton Street, Peabody, MA 01960
August 2018

»Pottery Fundraiser Opening Reception

Sally Ann Endleman will be exhibiting her pottery for the entire month of August, with an opening reception on August 9 from 5 pm to 7 pm. Several of her one of a kind pieces will be on display and for sale. She will also be holding a fundraiser for FRAXA: a selection of pottery will be gifted to individuals contributing to this cause. ...
Thursday, August 9, 2018
5:00 pm - 7:00 pm
Case Memorial Library
176 Tyler City Rd, Orange, CT, USA

»Charity Classic Golf Tournament and Dinner

Ravinia Green Charity Classic benefits FRAXA Research Foundation, the ALS Therapy Development Institute/Augies's Quest to Cure ALS, and ClubCorp's Employee Partner Care Foundation. During the event, there will be golf and social activities, lunch, dinner, silent and live auctions, & more! The goal is to raise $60,000 plus in this one day! ...
Wednesday, August 1, 2018
10:30 am - 9:00 pm
Ravinia Green Country Club
1200 Saunders Road, Riverwoods, IL 60015, USA
July 2018
Poker Run for Fragile X

»14th Annual Fragile X Poker Run

Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
Saturday, July 28, 2018
12:00 pm
Blue Ridge Parkway
14300 NC Hwy 18 South, Laurel Springs, NC 28644
Niagara Falls goes teal for Fragile X

»Niagara Falls to go Teal for Fragile X Awareness

FRAXA is proud to announce that the Niagara Falls Illumination Board will light up Niagara Falls in teal on Fragile X Awareness Day, July 22, 2018!  What a great way to shine a bright light on Fragile X research at such an iconic place. Spread the word, and if you will be in the Buffalo/Niagara Falls area, we want you to come to this event and take lots of photos!! The lighting of the falls in teal will take place July 22 at 10pm.  ...
Sunday, July 22, 2018
10:00 pm
Niagara Falls
6345 Niagara Pkwy, Niagara Falls, ON L2E 6S8, Canada

»Fragile X Awareness at NYSE

Fragile X Awareness front and center at the New York ...
Thursday, July 5, 2018
8:30 am - 10:30 am
New York Stock Exchange
2 Broad St, New York, New York, USA
No event found!