April 2022
Step Up for Fragile X Research 2022
We are creating the Step Up for Fragile X Research Award. This $50,000 grant will fund a research grant that we believe will make a positive difference for our families. We’ve secured $25,000 in matching funds but need to raise another $25,000 to make this vision a reality! ...
June 2022
Patrick’s PALS XXVI
Patrick’s PALS 3-on-3 Basketball Tournament is a 32-team, double elimination event to raise funds for Fragile X research. With four half-courts in constant use, this is the place to be! ...
July 2022
World Fragile X Day
World Fragile X Day celebrates families impacted by Fragile X and highlights progress of research to find a cure. On World Fragile X Day we shine a light on Fragile X by illuminating monuments and landmarks around the world. We gather with friends and family to celebrate loved ones who shine in the face of Fragile X. ...
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Past Events
May 2022
2022 FRAXA Charity Golf Tournament
Join us at the Bradford Country Club in Haverhill/Bradford, MA, on May 27, 2022 for our Annual Charity Golf Tournament. ...
Gordon Research Conference 2022 Fragile X and Autism-Related Disorders
The Gordon Research Seminar on Fragile X and Autism-Related Disorders is a unique forum for graduate students, post-docs, and other scientists with comparable levels of experience and education to present and exchange new data and cutting edge ideas. ...
Gordon Research Seminar 2022 Fragile X and Autism-Related Disorders
The Gordon Research Seminar on Fragile X and Autism-Related Disorders is a unique forum for graduate students, post-docs, and other scientists with comparable levels of experience and education to present and exchange new data and cutting edge ideas. ...
April 2022
Step Up for Fragile X Research 2022
We are creating the Step Up for Fragile X Research Award. This $50,000 grant will fund a research grant that we believe will make a positive difference for our families. We’ve secured $25,000 in matching funds but need to raise another $25,000 to make this vision a reality! ...
Cape Coral Touch-A-Truck 2022
The EHL Fragile X Foundation is proud to share it’s annual Touch-A-Truck event is back! This free, family friendly event is an awesome experience where kids of all ages can explore and ask questions about their favorite vehicles.
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November 2021
Volunteer for FRAXA at the Boston Bruins Game
Join us on Thursday, November 4 to help raise funds for Fragile X research by volunteering when the Boston Bruins host the Detroit Red Wings. At each home game, the Boston Bruins Foundation hosts a 50/50 raffle with half the proceeds going to a lucky winner and the other half going to a worthy charity. FRAXA Research Foundation is incredibly fortunate to be the featured charity on Thursday, November 4, at 7:00 pm, when the Bruins play the at Boston’s TD Garden. ...
October 2021
Purposeful and FRAXA Partnership Leads to Clinical Trial
Dr. Berry-Kravis will be joining FRAXA’s Mike Tranfaglia and Purposeful’s CEO & Co-Founder, Georgios Drakakis, for a virtual seminar on October 27, 2021 at 2:00 pm ET to share more of the exciting news about this trial. ...
Zynerba-RECONNECT Study: Understanding the Clinical Trial Experience
Join FRAXA and Dr. Joseph M. Palumbo, Chief Medical Officer at Zynerba Pharmaceuticals, as he shares insight into their RECONNECT Study. Attendees will have the opportunity to ask questions about the clinical trial experience and what to expect each step of the way.
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September 2021
JT’s Lancaster Sweet Shoppe Fundraiser
Please join us at the Lancaster Sweet Shoppe on Sunday, September 26 for a Fragile X Research Foundation fundraising event. Stop by for a sweet treat anytime during regular store hours, 1pm-9pm that day. Lancaster Sweet Shoppe has generously agreed to donate 100% of store sales that day to FRAXA (YES…100% of sales donated)! ...
7th Annual 5K Walk for Fragile X Syndrome and Raffles
Darlene and Pat are hosting their 7th 5K Walk for Fragile X Syndrome on September 12, 2021 in Derry, NH to raise funds for Fragile X research and increase awareness. ...
August 2021
Callum Cup V
The 5th annual Callum Cup will be played on Sunday, August, 29, 2021. Join us for great competition and great fun while raising funds for Fragile X research. If you're interested in playing, contact Andrew via email at glasfurd31@gmail.com. Everyone is welcome to come out and watch the games or stop by The Grove in East Brunswick post game to socialize. ...
White, Red, Rose instead. Lisa’s Wine Fundraiser
An ongoing ONEHOPE fundraiser aimed at sharing wine while giving hope with 10% of purchases donated to FRAXA. ...
July 2021
16th Annual Fragile X Poker Run
Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
Fragile X Syndrome: In Pursuit of a Cure FREE Webinar
FRAXA Research Foundation is proud to partner with WuXi AppTec on a world-wide FREE webinar on Fragile X syndrome, featuring prominent Fragile X organizations, scientists and clinicians from around the world. ...
May 2021
Interrogate the Functions of FMRP in Brain Development Using Stem Cells
A virtual seminar series focused on current topics in Fragile X research. This seminar features Xinyu Zhao, PhD presenting about Interrogating the Functions of FMRP in Brain Development Using Stem Cells. ...
July 2020
Landmarks Light Up Fragile X Awareness Day 2020
This year, on Fragile X Awareness Day, a growing number of buildings, bridges, and monuments — including Niagara Falls — will be illuminated in teal to spread the word about Fragile X and celebrate our community. Although we may not be able to gather in groups this year, we still encourage you to briefly visit or drive by lighting displays and share your experience with us. ...
July 2019
Fragile X July Jam
Join us for a Summer evening of fun, while supporting families living with Fragile X syndrome! New Hampshire alone has more than 100 families affected by it! We need research and development for a cure! ...
June 2019
6th Annual Fragile X Cornhole Tournament
Join us for the 6th Annual FRAXA Cornhole Tournament in Frederick, Maryland hosted by Dan, Jodie, Julianne and Jackson Grove. Dan and Jodie's son Jackson (10) was diagnosed with Fragile X syndrome at the age of 3 and at that time neither them, their friends, family members or local school system knew anything or had even heard about Fragile X. They wanted to help with the awareness efforts and research. As they learned more about FRAXA Research Foundation, they wanted to do all they can to help the amazing efforts in awareness, coping and research towards effective treatment and ultimately a cure! ...
October 2018
Chicago Marathon run in Honor of James
Gail O'Mara is running the 2018 Chicago Marathon to recognize and honor the efforts of her delightful grandson James, who with undaunted spirit has met the challenges of living with Fragile X. ...
August 2018
Pottery Fundraiser Opening Reception
Sally Ann Endleman will be exhibiting her pottery for the entire month of August, with an opening reception on August 9 from 5 pm to 7 pm. Several of her one of a kind pieces will be on display and for sale. She will also be holding a fundraiser for FRAXA: a selection of pottery will be gifted to individuals contributing to this cause. ...
July 2018
Niagara Falls to go Teal for Fragile X Awareness
FRAXA is proud to announce that the Niagara Falls Illumination Board will light up Niagara Falls in teal on Fragile X Awareness Day, July 22, 2018!
What a great way to shine a bright light on Fragile X research at such an iconic place. Spread the word, and if you will be in the Buffalo/Niagara Falls area, we want you to come to this event and take lots of photos!! The lighting of the falls in teal will take place July 22 at 10pm. ...
Fragile X Awareness at NYSE
Fragile X Awareness front and center at the New York ...
Swamp Donkey Burgers Raise Funding and Awareness
The Buck Snort restaurant and sports bar will be donating ...
April 2018
Dash for Bash!
Like other boys with Fragile X syndrome, Bash is hoping for an effective treatment and ultimately a cure. I am hoping to assist in this research by running my first marathon on April 8, 2018. Please sponsor me to fund research through the FRAXA Research Foundation. ...
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