September 2021
»JT’s Lancaster Sweet Shoppe Fundraiser
Please join us at the Lancaster Sweet Shoppe on Sunday, September 26 for a Fragile X Research Foundation fundraising event. Stop by for a sweet treat anytime during regular store hours, 1pm-9pm that day. Lancaster Sweet Shoppe has generously agreed to donate 100% of store sales that day to FRAXA (YES…100% of sales donated)! ...
October 2021
»Patrick’s PALS XXV
Patrick’s PALS 3-on-3 Basketball Tournament is a 32-team, double elimination event to raise funds for Fragile X research. With four half-courts in constant use, this is the place to be! ...
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Past Events
September 2021
»7th Annual 5K Walk for Fragile X Syndrome and Raffles
Darlene and Pat are hosting their 7th 5K Walk for Fragile X Syndrome on September 12, 2021 in Derry, NH to raise funds for Fragile X research and increase awareness. ...
August 2021
»Callum Cup V
The 5th annual Callum Cup will be played on Sunday, August, 29, 2021. Join us for great competition and great fun while raising funds for Fragile X research. If you're interested in playing, contact Andrew via email at glasfurd31@gmail.com. Everyone is welcome to come out and watch the games or stop by The Grove in East Brunswick post game to socialize. ...
»2021 FRAXA Charity Golf Tournament
Join us at the Bradford Country Club in Haverhill/Bradford, MA, on August 20, 2020 for our Annual Charity Golf Tournament. ...
»White, Red, Rose instead. Lisa’s Wine Fundraiser
An ongoing ONEHOPE fundraiser aimed at sharing wine while giving hope with 10% of purchases donated to FRAXA. ...
July 2021
»16th Annual Fragile X Poker Run
Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
»World Fragile X Day
World Fragile X Day celebrates families impacted by Fragile X and highlights progress of research to find a cure. On World Fragile X Day we shine a light on Fragile X by illuminating monuments and landmarks around the world. We gather with friends and family to celebrate loved ones who shine in the face of Fragile X. ...
»Fragile X Syndrome: In Pursuit of a Cure FREE Webinar
FRAXA Research Foundation is proud to partner with WuXi AppTec on a world-wide FREE webinar on Fragile X syndrome, featuring prominent Fragile X organizations, scientists and clinicians from around the world. ...
May 2021
»Interrogate the Functions of FMRP in Brain Development Using Stem Cells
A virtual seminar series focused on current topics in Fragile X research. This seminar features Xinyu Zhao, PhD presenting about Interrogating the Functions of FMRP in Brain Development Using Stem Cells. ...
December 2020
»Integrating Human and Mouse Studies in Fragile X Syndrome – an NIH Center Approach
A virtual seminar series focused on current topics in Fragile X research. This seminar features Craig A. Erickson, MD, Ernest Pedapati, MD, MS, FAAP, Devin K. Binder, MD, PhD, and Kimberly M. Huber, PhD presenting about an NIH Center approach to integrating human and mouse studies in Fragile X. ...
»Towards Understanding the Role of FMRP in Human Brain Development Using Brain Organoids
A virtual seminar series focused on current topics in Fragile X research. Dr. Zhexing Wen and Peng Jin, PhD will present about the role of FMRP in human brain development using brain organoids. ...
November 2020
»Interneuron Dysfunction in Autism
A virtual meeting via zoom focusing on 3 major themes of Interneurons in development, Molecular diversity of interneurons and Interneurons and circuit dysfunction. This event will feature 3 FRAXA funded researchers! ...
October 2020
»Use of EEG as a Biomarker for Diagnosis and Outcomes in Neurodevelopmental Disorders
A series webinars focused on current topics in Fragile X research featuring Charles A. Nelson III, PhD, Professor at Harvard Medical School and Carol Wilkinson, MD, PhD, Instructor at Boston Children's Hospital. ...
September 2020
»Healx Drug Repurposing Programme for Fragile X Syndrome
A webinar series focused on current topics in Fragile X research. David Brown, MD, PhD, Ivan Angulo-Herrera, PhD and Anthony Hall of Healx will present about the Drug Repurposing Programme for Fragile X syndrome.
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»FRAXA Biotech Games 2020
FRAXA Biotech Games™ brings together the biotech community to network in a friendly setting, form new relationships and potential collaborations while raising money for a great cause! ...
August 2020
»2020 FRAXA Charity Golf Tournament
Join us at the Bradford Country Club in Haverhill/Bradford, MA, on August 28, 2020 for our 31th Annual Charity Golf Tournament. ...
»Virtual Fragile X Gathering
We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
»Mechanisms and Biomarkers of Sensory Hypersensitivity in the fmr1 Knockout Mouse
This is the second in a series of webinars focused on current topics in Fragile X research. Devin K. Binder, MD, PhD, Professor, University of California at Riverside Medical School and Khaleel Razak, PhD, Professor, University of California at Riverside will present. ...
»Virtual Fragile X Gathering
We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
»GRC Connects: Fragile X and Autism Related Disorders Mentorship Panel
The panel at this GRC Connects event is comprised of a comprehensive group of clinicians, established researchers, and policy makers ready to discuss their own career trajectories and how they envision the future of ASD research and funding. Questions from the audience will be invited and discussion encouraged. ...
July 2020
»Step Up for Fragile X
Join us on Saturday, July 25 at 12 pm Eastern time as we all gather virtually to Step Up for Fragile X. Whether you like to walk, run, bike, dance, or play a sport, every move you make can help spread awareness for Fragile X syndrome. ...
»Landmarks Light Up Fragile X Awareness Day 2020
This year, on Fragile X Awareness Day, a growing number of buildings, bridges, and monuments — including Niagara Falls — will be illuminated in teal to spread the word about Fragile X and celebrate our community. Although we may not be able to gather in groups this year, we still encourage you to briefly visit or drive by lighting displays and share your experience with us. ...
»Yoga Sculpt Fragile X Awareness Fundraiser
Join CorePower Instructor, Taylor Kinnerup, for a fun Yoga Sculpt class to raise awareness and funds for Fragile X research, benefitting the FRAXA Research Foundation. ...
»Virtual Fragile X Gathering
We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
June 2020
»Brain Organoids and Therapeutic Development for Fragile X and Other Rare Diseases
This is the first in a series of webinars focused on current topics in Fragile X research. Alysson Muotri, PhD, Professor, University of California San Diego Stem Cell Program, and Fabio C. Tucci, PhD, Chief Operating Officer and co-founder, Epigen Biosciences, will present. ...
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