Events to Benefit Fragile X Research

Who runs FRAXA fundraisers? Parents, grandparents, brothers, sisters, aunts and uncles, and friends who want a effective treatments and a cure for Fragile X.

We are truly grateful to all the FRAXA Ambassadors and volunteers who run FRAXA fundraisers. Please join us at an event and feel the magic. Or, run your own event. Help get closer to effective treatments and a cure!

July 2020

»Virtual Fragile X Gathering

We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
Thursday, July 9, 2020
7:00 pm - 8:00 pm
Virtual/Online

»Yoga Sculpt Fragile X Awareness Fundraiser

Join CorePower Instructor, Taylor Kinnerup, for a fun Yoga Sculpt class to raise awareness and funds for Fragile X research, benefitting the FRAXA Research Foundation. ...
Saturday, July 18, 2020
12:00 pm - 1:00 pm
Virtual/Online

»Landmarks Light Up Fragile X Awareness Day 2020

This year, on Fragile X Awareness Day, a growing number of buildings, bridges, and monuments — including Niagara Falls — will be illuminated in teal to spread the word about Fragile X and celebrate our community. Although we may not be able to gather in groups this year, we still encourage you to briefly visit or drive by lighting displays and share your experience with us. ...
Wednesday, July 22, 2020

»Step Up for Fragile X

Join us on Saturday, July 25 at 12 pm Eastern time as we all gather virtually to Step Up for Fragile X. Whether you like to walk, run, bike, dance, or play a sport, every move you make can help spread awareness for Fragile X syndrome. ...
Saturday, July 25, 2020
12:00 pm

»16th Annual Fragile X Poker Run – CANCELED

Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
Friday, July 31, 2020 - Sunday, August 2, 2020
Blue Ridge Parkway
14300 NC Hwy 18 South, Laurel Springs, NC 28644
August 2020
September 2020

»FRAXA Biotech Games 2020

FRAXA Biotech Games™ brings together the biotech community to network in a friendly setting, form new relationships and potential collaborations while raising money for a great cause! ...
Thursday, September 10, 2020
Virtual/Online
No event found!

Past Events

June 2020

»Virtual Fragile X Gathering

We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
Tuesday, June 23, 2020
10:00 am - 11:00 am
Virtual/Online

»Virtual Fragile X Gathering

We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...
Thursday, June 11, 2020
7:00 pm - 8:00 pm
Virtual/Online

»Patient Advocacy + Virtual Summit

The Patient Advocacy + summit, organized by Swissnex is a series of workshops to help pharmaceutical executives and life science entrepreneurs understand the important role of patient advocacy in bringing about innovation, and insights for collaborating with nonprofits to accelerate product development for patients with unmet needs. Dave Bjork will be leading one of the workshops to share how FRAXA is collaborating with biopharma companies to advance treatment innovation for Fragile X syndrome.  ...
Tuesday, June 2, 2020
8:30 am - 11:00 am
Virtual/Online
May 2020
Early-round action at PALS 23

»Patrick’s PALS XXIV 3-on-3 Basketball Tournament – CANCELLED

Patrick’s PALS 3-on-3 Basketball Tournament is a 32-team, double elimination event to raise funds for Fragile X research. With four half-courts in constant use, this is the place to be! ...
Saturday, May 30, 2020
8:00 am - 3:00 pm
Buckingham Browne & Nichols School - Nicholas Athletic Center
Gerrys Landing Road, Cambridge, MA, USA

»7th Annual Fragile X Cornhole Tournament – CANCELED

Join us for the 6th Annual FRAXA Cornhole Tournament in Frederick, Maryland hosted by Dan, Jodie, Julianne and Jackson Grove. Dan and Jodie's son Jackson (10) was diagnosed with Fragile X syndrome at the age of 3. ...
Saturday, May 30, 2020
9:00 am
Urbana District Park
Urbana Pike, Frederick, MD, USA
December 2019
2018 Hope for the Holidays

»Hope for the Holidays Gala 2019

Come enjoy an evening with family and friends as The Pierce Family Fragile X Foundation kicks off the season of giving! There will be great food, cocktails, music, silent auction, live auction and raffles for your enjoyment. Make this night part of your holiday traditions! ...
Saturday, December 7, 2019
7:00 pm - 11:00 pm
Cafe Escadrille
26 Cambridge St, Burlington, Massachusetts 01803

»Lighting Up Prudential Tower for Fragile X

Join FRAXA in Boston on Wednesday, December 4 at 4:30pm to raise Fragile X awareness. We are hosting a 'flip the switch' ceremony in the Prudential Center. Dr. Mark Bear, Picower Professor at Massachusetts Institute of Technology (MIT), will speak. Event is free; space is limited. ...
Wednesday, December 4, 2019
4:30 pm - 7:00 pm
Prudential Center Boston
800 Boylston St, Boston, MA 02199
November 2019

»FRAXA Night at the Boston Bruins Game

On Saturday, November 23, help raise funds for Fragile X research when the Boston Bruins host the Minnesota Wild. At each home game, the Boston Bruins Foundation hosts a 50/50 raffle with half the proceeds going to a lucky winner and the other half going to a worthy charity. FRAXA Research Foundation is incredibly fortunate to be the featured charity on November 23 at 7:00 pm. You can buy raffle tickets at the game or, if you are in Massachusetts, online sales will open soon. ...
Saturday, November 23, 2019
7:00 pm
TD Garden
Legends Way, Boston, MA, USA
genes & Gems

»Genes & Gems

Join us for Genes & Gems, Columbus, Ohio, supporting research to find effective treatments and ultimately a cure for Fragile X syndrome. ...
Saturday, November 16, 2019
7:00 pm
Renaissance Columbus Hotel
409 Altair Pkwy, Westerville, OH 43082, USA
September 2019
July 2019

»15th Annual Fragile X Poker Run

Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
Friday, July 26, 2019 - Sunday, July 28, 2019
Blue Ridge Parkway
14300 NC Hwy 18 South, Laurel Springs, NC 28644

»Landmarks Light Up Fragile X Awareness Day

On Fragile X Awareness Day, July 22, 2019, at least 11 buildings, bridges, and monuments -- including Niagara Falls -- will be illuminated in teal to spread the word about Fragile X syndrome. ...
Monday, July 22, 2019
All Day

»Fragile X July Jam

Join us for a Summer evening of fun, while supporting families living with Fragile X syndrome! New Hampshire alone has more than 100 families affected by it! We need research and development for a cure! ...
Monday, July 22, 2019
4:00 pm - 8:00 pm
Sabatino's North Italian Restaurant
1 E Broadway, Derry, NH 03038
Callum Cup

»Callum Cup 2019

The 4th annual Callum Cup is the day before Fragile X Awareness Day! Join us for great competition and great fun while raising funds for Fragile X research. Everyone is welcome to come out and watch the games or stop by St. Jame's Gate Publick House post game to socialize. ...
Sunday, July 21, 2019
9:00 am
Millburn High School
462 Millburn Ave, Millburn, NJ 07041
June 2019

»Princeton Collection 5K Fun Run/Walk

A run/walk that starts from the corner of McKenzie and South Parker Road (at 138 Parker Rd) for just $10 per person. Join us as we raise funds for effective treatments and a cure for Fragile X. ...
Saturday, June 15, 2019
8:00 am - 10:00 am
Corner of McKenzie and South Parker Road
138 Parker Rd, Plainsboro, NJ

»Patrick’s PALS XXIII 3-on-3 Basketball Tournament

Patrick’s PALS 3-on-3 Basketball Tournament is a 32-team, double elimination event to raise funds for Fragile X research. With four half-courts in constant use, the Jack Etter Gymnasium inside the Nicholas Athletic Center at Buckingham Browne & Nichols School in Cambridge is the place to be from 8 am to 3 pm. ...
Saturday, June 1, 2019
8:00 am - 3:00 pm
Buckingham Browne & Nichols School - Nicholas Athletic Center
Gerrys Landing Road, Cambridge, MA, USA

»6th Annual Fragile X Cornhole Tournament

Join us for the 6th Annual FRAXA Cornhole Tournament in Frederick, Maryland hosted by Dan, Jodie, Julianne and Jackson Grove. Dan and Jodie's son Jackson (10) was diagnosed with Fragile X syndrome at the age of 3 and at that time neither them, their friends, family members or local school system knew anything or had even heard about Fragile X. They wanted to help with the awareness efforts and research. As they learned more about FRAXA Research Foundation, they wanted to do all they can to help the amazing efforts in awareness, coping and research towards effective treatment and ultimately a cure! ...
Saturday, June 1, 2019
9:00 am
Urbana District Park
Urbana Pike, Frederick, MD, USA
May 2019
Hall Tournament photo

»30th Annual Charity Golf Tournament

Join us at Portsmouth Country Club in Greenland, NH on May 20, 2019 for our 30th Annual Charity Golf Tournament. ...
Monday, May 20, 2019
8:00 am
Portsmouth Country Club
80 Country Club Lane, Greenland, NH 03840, USA

»Fran for Fragile X CrossFit Workout

Join us for the ultimate Crossfit workout at FRAN for Fragile X. Please register here, and don't forget to choose your Heat time and T-shirt size. ...
Saturday, May 4, 2019
9:30 am - 12:30 pm
Crossfit Scioto
1066 Ridge St, Columbus, Ohio 43215, USA
April 2019

»Dash for Disability 5K Walk/Run

A student-led 5K run/walk to raise money and awareness for Fragile X syndrome at the Asheville School in Asheville, NC. ...
Saturday, April 6, 2019
Asheville School
360 Asheville School Road, Asheville, NC 28806, USA
March 2019
Bowling FRAXA Fragile X Fundraiser

»Bowling for Fragile X Research

For the second year Vanshi Shah is holding a bowling fundraiser in honor of his brother who has Fragile X syndrome. Everyone is invited to bowl with their friends and family while contributing towards Fragile X research to find effective treatments and ultimately a cure. All money raised will go to FRAXA. ...
Saturday, March 23, 2019
11:00 am - 1:00 pm
Woodbridge Bowling Center
346 Main Street, Woodbridge, NJ, USA
December 2018

»Patriots Foundation Honor Kathan Pierce

Kathan has been invited to take part in a special in-game ceremony at the Patriots final regular season home game against the New York Jets on Sunday, December 30, 2018. ...
Sunday, December 30, 2018
1:00 pm
Gillette Stadium
Patriot Place, Foxborough, MA, USA
Hope for the Holidays Gala - Pierce Family Fragile X Foundation

»Hope for the Holidays Gala 2018

Come enjoy an evening with family and friends as The Pierce Family Fragile X Foundation kicks off the season of giving!There will be great food, cocktails, music, silent auction, live auction and raffles for your enjoyment.Make this night part of your holiday traditions! ...
Saturday, December 8, 2018
7:00 pm - 11:55 pm
Cafe Escadrille
26 Cambridge St, Burlington, Massachusetts 01803
No event found!
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