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Past Events
September 2022
8th Annual 5K Walk for Fragile X Syndrome and Raffles
Darlene and Pat are hosting their 8th 5K Walk for Fragile X Syndrome on September 18, 2022 in Derry, NH to raise funds for Fragile X research and increase awareness. ...
August 2022
Callum Cup VI
The 6th annual Callum Cup will be played on Sunday, August, 28, 2022. Join us for great competition and great fun while raising funds for Fragile X research. Everyone is welcome to come out and watch the games or stop by St James Gate in Maplewood post-game to socialize. ...
July 2022
17th Annual Fragile X Poker Run
Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
Flatbread Artisan Pizza Benefit
Join us for a fun evening of eating the Flatbread Company's amazing pizza and raising money for Fragile X research! ...
World Fragile X Day
World Fragile X Day celebrates families impacted by Fragile X and highlights progress of research to find a cure. On World Fragile X Day we shine a light on Fragile X by illuminating monuments and landmarks around the world. We gather with friends and family to celebrate loved ones who shine in the face of Fragile X. ...
June 2022
Patrick’s PALS XXVI
Patrick’s PALS 3-on-3 Basketball Tournament is a 32-team, double elimination event to raise funds for Fragile X research. With four half-courts in constant use, this is the place to be! ...
May 2022
2022 FRAXA Charity Golf Tournament
Join us at the Bradford Country Club in Haverhill/Bradford, MA, on May 27, 2022 for our Annual Charity Golf Tournament. ...
Gordon Research Conference 2022 Fragile X and Autism-Related Disorders
The Gordon Research Seminar on Fragile X and Autism-Related Disorders is a unique forum for graduate students, post-docs, and other scientists with comparable levels of experience and education to present and exchange new data and cutting edge ideas. ...
Gordon Research Seminar 2022 Fragile X and Autism-Related Disorders
The Gordon Research Seminar on Fragile X and Autism-Related Disorders is a unique forum for graduate students, post-docs, and other scientists with comparable levels of experience and education to present and exchange new data and cutting edge ideas. ...
April 2022
Step Up for Fragile X Research 2022
We are creating the Step Up for Fragile X Research Award. This $50,000 grant will fund a research grant that we believe will make a positive difference for our families. We’ve secured $25,000 in matching funds but need to raise another $25,000 to make this vision a reality! ...
Cape Coral Touch-A-Truck 2022
The EHL Fragile X Foundation is proud to share it’s annual Touch-A-Truck event is back! This free, family friendly event is an awesome experience where kids of all ages can explore and ask questions about their favorite vehicles.
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August 2021
Callum Cup V
The 5th annual Callum Cup will be played on Sunday, August, 29, 2021. Join us for great competition and great fun while raising funds for Fragile X research. If you're interested in playing, contact Andrew via email at glasfurd31@gmail.com. Everyone is welcome to come out and watch the games or stop by The Grove in East Brunswick post game to socialize. ...
White, Red, Rose instead. Lisa’s Wine Fundraiser
An ongoing ONEHOPE fundraiser aimed at sharing wine while giving hope with 10% of purchases donated to FRAXA. ...
July 2021
16th Annual Fragile X Poker Run
Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...
July 2020
Landmarks Light Up Fragile X Awareness Day 2020
This year, on Fragile X Awareness Day, a growing number of buildings, bridges, and monuments — including Niagara Falls — will be illuminated in teal to spread the word about Fragile X and celebrate our community. Although we may not be able to gather in groups this year, we still encourage you to briefly visit or drive by lighting displays and share your experience with us. ...
July 2019
Fragile X July Jam
Join us for a Summer evening of fun, while supporting families living with Fragile X syndrome! New Hampshire alone has more than 100 families affected by it! We need research and development for a cure! ...
June 2019
6th Annual Fragile X Cornhole Tournament
Join us for the 6th Annual FRAXA Cornhole Tournament in Frederick, Maryland hosted by Dan, Jodie, Julianne and Jackson Grove. Dan and Jodie's son Jackson (10) was diagnosed with Fragile X syndrome at the age of 3 and at that time neither them, their friends, family members or local school system knew anything or had even heard about Fragile X. They wanted to help with the awareness efforts and research. As they learned more about FRAXA Research Foundation, they wanted to do all they can to help the amazing efforts in awareness, coping and research towards effective treatment and ultimately a cure! ...
October 2018
Chicago Marathon run in Honor of James
Gail O'Mara is running the 2018 Chicago Marathon to recognize and honor the efforts of her delightful grandson James, who with undaunted spirit has met the challenges of living with Fragile X. ...
August 2018
Pottery Fundraiser Opening Reception
Sally Ann Endleman will be exhibiting her pottery for the entire month of August, with an opening reception on August 9 from 5 pm to 7 pm. Several of her one of a kind pieces will be on display and for sale. She will also be holding a fundraiser for FRAXA: a selection of pottery will be gifted to individuals contributing to this cause. ...
July 2018
Niagara Falls to go Teal for Fragile X Awareness
FRAXA is proud to announce that the Niagara Falls Illumination Board will light up Niagara Falls in teal on Fragile X Awareness Day, July 22, 2018!
What a great way to shine a bright light on Fragile X research at such an iconic place. Spread the word, and if you will be in the Buffalo/Niagara Falls area, we want you to come to this event and take lots of photos!! The lighting of the falls in teal will take place July 22 at 10pm. ...
Fragile X Awareness at NYSE
Fragile X Awareness front and center at the New York ...
Swamp Donkey Burgers Raise Funding and Awareness
The Buck Snort restaurant and sports bar will be donating ...
April 2018
Dash for Bash!
Like other boys with Fragile X syndrome, Bash is hoping for an effective treatment and ultimately a cure. I am hoping to assist in this research by running my first marathon on April 8, 2018. Please sponsor me to fund research through the FRAXA Research Foundation. ...
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