Events to Benefit Fragile X Research

Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...

Join us on Saturday, July 25 at 12 pm Eastern time as we all gather virtually to Step Up for Fragile X. Whether you like to walk, run, bike, dance, or play a sport, every move you make can help spread awareness for Fragile X syndrome. ...

This year, on Fragile X Awareness Day, a growing number of buildings, bridges, and monuments — including Niagara Falls — will be illuminated in teal to spread the word about Fragile X and celebrate our community. Although we may not be able to gather in groups this year, we still encourage you to briefly visit or drive by lighting displays and share your experience with us. ...

Join CorePower Instructor, Taylor Kinnerup, for a fun Yoga Sculpt class to raise awareness and funds for Fragile X research, benefitting the FRAXA Research Foundation. ...

We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...

This is the first in a series of webinars focused on current topics in Fragile X research. Alysson Muotri, PhD, Professor, University of California San Diego Stem Cell Program, and Fabio C. Tucci, PhD, Chief Operating Officer and co-founder, Epigen Biosciences, will present. ...

We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...

We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon! ...

The Patient Advocacy + summit, organized by Swissnex is a series of workshops to help pharmaceutical executives and life science entrepreneurs understand the important role of patient advocacy in bringing about innovation, and insights for collaborating with nonprofits to accelerate product development for patients with unmet needs. Dave Bjork will be leading one of the workshops to share how FRAXA is collaborating with biopharma companies to advance treatment innovation for Fragile X syndrome.  ...

Patrick’s PALS 3-on-3 Basketball Tournament is a 32-team, double elimination event to raise funds for Fragile X research. With four half-courts in constant use, this is the place to be! ...

Join us for the 6th Annual FRAXA Cornhole Tournament in Frederick, Maryland hosted by Dan, Jodie, Julianne and Jackson Grove. Dan and Jodie's son Jackson (10) was diagnosed with Fragile X syndrome at the age of 3. ...

Come enjoy an evening with family and friends as The Pierce Family Fragile X Foundation kicks off the season of giving! There will be great food, cocktails, music, silent auction, live auction and raffles for your enjoyment. Make this night part of your holiday traditions! ...

Join FRAXA in Boston on Wednesday, December 4 at 4:30pm to raise Fragile X awareness. We are hosting a 'flip the switch' ceremony in the Prudential Center. Dr. Mark Bear, Picower Professor at Massachusetts Institute of Technology (MIT), will speak. Event is free; space is limited. ...

On Saturday, November 23, help raise funds for Fragile X research when the Boston Bruins host the Minnesota Wild. At each home game, the Boston Bruins Foundation hosts a 50/50 raffle with half the proceeds going to a lucky winner and the other half going to a worthy charity. FRAXA Research Foundation is incredibly fortunate to be the featured charity on November 23 at 7:00 pm. You can buy raffle tickets at the game or, if you are in Massachusetts, online sales will open soon. ...

Join us for Genes & Gems, Columbus, Ohio, supporting research to find effective treatments and ultimately a cure for Fragile X syndrome. ...

Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way. ...

On Fragile X Awareness Day, July 22, 2019, at least 11 buildings, bridges, and monuments -- including Niagara Falls -- will be illuminated in teal to spread the word about Fragile X syndrome. ...

Join us for a Summer evening of fun, while supporting families living with Fragile X syndrome! New Hampshire alone has more than 100 families affected by it! We need research and development for a cure! ...

The 4th annual Callum Cup is the day before Fragile X Awareness Day! Join us for great competition and great fun while raising funds for Fragile X research. Everyone is welcome to come out and watch the games or stop by St. Jame's Gate Publick House post game to socialize. ...

A run/walk that starts from the corner of McKenzie and South Parker Road (at 138 Parker Rd) for just $10 per person. Join us as we raise funds for effective treatments and a cure for Fragile X. ...

Patrick’s PALS 3-on-3 Basketball Tournament is a 32-team, double elimination event to raise funds for Fragile X research. With four half-courts in constant use, the Jack Etter Gymnasium inside the Nicholas Athletic Center at Buckingham Browne & Nichols School in Cambridge is the place to be from 8 am to 3 pm. ...

Join us for the 6th Annual FRAXA Cornhole Tournament in Frederick, Maryland hosted by Dan, Jodie, Julianne and Jackson Grove. Dan and Jodie's son Jackson (10) was diagnosed with Fragile X syndrome at the age of 3 and at that time neither them, their friends, family members or local school system knew anything or had even heard about Fragile X. They wanted to help with the awareness efforts and research. As they learned more about FRAXA Research Foundation, they wanted to do all they can to help the amazing efforts in awareness, coping and research towards effective treatment and ultimately a cure! ...

Join us at Portsmouth Country Club in Greenland, NH on May 20, 2019 for our 30th Annual Charity Golf Tournament. ...

Join us for the ultimate Crossfit workout at FRAN for Fragile X. Please register here, and don't forget to choose your Heat time and T-shirt size. ...