FRAXA Volunteer Ambassadors

Who are FRAXA Ambassadors?

FRAXA Ambassadors are volunteers who represent FRAXA Research Foundation in their communities. Our ambassadors are leaders who help us share the latest information about Fragile X syndrome and research to find effective treatments and ultimately a cure. They advance FRAXA’s mission by helping with our fundraising efforts and building our community of families and friends. They also serve as local Fragile X contacts for families in their community to connect with and to share treatment approaches, behavior strategies, and other support services in their areas.

How to Become a FRAXA Ambassador

Alabama – Candice Scott Phone: (256) 845-9921   Email:  candiceandwarren@me.com

California – FRAXA Bay Area   Dean and Stefanie Clark  Phone: (925) 989-1567   Email: djclark@yahoo.com

Colorado – Denver Area Laura Ayres  Phone: (303) 770-2914  Email: denverfragilex@gmail.com

District of Columbia – Washington, DC   Ellen Skala   Email: eskala@gmail.com or Mary Beth Busby  phone: (202) 462-2323   Email: mbbbusby@gmail.com

Delaware – Jen Nardo   Phone: (302) 234-7854  Email: jen9612@aol.com

Florida – Ft. Lauderdale Ashley Falk  Phone: (954) 257-4322   Email: grad19@aol.com

Florida – Southwest  Debbie White    Phone: (603) 770-8907   Email: debw03841@yahoo.com

Georgia – Patty Cosey   Phone: (229) 244-9688    Email: pwcosey@bellsouth.net

Kansas – Angie Grantman    Overland Park, KS 66213   Email: KSFRAXA@gmail.com

Kentucky – Louisville Ann and Lou Chaconas   Phone: (502) 254-9210   Email: alchaconas@insightbb.com

Massachusetts – FRAXA Headquarters Dave Bjork  10 Prince Place, Suite 203,   Newburyport, MA 01950 Phone: (978) 462-1866   Email: dbjork@fraxa.org

Michigan – Southwest Wendy Dillworth   Richland, MI   Phone: (269) 629-5890   Email: COMPOSE12@gmail.com

Michigan – Southeast/Detroit  Sally Nantais   Phone: (734) 282-7910   Email: sallyn423@wyan.org

New Jersey Kira and Denis Shmuler   Florham Park, NJ 07932 Phone: (973) 520-8511   Email: shmuler@optonline.net

New York – FRAXA Brooklyn Elaine Stillerman   Email: estiller24@gmail.com

New York – FRAXA Manhattan Debbie Stevenson   Phone: (212) 828-1883   Email: StevensonD@vss.com

New York – FRAXA Hudson Valley Ron and Amy Watkins   Phone: (845) 797-0846   Email: rwatkins@fraxa.org

Dakotas & Minnesota  Jessica Haugen    Email: jessicahaugen@hotmail.com

Ohio – Cleveland Leslie Bagdasarian     Phone: (440) 519-1517   Website: fragilexohio.org/    Email: lesliebag@roadrunner.com

Ohio – FRAXA Columbus Judith Maloney     Phone: (614) 439-5031   Email: clanmaloney5@gmail.com

Ohio – FRAXA Cincinnati Melissa Healey Phone: (513) 739-8398   Email: mcdarcy22@yahoo.com

Pennsylvania – Philadelphia Cristy Hollin   Phone: (484) 686-9595   Email: cbhollin@yahoo.com

Texas – Austin Claudia Burnett   Phone: (512) 415-9191   Email: campburnett@gmail.com

Texas – Dallas/Plano David Sturgell   Phone: (972) 599-0573   Email: david@sturgells.com

Washington State Laurie and Kurtis Bowler    Email: rainiercrossfit@comcast.net