Events to Benefit Fragile X Research

Who runs FRAXA fundraisers? Parents, grandparents, brothers, sisters, aunts and uncles, and friends who want a effective treatments and a cure for Fragile X.

We are truly grateful to all the FRAXA Ambassadors and volunteers who run FRAXA fundraisers. Please join us at an event and feel the magic. Or, run your own event. Help get closer to effective treatments and a cure!

July 2024

Silicon Valley Sunshine Interact Club Fragile X Fundraiser

The Silicon Valley Sunshine Interact Club is hosting a fundraising event in celebration of World Fragile X Day, aiming to raise funds and awareness for Fragile X and the research being conducted on it. We are offering a webinar on July 14th at 2 PM PST with Katie Clapp, the founder of FRAXA. We will host booths at local Palo Alto farmers' markets the weekend before World Fragile X Day.

Sat - Sun, Jul 20 - 21, 2024
8:00 am - 1:00 pm
Palo Alto Farmers Markets

World Fragile X Day

World Fragile X Day celebrates families impacted by Fragile X and highlights progress of research to find a cure. On World Fragile X Day we shine a light on Fragile X by illuminating monuments and landmarks around the world. We gather with friends and family to celebrate loved ones who shine in the face of Fragile X.

Mon, Jul 22, 2024

Fragile X Syndrome: The Anxious Brain

Please join Carrie Buchanan, MD, Fragile X Program Director at Greenwood Genetic Center, for a webinar on World Fragile X Day, July 22, 2024, at 11 AM ET. She will discuss how individuals with Fragile X experience high levels of anxiety, which can manifest in many different ways.

Mon, Jul 22, 2024
11:00 am - 12:00 pm
Virtual/Online
August 2024

19th Annual Fragile X Poker Run

Ride the scenic Blue Ridge Parkway over 3 states on beautiful mountain roads, highlighted by an 8-9 mile stretch famously known as "The Snake" (US 421), raising funds for Fragile X research along the way.

Fri - Sun, Aug 2 - 4, 2024
8:00 am - 6:00 pm
Alleghany Inn
Alleghany Inn, Sparta, NC 28675
September 2024

JT’s Family Fun Night for Fragile X 2024

Please join us for a Family Fun Night for Fragile X on Saturday, September 14 at the Sardina Dental Group. Stop by anytime 4pm-7pm that day. We will have Carmel Apple Dipping, Face Painting, Fox Meadows Ice Cream, Bounce House, Lawn Games, Raffles and more!

Sat, Sep 14, 2024
4:00 pm - 7:00 pm
Sardina Dental Group
405 Main Street, Landisville, PA 17538
No event found!

Past Events

July 2024

Silicon Valley Sunshine Interact Club Fragile X Fundraiser

The Silicon Valley Sunshine Interact Club is hosting a fundraising event in celebration of World Fragile X Day, aiming to raise funds and awareness for Fragile X and the research being conducted on it. We are offering a webinar on July 14th at 2 PM PST with Katie Clapp, the founder of FRAXA. We will host booths at local Palo Alto farmers' markets the weekend before World Fragile X Day.

Jul 20 - 21, 2024
8:00 am - 1:00 pm
Palo Alto Farmers Markets
June 2024
Patrick's PALS XXII

Patrick’s PALS 28th Annual 3-on-3 Basketball Tournament & Community Celebration

Join Patrick's PALS 3-on-3 basketball tournament and showcase your skills on the court while supporting a great cause! The annual tournament brings together basketball enthusiasts of all ages for a day of fun and friendly competition, with all proceeds going to benefit FRAXA Research Foundation's mission to find effective treatments and ultimately a cure for Fragile X syndrome. New This Year: Patrick's PALS is expanding the day for those not interested in playing or watching basketball.

Jun 1, 2024
8:00 am - 3:00 pm
the TRACK at new balance
91 Guest St, Boston, MA 02135
May 2024

2024 FRAXA Charity Golf Tournament

Join us at the Bradford Country Club in Haverhill/Bradford, MA, on May 24, 2024 for our Annual Charity Golf Tournament.

May 24, 2024
8:00 am - 6:00 pm
Bradford Country Club
201 Chadwick Rd, Haverhill, MA 01835

FRAXA Research Q&A Webinar

Please join FRAXA co-founders, Katie Clapp and Dr. Michael Tranfaglia, for a Research Q&A via Zoom on Thursday, May 23, 2024 at 12:00 pm (noon) ET

May 23, 2024
12:00 pm - 1:00 pm

Gordon Research Conference 2024 Fragile X and Autism-Related Disorders

The Gordon Research Seminar on Fragile X and Autism-Related Disorders is a unique forum for graduate students, post-docs, and other scientists with comparable levels of experience and education to present and exchange new data and cutting edge ideas.

May 12 - 17, 2024
Renaissance Tuscany Il Ciocco
Via Giovanni Pascoli, Lucca (Barga), Italy

Gordon Research Seminar 2024 Fragile X and Autism-Related Disorders

The Gordon Research Seminar on Fragile X and Autism-Related Disorders is a unique forum for graduate students, post-docs, and other scientists with comparable levels of experience and education to present and exchange new data and cutting edge ideas.

May 11 - 12, 2024
Renaissance Tuscany Il Ciocco
Via Giovanni Pascoli, Lucca (Barga), Italy
July 2023

World Fragile X Day Twitch Stream with Zae

Hey, gaming fam! Check out an insane Twitch stream fundraiser hosted by Zae for World Fragile X Day! From July 22-24, 8pm to midnight EST, Zae will be grinding through Monster Hunter: World (Iceborne DLC), Overwatch 2, Valorant, Pokemon Heartgold,

Jul 22 - 24, 2023
Virtual/Online

World Fragile X Day

World Fragile X Day celebrates families impacted by Fragile X and highlights progress of research to find a cure. On World Fragile X Day we shine a light on Fragile X by illuminating monuments and landmarks around the world. We gather with friends and family to celebrate loved ones who shine in the face of Fragile X.

Jul 22, 2023
April 2023

Cape Coral Touch-A-Truck 2023

This is a family-friendly event hosted by the EHL Fragile X Foundation where kids of all ages can explore and ask questions about their favorite vehicles such as Cape Coral Rescue Fire Truck, Lee County Emergency Medical Ambulance, Cape Coral Police BMW Motorcycles, and the Florida Forestry Swamp Buggy to name a few.

Apr 1, 2023
9:00 am - 3:00 pm
Lafayette Street
Lafayette Street, Cape Coral, FL
March 2023

10th Annual 5K for Fragile X

Join the Fragile X Association of Southern California on Saturday, March 11, 2023 for the 10th Annual 5K Walk/Race for Fragile X and celebrate our Southern California Fragile X Community!

Mar 11, 2023
9:00 am
Frank G. Bonelli Regional Park
120 E Via Verde Dr, San Dimas, CA 91773
September 2022

8th Annual 5K Walk for Fragile X Syndrome and Raffles

Darlene and Pat are hosting their 8th 5K Walk for Fragile X Syndrome on September 18, 2022 in Derry, NH to raise funds for Fragile X research and increase awareness.

Sep 18, 2022
8:30 am - 12:00 pm
Derry Rail Trail at Sabatino's North Italian Restaurant
1 E Broadway, Derry, NH 03038
August 2022

Callum Cup VI

The 6th annual Callum Cup will be played on Sunday, August, 28, 2022. Join us for great competition and great fun while raising funds for Fragile X research. Everyone is welcome to come out and watch the games or stop by St James Gate in Maplewood post-game to socialize.

Aug 28, 2022
9:00 am
Millburn Library Field
Library Field, Millburn, NJ
July 2022

Flatbread Artisan Pizza Benefit

Join us for a fun evening of eating the Flatbread Company's amazing pizza and raising money for Fragile X research!

Jul 26, 2022
5:00 pm - 9:00 pm
Flatbread Pizza
5 Market Square, Amesbury, MA 01913
June 2019

6th Annual Fragile X Cornhole Tournament

Join us for the 6th Annual FRAXA Cornhole Tournament in Frederick, Maryland hosted by Dan, Jodie, Julianne and Jackson Grove. Dan and Jodie's son Jackson (10) was diagnosed with Fragile X syndrome at the age of 3 and at that time neither them, their friends, family members or local school system knew anything or had even heard about Fragile X. They wanted to help with the awareness efforts and research. As they learned more about FRAXA Research Foundation, they wanted to do all they can to help the amazing efforts in awareness, coping and research towards effective treatment and ultimately a cure!

Jun 1, 2019
9:00 am
Urbana District Park
Urbana Pike, Frederick, MD, USA
October 2018

Chicago Marathon run in Honor of James

Gail O'Mara is running the 2018 Chicago Marathon to recognize and honor the efforts of her delightful grandson James, who with undaunted spirit has met the challenges of living with Fragile X.

Oct 7, 2018
9:30 am
Chicago Marathon
Chicago, Illinois, USA
August 2018

Pottery Fundraiser Opening Reception

Sally Ann Endleman will be exhibiting her pottery for the entire month of August, with an opening reception on August 9 from 5 pm to 7 pm. Several of her one of a kind pieces will be on display and for sale. She will also be holding a fundraiser for FRAXA: a selection of pottery will be gifted to individuals contributing to this cause.

Aug 9, 2018
5:00 pm - 7:00 pm
Case Memorial Library
176 Tyler City Rd, Orange, CT, USA
April 2018

Dash for Bash!

Like other boys with Fragile X syndrome, Bash is hoping for an effective treatment and ultimately a cure. I am hoping to assist in this research by running my first marathon on April 8, 2018. Please sponsor me to fund research through the FRAXA Research Foundation.

Apr 8, 2018
CHEAP Marathon
Salisbury, MA
No event found!