Holly Roos

Together for a Brighter Future: Celebrating the 5th World Fragile X Day

April 17, 2025

Celebrate the 5th World Fragile X Day on July 22! Landmarks worldwide will shine teal to raise awareness and support Fragile X families.

19th Annual Fragile X Poker Run Raises $33,000 for Fragile X Research!

November 22, 2024

The 19th Annual Fragile X Poker Run, hosted by Jimmy, Dana & Mikey Charlton, brought friends & family together in Sparta, NC.

World Fragile X Day 2024: A Global Celebration of Awareness and Research Progress

August 12, 2024

Recap of World Fragile X Day 2024, a global event spearheaded by FRAXA. Explore beautiful photos of landmark illuminations around the world.

Hole-in-One for Fragile X Research: Highlights from the 37th Annual Charity Golf Tournament

July 26, 2024

The Hall family’s golf tournament raised $35,000 for Fragile X research—bringing their total contributions to over $327,000 for FRAXA!

Reactivating the Fragile X Gene in Young Mice Reverses Symptoms

December 28, 2021

A new FRAXA-funded research project offers hope that Fragile X syndrome could be treated by reactivating the gene which is shut down in people with the syndrome. Researchers at the University of California, Riverside report that they were able to reduce FXS symptoms by inserting the FMR1 gene into the brains of very young mice.

New Fragile X Clinical Trial Announced by Healx

October 21, 2021

Healx’s AI-driven approach makes finding the right combination therapies more efficient, cost-effective, and rapidly ready for testing at FRAXA-DVI. It was this process that has brought Healx to its recent announcement sharing that it has received Investigational New Drug (IND) approval from the US Food and Drug Administration (FDA) for the Phase 2a clinical study of HLX-0201 (sulindac, an FDA-approved drug).

Correcting the Brain’s Emotional Memory Center

October 19, 2021

FRAXA Investigator Dr. Sumatra Chattarji investigated the synaptic basis of deficient conditioned fear and its reversal in Fragile X syndrome rats. Results published.

Brain Organoids, Moving Fragile X Research Forward

September 9, 2021

FRAXA-funded scientists at Emory created human brain organoids that reveal Fragile X changes more clearly than mouse models, opening new paths to targeted treatments.

Promising Results of Preclinical Study of ANAVEX®2-73

August 26, 2021

We are excited to share that Anavex Life Sciences announced today that preclinical data of the ANAVEX®2-73 (blarcamesine) study in Fragile X syndrome were published in the peer-reviewed journal, Scientific Reports.

Synaptogenix Announced Intention to Launch a Fragile X Clinical Trial with Bryostatin

August 6, 2021

Bryostatin research has advanced from mouse models to human trials. Synaptogenix and Nemours make plans to test this potential treatment in Fragile X clinical trials.