How to Become a FRAXA Ambassador

FRAXA Research Foundation is a parent-run organization with no government funding. Our strength comes from volunteer families and friends worldwide. Our FRAXA Ambassadors play a vital role advancing our mission by raising Fragile X awareness, building our community of families and friends, and helping with our fundraising efforts. With your help we can do much more! Do as much as you can below to help raise awareness and funding for the great work that FRAXA does to accelerate Fragile X Research.

Join our Newsletter Mailing List

Sign up for our Fragile X newsletter of updates about discoveries, clinical trials, events, and general Fragile X news. This will help keep you up to date on what’s happening at FRAXA and you can help spread the word about the impact we’re making. We typically send 1-2 emails per month.


Follow us on Social Media

We post regularly on Facebook, Twitter and Instagram. Follow us and share with your personal community of family, friends and colleagues.

Join Our Ambassadors Online Listing

We have an interactive map listing all of our FRAXA Volunteer Ambassadors. Email your information to us as you would like it to appear. You can expect to receive some calls or emails from newly diagnosed families in your area as time goes on.

Distribute FRAXA Materials

We can send you a supply of information for people who might contact you — brochures, articles, and more. You can download and print our brochure. FRAXA also has wristbands, magnets, information cards, original art holiday cards, and more in the FRAXA Shop.

Raise Fragile X Awareness

FRAXA Ambassadors offer support and information to local families affected by Fragile X and help raise awareness of Fragile X in general. How about a local newspaper article? Or an event? We have ideas to get you started, check out Run Your Own Event, Personal Campaigns and our current Events calendar.

We're Here to Help!

For more information, contact Elle Skala or call us at (978) 462-1866.