Lucas Turned 21, Yet Not Much has Changed – Clark Family Campaign

Lucas Turned 21, Yet Not Much has Changed – Clark Family Campaign

Lucas turned 21 this year, a fun milestone for most young adults, but not as eventful for someone with Fragile X syndrome. Lucas still prefers isolation in his room, fast-forwarding and rewinding to his favorite spots in his DVD collection, doing the same for YouTube videos on the internet, and his favorite internet pastime: shopping for die-cast toy cars and trucks.

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Fragile X Farm Life is Taylor’s World – Stevenson Family Campaign

Fragile X Farm Life is Taylor’s World – Stevenson Family Campaign

Our world was turned upside down when Taylor was diagnosed at age 2 with Fragile X syndrome. We are thrilled that Taylor is busy, safe, happy and well cared for, living the simple farm life, though 22 years ago this was not the path we had envisioned for him. As a true apple lover, we’ve heard Taylor will pick an apple and give it a kiss before placing it in a basket. He’s also known as “the best chicken man there” as he is one of the few residents not afraid to go boldly into the coop and take the eggs from the chickens.

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Elle’s Head Shaving for Fragile X!

Elle’s Head Shaving for Fragile X!

This fundraiser is unique to me because I am doing something HUGE if I meet my goal of $10,000 by my birthday. I will be shaving my head, completely bald, if I meet my goal. For those of you who know me, my hair is a huge part of my identity. It has always been a part of who I am and has helped distinguish me from other people. Seriously, my grandmother could find me in a crowd because of my hair. Just like my hair is a part of my identity, Fragile X is a part of Ryan’s. I want to honor the person that he is through this fundraiser – the person I hope you all get to meet someday.

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Lincoln Bryant’s FRAXA Campaign

Lincoln Bryant’s FRAXA Campaign

A few months ago we opted to do genetic testing on Lincoln to see if there was an underlying reason for his developmental delays. He was diagnosed with Fragile X syndrome. Like so many people when they first get this diagnosis, we were sad and scared for him and his future. I had a lot of confusion and once I got on the internet I was able to find FRAXA Research Foundation and answers to a lot of my questions.

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Crafts for a Cure for Fragile X Syndrome

Crafts for a Cure for Fragile X Syndrome
Handmade Magic In a far away land, the family and friends of eleven-year-old Makenzie Cote are as busy as Santa’s elves. A team of mothers, fathers, sisters, mother-in-laws, father-in-laws and friends are hard at work creating magic: handmade jewelry, hangers, wine bags, pot holders, dishcloths, slippers, greeting cards, nightlights and dolls. The operation in Canada runs as smoothly as the North Pole workshop, an assembly line of sorts, with each worker assigned a specific task, including the delivery and transport. This committed team is a labor of love, all in the name of Makenzie and finding treatments and ultimately a cure for Fragile X Syndrome. Fragile X Syndrome Makenzie was diagnosed when she was 16 months old, after her parents Dany and Josee began noticing delays in her development. Since that time, Makenzie has received special educational services and a multitude of therapies including physical, speech and occupational. Today Makenzie isRead more