Dave Bjork, Author at Fragile X Research - FRAXA Research Foundation

FRAXA Biotech Games™ – Broadening the Base for Fragile X Research

Dave Bjork Events May 23, 2018June 14, 2018

We are proud to announce that the First Annual FRAXA Biotech Games™ are coming to Boston in September 2018. This event is a “friendly” competition between leading biotech companies in greater Boston in a series of back yard lawn games including Cornhole, KanJam, Bucketball and Ladder golf. The event will take place on the campus of Massachusetts Institute of Technology (MIT) and funds raised will support a FRAXA fragile X research grant to the lab of Dr. Mark Bear at the MIT Picower Institute.

Takeaways from Fragile X Advocacy Day

Dave Bjork Community March 29, 2018June 18, 2018AstraZeneca, AZD7325, cancer, CRISPR, FDA, Pierce Family Fragile X Foundation

In the first week of March I attended my first Fragile X Advocacy Day to meet with many of the Massachusetts delegation to Congress. While this was my first time advocating for fragile X research, I’ve been a longtime lung cancer research advocate and have met with many of the same representatives in the past. It was a pleasure to meet with many of the families as my participation in Advocacy Day was in the spirit of “we are all in this together”.

FRAXA Research Grants Drive Big Investments in Fragile X

Dave Bjork Anita Bhattacharyya, PhD, Clinton E. Canal, PhD, Leonard Kaczmarek, PhD, Research Updates, Zhao, Xinyu March 28, 2018June 18, 2018Autifony Therapeutics, FRAXA-DVI, Fulcrum Therapeutics, serotonin, sound

Most people know that FRAXA supports academic research at many institutions such as Harvard University, University of Pennsylvania, Massachusetts Institute of Technology, and Yale University. However, FRAXA is also working with more than 30 pharmaceutical companies around the world. Mike spends a lot of his time advising and collaborating with industry partners.

Impact of the Fragile X Community

Dave Bjork Craig Erickson, MD, Events Recap, FRAXA Updates, Joel Richter, PhD, Kimberly Huber, PhD, Warren, Stephen February 2, 2018June 18, 2018cancer, hyperexcitability

At FRAXA Research Foundation, we are truly grateful for our fragile X community and thousands of donors. We couldn’t keep moving the ball forward in research without your support. Each year FRAXA invests over $1 million in fragile X research thanks to your support. Because we supported these three researchers, we were able to secure another $35 million in research aimed at identifying clinical trial outcome measures that will lead to human trials of promising treatments for those affected by fragile X.