Finding a Cure for Fragile X
As many of you might have guessed, the 2020 FRAXA Biotech Games had to shift this year to a virtual event. However, the commitment was still there. Throughout the month of September, 39 teams of 4 took time out of their busy schedules to come together every Thursday to connect and show their support for Fragile X research.
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Each year the Boston Prudential Center hosts a 31 Nights of Light event throughout the month of December. Each night, a different charity is selected and invited to the Center to raise awareness for their cause. This year, FRAXA Research Foundation was selected as one of the charities!
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FRAXA Program Coordinator, Elle Skala, and long time FRAXA supporter and previous Board Member, Mary Beth Busby, traveled to the National Institutes of Health earlier this week. The timing of this meeting was perfect because the National Institutes of Health (NIH) just released their long-anticipated Strategic Plan for Fragile X Syndrome, FXTAS, and FXPOI. It will guide federal Fragile X research funding for at least the next five years and open the door for continued funding of the Fragile X Research Centers of Excellence.
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As we get closer to the holiday season and the end of the year approaches, we start to reflect on what we have accomplished throughout the year. Did we keep our New Year’s Resolution? Did we spend more time with family and friends? We at FRAXA want to remind you that there is no better time than the present to make a difference. Before the year ends, you can have an impact.
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