Elle Skala, Author at Fragile X Research - FRAXA Research Foundation

31 Nights of Light with FRAXA Research Foundation

Elle Skala Events Recap December 23, 2019December 27, 2019

Each year the Boston Prudential Center hosts a 31 Nights of Light event throughout the month of December. Each night, a different charity is selected and invited to the Center to raise awareness for their cause. This year, FRAXA Research Foundation was selected as one of the charities!

National Institutes of Health Releases Fragile X Strategic Plan

Elle Skala Advocacy • FRAXA Updates November 15, 2019January 20, 2020FXPOI, FXTAS, NIH

FRAXA Program Coordinator, Elle Skala, and long time FRAXA supporter and previous Board Member, Mary Beth Busby, traveled to the National Institutes of Health earlier this week. The timing of this meeting was perfect because the National Institutes of Health (NIH) just released their long-anticipated Strategic Plan for Fragile X Syndrome, FXTAS, and FXPOI. It will guide federal Fragile X research funding for at least the next five years and open the door for continued funding of the Fragile X Research Centers of Excellence.

Elle Skala, Tracy King, Christie Rogers, Mary Beth Busby

A Personal Touch to Supporting Fragile X Research

Elle Skala FRAXA Updates October 30, 2019

As we get closer to the holiday season and the end of the year approaches, we start to reflect on what we have accomplished throughout the year. Did we keep our New Year’s Resolution? Did we spend more time with family and friends? We at FRAXA want to remind you that there is no better time than the present to make a difference. Before the year ends, you can have an impact.