Every year on July 22, FRAXA Research Foundation and partners celebrate World Fragile X Day with communities around the world. Join Us!
World Fragile X Day (WFXD) celebrates families impacted by Fragile X syndrome and highlights advancements of research to find effective treatments and ultimately a cure. On World Fragile X Day we shine a light on Fragile X by illuminating monuments and landmarks around the world. We gather with friends and family to celebrate loved ones who shine in the face of Fragile X. FRAXA launched World Fragile X Day in 2021 uniting Fragile X families and organizations all around the world.
Join the Illumination Team!
Each year volunteers reach out to landmarks, buildings, bridges, and more to help Shine a Light on Fragile X. You can be a part of this process to build our impact each year. As part of the illumination team, you will get locations for outreach, sample emails, and details for reaching out. You can reach out to as few or as many locations as you would like in your city, state, or internationally.
World Fragile X Day Proclamation
You can reach out to your local Mayor or to your state Governor to request a World Fragile X Day proclamation. This is an easy and powerful way to bring awareness to Fragile X. We will provide you with a Proclamation Toolkit which includes wording for proclamations on each level, outreach information, and press releases for after the proclamation is confirmed.