Objective measures can be measured consistently. Examples are heart rate, eye blink rate, or counting how many times a person can catch a ball tossed from 3 feet away.
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- Fragile X Research: 3 Areas of FocusFRAXA Research Foundation is and always has been singularly focused on research to find effective treatments and ultimately a cure for Fragile X syndrome. Everything we do each day is centered on this mission. Our goal is to get treatments to families that will improve the lives of those we love affected by Fragile X. We want to share our current research priorities and explain why we continue to need your support.
- Recruiting: Clinical Study of Non-Invasive EEG for Children Ages 2-7Dr. Carol Wilkinson, MD PhD, and Dr. Charles Nelson, PhD, at Boston Children’s Hospital are recruiting children ages 2-7 years with Fragile X syndrome to participate in a study of brain differences using non-invasive EEG.
- Overcoming the Placebo Effect in Fragile X Clinical TrialsIn a placebo-controlled clinical trial, some participants are given an experimental medication, while others are given a placebo. Participants do not know whether they are taking medicine or placebo. In theory, this can allow researchers to rule out the placebo effect by comparing outcomes among the two groups. But, per Wexler (2020) “having a strong placebo effect can obscure any real effect of the therapy being investigated”.
- Alternative Splicing in White Blood Cells: A Biomarker for Fragile X SyndromeExplore groundbreaking research by the University of Massachusetts Medical School and Rush University Medical Center on alternative splicing in white blood cells as a biomarker for Fragile X syndrome, paving the way for personalized treatment optimization through a non-invasive blood test.