Fragile X Advocacy
FRAXA has experience working with Congress and building relationships with government agencies to advocate for funding of Fragile X research. We invite families interested getting involved as advocates to join us. Advocates can help by becoming knowledgeable about the status of Fragile X research and contacting their representatives to voice support for Fragile X research programs. Advocates can also meet with representatives in Washington, DC or their offices in home districts.
Fragile X Advocacy Opportunities & Updates
Contacting Your Member of Congress to Advocate for Fragile X Research
A quick guide to contacting Congress for Fragile X advocacy—includes tips, recommendations, and how to look up your senators and representatives.
Takeaways from Fragile X Advocacy Day
At my first Fragile X Advocacy Day, I met with Congress and families, advocating together for research and hope.
NIH Awards $35 Million to Three Fragile X Research Teams
NIH is investing $35M in three Fragile X Research Centers. All teams have been funded by FRAXA and will now receive over $2M annually for five years.
FRAXA Invited to The White House, Celebrating The Children’s Health Act
Katie Clapp and Mary Beth & David Busby attended a White House ceremony celebrating the Children’s Health Act, boosting federal Fragile X research funding.
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