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Fragile X Research – FRAXA Research Foundation

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FRAXA Funded Research

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Nelson, Charles A.

Recruiting: Clinical Study of Non-Invasive EEG for Children Ages 2-7

FRAXA Research Foundation March 5, 2022January 26, 2023

Dr. Carol Wilkinson, MD PhD, and Dr. Charles Nelson, PhD, at Boston Children’s Hospital are recruiting children ages 2-7 years with Fragile X syndrome to participate in a study of brain differences using non-invasive EEG.

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Use of EEG as a Biomarker for Diagnosis and Outcomes in Neurodevelopmental Disorders

FRAXA Research Foundation October 21, 2020

A series webinars focused on current topics in Fragile X research featuring Charles A. Nelson III, PhD, Professor at Harvard Medical School and Carol Wilkinson, MD, PhD, Instructor at Boston Children’s Hospital.

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Neural Markers of Fragile X: A Powerful New Tool for Clinical Trials

J. Dora Levin August 17, 2017June 20, 2019
Neural Markers of Fragile X: A Powerful New Tool for Clinical Trials

Once the neural marker is identified for a particular challenge, such as kids with poor language versus good language, neural markers can be measured during drug and behavioral therapy trials to see if a child is improving based on objective biological measures.

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