FRAXA’s mission is to accelerate progress toward effective treatments and ultimately a cure for Fragile X, by directly funding the most promising research.

FRAXA also supports families affected by Fragile X and raises awareness of this important but relatively unknown disease.

FRAXA was founded in 1994 by three parents of children with Fragile X to support scientific research aimed at finding a treatment and a cure for Fragile X. At that time, there was no Fragile X website or listserv, and only a handful of scientists were studying Fragile X. Funding by the U.S. government for this disease was under $2 million per year, with only $30,000 of that devoted to treatment studies. As parents, we had to change that.

Fragile X research is drastically underfunded, considering its high prevalence, prospects for a cure, and the promise that this research holds for advancing understanding of other disorders like autism, Alzheimer’s disease, and X-linked developmental disabilities.

View/download our Audited Financial Statements for 2013  and  Form 990 for 2013

How We Work

FRAXA funds grants and fellowships at universities all over the world. We have funded more than $24 million dollars in top-notch science. FRAXA's management expenses have always been less than 4% of income, as we have just one full-time staff, three part time staff, and hundreds of volunteer parents. Since FRAXA was founded, the Fragile X field has grown tremendously, due in large part to our grass-roots efforts. You can help us accomplish much more!

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Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has. - - - Margaret Mead
FRAXA brochure to download and print

FRAXA brochure to download and print

Jim Cantore at Boston FRAXA Gala
FRAXA Board members all have children with Fragile X. Click on the image to meet them.
Meet Jim Cantore and the rest of FRAXA's Honorary Board. Click on the image...
Meet our Scientific Advisors, including 3 Nobel Laureates. Click to learn more...