Luke has Fragile X syndromeJasper, photo contest winnerJustin has Fragile X SyndromeIsabella, age 5, and Tommy, age 2, have fragile XRon, Niklas, and Amy Watkins host the annual Fall X Ball
Luke is now 16 and as happy, loving, and gentle as ever. He is showing signs of maturity and has a 'fuzzstache' on his upper lip! He is enamored with 'Clifford The Big Red Dog' and loves to be read to. He has limited language but communicates through simple words and gestures. He does well when he is in a familiar routine, but gets fussy when his environment changes. He is a simple child, quick to laugh and smile.
Research proposals arrived 2/2/2015 and funded projects will be announced April 1. Click to browse current projects.
My son Justin, at age 1 and age 12, has a great sense of humor and is very affectionate and caring -- most of the time! Fragile X impacts him in almost every aspect of his life but he's usually a pretty happy guy. It pains me to say but what he probably wants most are real friends, but it's very difficult for him to achieve.
Help FRAXA fund research by hosting a fundraiser! Click image for information.

Clinical Trials

Are you interested in joining a study of a new medicine for Fragile X?
Would you like to connect with families near you? FRAXA chapters are here.

What is Fragile X?

Fragile X Syndrome is the most common inherited cause of autism and intellectual disabilities. The cause: one gene defect. Fragile X - ReadMore

Toward a Cure

Clinical trials of new treatments are happening now! People with Fragile X Syndrome have options, with trials enrolling in the U.S. and Europe. More treatment approaches are in the pipeline.Toward a Cure - ReadMore
FRAXA is a 501c3 nonprofit founded by parents. Our mission: to find effective treatments and a cure for Fragile X. FRAXA funds researchers worldwide. Fragile X, FRAXA - Read More

Our Track Record

FRAXA 2013 spending on programs (Research and Education) was 93%, with just 7% spent on overhead (Fundraising and Management).
When you donate to FRAXA, 93 cents of every dollar goes to research and education. FRAXA is top rated by great nonprofits