How to Become a FRAXA Ambassador

FRAXA is a parent-run organization with no government funding. Our strength comes from volunteer families and friends worldwide. Our ambassadors play a vital role advancing our mission by helping with our fundraising efforts and building our community of families and friends. With your help we can do much more!

Sign Up for e-News

You will receive our newsletters to update you on the latest research and FRAXA activities. There is no charge and we never sell/share your email address. Sign up here.

Follow us on Social Media and Share Share Share!

We post regularly on Facebook, Twitter and Instagram. Follow us and share with your personal community of family, friends and colleagues.

Set a Plan for Raising Funds for Research

FRAXA Ambassadors play a vital role in raising money for FRAXA Research Grants. Every ambassador is different — there are no hard and fast commitments for being an ambassador. We ask only that you organize some sort of event or initiative each year to help fund research to find a cure for Fragile X. This might be pledging your birthday, writing a letter to family and friends at holiday time, organizing an event or personal campaign, selling gift items like Tshirts or holiday cards, or approaching a business contact to sponsor a FRAXA event. We have lots of ideas

Get Listed

We post a list of chapter leaders  Email your information to us as you would like it to appear in the list. You can expect to receive some calls or emails from newly diagnosed families in your area as time goes on, which will help to build your chapter.

Get Materials

We can send you a supply of information for people who might contact you — brochures, articles, and more. You can download and print some of our materials here. FRAXA also has wristbands, magnets, information cards, original art holiday cards, and more here.

Set a Plan for Raising Awareness

FRAXA Ambassadors offer support and information to local families affected by Fragile X and help raise awareness of Fragile X in general. How about a local newspaper article? Or an event? We have ideas to get you started.

We will help!

For more information, contact Dave Bjork dbjork@fraxa.org or call us at (978)462-1866.