Fragile X Family Conversations: Sharing, Learning, Supporting

The Fragile X Family Conversations series brings together families and caregivers from around the world to share experiences, offer support, and gain valuable insights. Hosted by FRAXA, these virtual sessions are a space to connect with others who truly understand the Fragile X journey.

Every member of the FRAXA team is also a parent of someone with Fragile X, so we understand firsthand the emotions and questions that come with this diagnosis. These conversations are rooted in empathy, lived experience, and a shared commitment to building community.

These sessions are informal but deeply meaningful. Participants often share strategies that work in their homes, offer encouragement to others, and reflect on both challenges and victories. You’ll also have the opportunity to connect in small breakout groups with families at a similar stage of the journey.

Whether this is your first session or you’ve attended before, we welcome you into a space where you can feel seen, heard, and supported.

Note: To encourage open and honest conversations, these sessions will not be recorded or published.