Finding a Cure for Fragile X
After a one year hiatus, due the COVID-19 pandemic, the Callum Cup made a triumphant return last month. This annual intra-club charity match is the marquee event of the Millburn FC soccer calendar. The game being played in honor of Callum Murphy, the son of Andrew Murphy, one of the club’s goalkeepers.
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July was a great month for soccer. First, France won the World Cup, then 7 days later Millburn Football Club hosted the 3rd annual Callum Cup. Proceeds from the match were for raising funds for Fragile X research. This intra-club charity match has become the grande finale of the Millburn FC calendar, played in honor of Callum Murphy, the son of club goalkeeper, Andrew Murphy.
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The Millburn Football Club in Millburn, New Jersey hosted their 4rd annual Callum Cup. This intra-club charity match (all proceeds being donated to FRAXA) has become the marquee event of the Millburn FC calendar, played in honor of Callum Murphy, the son of club goalkeeper, Andrew Murphy. Callum was diagnosed with Fragile X syndrome when he was 2 years old.
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We are tremendously grateful to the Millburn United men’s soccer team, of Millburn, New Jersey, who held the 2017 Callum Cup on Sunday, July 2, 2017. They were honoring Callum Murphy, son of the team goalkeeper at Millburn United. Together with their friends and families, the team raised over $9000 for Fragile X research! This event was made possible by co-hosts Andrew Murphy and Nick Dawes. Donors, thank you all so much!
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The 5th annual Callum Cup will be played on Sunday, August, 29, 2021. Join us for great competition and great fun while raising funds for Fragile X research. If you’re interested in playing, contact Andrew via email at glasfurd31@gmail.com. Everyone is welcome to come out and watch the games or stop by The Grove in East Brunswick post game to socialize.
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FRAXA Research Foundation was honored to be part of the opening bell ringing ceremony at the New York Stock Exchange (NYSE) on July 5, 2018. We were there to raise awareness for Fragile X along side the National Fragile X Foundation. FRAXA President Katie Clapp and Director of Community Relations Dave Bjork attended with over 30 Fragile X family members and friends, including 4 self-advocates. This was a great opportunity to raise awareness of Fragile X on a big stage at an iconic place. The event was also carried live on television on CNBC, giving FRAXA and Fragile X broad reach around the world.
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Who runs FRAXA fundraisers? Parents who want a Fragile X cure for their children. Grandparents, brothers, sisters, aunts and uncles, and friends who want a Fragile X cure. We are truly grateful to all the volunteers who run FRAXA fundraisers. Please join us at an event and feel the magic. Or, run your own event. Help get closer to the cure!
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Hold your own event to raise funds and awareness for Fragile X. It’s easy if you start close to home. Raise money in honor of someone you love, ask friends and family to help, do something that makes you feel great! You could also contact your local media and see if they will feature your event and your story.
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FRAXA Research Foundation’s mission is to find effective treatments and ultimately a cure for Fragile X syndrome. Fragile X syndrome is the most common inherited cause of autism and intellectual disabilities. We directly fund research grants and fellowships at top universities around the world. We partner with biomedical and pharmaceutical companies, large and small, to bridge the gap between research discoveries and actual treatments.
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Last year, Niagara Falls was the one and only landmark lit up teal for Fragile X Awareness Day. This year, it was 1 of more than 20! On July 22, to mark Fragile X Awareness Day, buildings, bridges, monuments, and neighborhoods across the land were illuminated in FRAXA’s signature teal. Lighting Up Teal for Fragile X was the result of work of a team of passionate FRAXA volunteers.
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