Survey Study from the National Institutes of Health (NIH)
New survey study to investigate the decision-making process among parents considering enrolling their child with Fragile X syndrome (FXS) in a clinical drug trial. Fill out a questionnaire which will ask you about factors related to deciding to enroll your child in a clinical drug trial, your views on clinical trials more generally, and potential barriers to participating in clinical trials. It will take you about 20 minutes.
It doesn’t matter if you know a lot or very little about clinical drug trials for FXS, or if you have never thought about enrolling your child, we value everyone’s opinion.