Spotlight on two families – experiences on the extension trial of AFQ056

Experiences on the Extension Trial of AFQ056

Alex Kowal and Taylor Stevenson, two young men who have Fragile X syndrome, have each completed a clinical trial and are now taking an experimental medication from Novartis, as part of a long term extension trial. “For the first time in his life, Alex is happy”, says his mom, Lisa.

Taylor happy, with Debbie Meet Taylor Stevenson

 

Alex Kowal at Rush University Medical Center, with Fragile X clinical trials coordinator, Crystal Hervey
Alex Kowal at Rush University Medical Center, with Fragile X clinical trials coordinator, Crystal Hervey

Meet Alex Kowal

 

Explore Current Fragile X Research

FRAXA-funded researchers around the world are leading the way towards effective treatments and ultimately a cure.