Sample Letter – NIH and DOD Fragile X Research Funding

This is a sample letter to a Senator in support of restoring funding for Fragile X research from the NIH and DOD. You can easily copy and paste this into your preferred document editor or email.

Remember to check out our guidelines for Contacting Your Member of Congress in Support of Fragile X Advocacy for additional writing tips and information on how to obtain their contact information. Don’t forget to send one to your Representative as well. 

February 22, 2019

The Honorable (full name)
(Room Number) (Name) Senate Office Building
United States Senate
Washington, D.C. 20510

Dear Senator (last name):

I am a consituant from (your town) who is a parent/grandparent/sibling of (full name), age (years) who has Fragile X syndrome. I am writing to express my fervent support for federally-funded Fragile X research.

Fragile X syndrome (FXS) is the most common inherited cause of autism and intellectual disabilities. It affects about 1 in 4,000 boys and 1 in 6,000 girls worldwide. Most individuals who have Fragile X require full time care for their entire lives, so this disorder is tremendously costly to our society, in terms of dollars and heartbreak.

I am requesting your assistance in restoring funding for Fragile X at the National Institutes of Health and the Department of Defense.

  • Please urge NIH to recompete the Centers for Collaborative Research in Fragile X which expire this year. These centers were first authorized by Congress in 2000 and have been producing results continuously since then.
  • Reinstate Fragile X Research to the approved topics for the US Department of Defense Peer Reviewed Medical Research Program (PRMRP) funding for Fiscal Year 2020. Fragile X was dropped from the list for 2019 after having been included for many years.

On behalf of my entire family, and especially my (son/daughter/etc. name), thank you for your time and attention.


(your signature)

(your name)
(your full address)
Phone: (your phone)
Email: (your email)

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