NIH Invites Applications for Fragile X Research Centers, Including Funding for Clinical Trials

We are pleased to report that the National Institutes of Health (NIH) has published a Funding Opportunity, inviting applications for Centers for Collaborative Research in Fragile X and FMR1-Associated Conditions.

Twenty years ago, Congress launched three Centers for Collaborative Research in Fragile X as part of The Children’s Health Act of 2000, signed into law after intense advocacy efforts by FRAXA Research Foundation and families around the U.S. who live with Fragile X. Three Centers are active and have made great progress in advancing Fragile X research.

Key points of RFA-HD-20-003: Centers for Collaborative Research in Fragile X and FMR1-Associated Conditions (P50 Clinical Trial Optional) are:

  • Funding for 3 or 4 Fragile X research centers will be provided by 4 NIH institutes: National Institute of Child Health and Human Development (NICHD), National Institute of Mental Health (NIMH), National Institute of Neurological Disorders and Stroke (NINDS), and National Center for Advancing Translational Sciences (NCATS).
  • Applicants may request up to $1.3 million in direct costs per year for up to 5 years.
  • Clinical trials can be funded as part of these centers (P50 Clinical Trial is optional).
  • Applications are due April 3, 2020; earliest start date is September, 2020.
RFA: Centers for Collaborative Research in Fragile X and FMR1-Associated Conditions

Congress launched three Centers for Collaborative Research in Fragile X as part of The Children’s Health Act of 2000, signed into law after intense advocacy efforts by FRAXA Research Foundation and families around the US who live with Fragile X. Three Centers are active and have made great progress in advancing Fragile X research.

The NIH will host an informational webinar will be held in the next 1-2 weeks. In the meantime, please feel free to contact Dr. Tracy King, Medical Officer at NICHD, or any of the NIH contacts listed in the RFA with questions.

Tracy M. King, MD, MPH
Medical Officer, Intellectual and Developmental Disabilities Branch (IDDB)
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
National Institutes of Health (NIH)
phone: (301) 402-1822
email: tracy.king@nih.gov

Explore Current Fragile X Research

FRAXA-funded researchers around the world are leading the way towards effective treatments and ultimately a cure.

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