Help NIH Understand the Impact of COVID-19 on the Rare Disease Community

For the estimated 30 million people living with a rare disease in the United States, coronavirus COVID-19 has introduced multiple challenges. To better understand the unique impacts of COVID-19, the NIH-sponsored Rare Diseases Clinical Research Network (RDCRN) has created a survey. Results will help shed light on the particular needs of the rare disease community during the COVID-19 pandemic and other potential health crises.

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