How to Form a FRAXA Chapter

FRAXA is a parent-run organization with no government funding. Our strength comes from volunteer families and friends worldwide. With your help we can do much more!

Sign up for e-news

You will receive our newsletters to update you on the latest research and FRAXA activities. There is no charge and we never sell/share your email address. Sign up here.


Take a look through this site to learn more about our goal and how we work.

Get materials

We can send you a supply of information for people who might contact you — brochures, articles, DVDs, and more. You can download and print some of our materials here. FRAXA also has wristbands, magnets, information cards, original art holiday cards, and more here.

Set a plan for raising awareness

FRAXA chapters offer support and information to local families affected by Fragile X and help raise awareness of Fragile X in general. How about a local newspaper article? Or an event? We have ideas to get you started.

Set a plan for raising funds for research

FRAXA chapters play a vital role in raising money for FRAXA Research Grants. Every chapter is different — there are no hard and fast requirements for being a chapter. We ask only that you organize some sort of event or initiative each year to help fund research to find a cure for Fragile X. This might be selling wristbands, holding a fundraiser, writing a letter to family and friends at holiday time, selling gift items like Tshirts or holiday cards, or approaching a business contact for a grant. We have lots of ideas!

Get listed

We post a list of chapter leaders  Email your information to us as you would like it to appear in the list. You can expect to receive some calls or emails from newly diagnosed families in your area as time goes on, which will help to build your chapter.

We will help!

Whatever plan you’d like to try, we will help. We can provide materials, contacts, suggestions. We’ll brainstorm and put you in touch with other families.