Virtual Fragile X Gathering
Over the past few months we have taken the opportunity to connect virtually with families around the globe. We have met with folks in the United Kingdom, Arizona, Missouri, Florida, and our home state of Massachusetts, to name a few. Several FRAXA researchers have joined in too! Dr. Carol Wilkinson from Boston Children’s Hospital, joined one of our happy hours to say hello and answer questions about her current work. It was great for her to meet family members who are impacted by her research but live outside of the Boston area.
One thing we like about going virtual is meeting and connecting with families everywhere! We share stories about our family members with Fragile X, discuss the challenges we have been facing at home, and spent time getting to know one another. It has been a bright light during this time of upheaval to virtually meet so many passionate and dedicated families.
We are hosting additional virtual gatherings every few weeks going forward. We truly enjoy meeting new families and reconnecting with longtime supporters. Please join us soon!
Upcoming gatherings are:
If you would like to join one of these gatherings, please email our Program Coordinator, Elle Skala for details at firstname.lastname@example.org. Elle will be sending out meeting invitations 30 minutes prior to each gathering, so be sure to mark your calendars! These are free events and all are welcome!