FRAXA Updates

FRAXA 2010 Research Awards Funded

FRAXA Research Foundation FRAXA Updates ,
4/1/2010 Program Grants and new Postdoctoral Fellowships total over $1.5 million this year. We are very pleased to announce FRAXA 2010 awards. Projects can be viewed at the Research Reports section of this website. These scientists have demonstrated outstanding potential of their FRAXA projects in detailed applications. We aim to help them work toward new treatments for Fragile X. Their projects are at the cutting edge of biomedical technology, and we believe that their work will make a real difference to everyone affected by Fragile X. FRAXA is collaborating with more than a dozen pharmaceutical companies to translate this research into practical treatments for Fragile X. In May, 100 FRAXA-supported researchers will join many of these pharmaceutical industry scientists at the FRAXA Investigators Meeting. There they will put their heads together for our common goal: finding effective treatments and a cure for Fragile X. We extend our most sincere gratitudeRead more

3 Researchers Honored at FRAXA Investigators Meeting

Katie Clapp FRAXA Updates • Research Updates , , , , ,
Three Researchers Honored at FRAXA 2008 Investigators Meeting Over 150 scientists from around the globe gathered in Durham, New Hampshire, for FRAXA Research Foundation's Investigators Meeting on September 21-24, 2008. They came from Australia, Canada, India, Turkey, the U.S., and eight European countries. Their common goal: "to share, collaborate and publish," in the words of FRAXA's Medical Director, Michael Tranfaglia, MD, to find effective treatments and a cure for Fragile X, the foremost inherited cause of mental retardation and autism. Most of the attendees were university-based professors, postdoctoral fellows, and graduate students who have FRAXA research grants. Also participating in the meeting were scientists from the National Institutes of Health (NIMH, NICHD, and NINDS), Neuropharm Group PLC, Hoffman LaRoche Inc., GlaxoSmithKline, Indevus, and Seaside Therapeutics, as well as 20 parents of Fragile X children. At the opening reception, FRAXA honored three investigators for taking extraordinary steps to advance research: FRAXARead more

Doris Buffett’s Challenge Grant to FRAXA: Over $1.5 Million for Research!

Katie Clapp FRAXA Updates
Doris Buffett’s Challenge Grant to FRAXA: Over $1.5 Million for Research!
FRAXA Families and Friends Tripled the Goal! In the Spring of 2007, Doris Buffett, president of the Sunshine Lady Foundation, challenged FRAXA to raise $500,000 in new funds by November 1 which she’d match. On August 28th, FRAXA met the challenge! Doris told us to keep going. Until November 1, the sky would be the limit. The grand total of new donations received was $1,424,562, with an additional $98,755 in pledges payable by March 1st, for a total of $1,523,317! Together with Ms. Buffett’s initial $500,000 gift, FRAXA Doris Buffettreceived over $3.5 million in new money — all for research aimed at curing or treating Fragile X. This means new clinical trials, new research, new determination to reach for a cure. Thanks so very much to all of you who helped make this happen. More than 2600 people donated toward the Challenge – it is a true grass-roots community success.Read more

FRAXA Invited to The White House, Celebrating The Children’s Health Act

FRAXA Research Foundation Advocacy • FRAXA Updates
FRAXA Invited to The White House, Celebrating The Children’s Health Act

On short notice, Katie Clapp and Mary Beth and David Busby hurried to attend the January 4 White House ceremony celebrating the bipartisan enactment of the Children’s Health Act of 2000, which boosts federal funding of research on children’s diseases, including Fragile X. This was a rare, unforgettable opportunity to meet both (now, former) President and Senator Clinton in “The Blue Room,” along with several members of Congress

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