FRAXA Funded Researchers Present at MA Fragile X Conference

FRAXA Funded Researchers Present at MA Fragile X Conference

On Saturday Boston Children’s Hospital (BCH) hosted a fragile X educational conference, Success Strategies for Individuals and Families Impacted by Fragile X and two of our funded researchers, Dr. Craig Erickson, and Carol Wilkinson, MD, PhD, presented giving an update on their current fragile X clinical trials. Both being funded by FRAXA.

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$75,000 Raised for Fragile X Research by Friends of FRAXA at our Fall Fling

$75,000 Raised for Fragile X Research by Friends of FRAXA at our Fall Fling

On Thursday, September 7 over 150 friends of FRAXA joined us at the Smith Barn at the Peabody Historical Society for the second annual FRAXA Fall Fling. Together we raised over $75,000 for fragile X research — including a hand-delivered check for $25,000! Families from as far away as Miami, Florida joined us, even with hurricane Irma approaching their home state. Unfortunately, Irma ambushed Weather Channel Storm Tracker and fragile X parent, Jim Cantore.

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FRAXA Fall Event – Sept 16, 2017 – Lagrangeville, NY

FRAXA Fall Event – Sept 16, 2017 – Lagrangeville, NY
15th Annual FRAXA Fall Jeans-for-Genes Join us to find a cure for fragile X! Saturday, September 16, 2017 • 6:30 pm Crosswinds Equestrian Center 17 Crosswinds Lane LaGrangeville, NY 12540 Buy TicketsDonateFRAXA Fall Event Ron and I are so blessed to be surrounded by kind, generous friends who always seek to help us in our search for a cure for Fragile X Syndrome. This year we are thrilled to host our event in collaboration with Crosswinds Equestrian Center who is donating their facility and Half-Time Beverage who is donating refreshing craft beers. This will allow more money to benefit FRAXA Research Foundation! We know this new venue promises to be filled with family, friends, delicious food, and even a mechanical bull to help create wonderful memories. Jeans and comfortable shoes welcome! Tickets: $125 each Buy TicketsDonate If you have any questions or comments, please contact Amy Watkins at awatkins@fraxa.org.  Fall EventRead more

Patrick’s PALS 21st Annual Basketball Tournament

Patrick’s PALS 21st Annual Basketball Tournament

Play to Find a Cure for Fragile X PAL of the Year: Bob Socci New England Patriots Radio Announcer Special Guest: Bob Ryan Boston Globe Sportswriter Honorary Chair: Scott Shuster Special Friend of Patrick Saturday, June 3, 2017 8:00am – 3:00pm Buckingham Browne & Nichols School, Athletic Center 80 Gerrys Landing Rd Cambridge, MA 02138 PALS is a 3-on-3, 32-team double elimination tournament that raises funds in honor of those affected by Fragile X, including James & Pamela Vershbow’s son Patrick.Your registration fee ($50 per player) will cover breakfast, lunch, refreshments, t-shirt, contests with prizes, trophies and gift certificates for the finalists, and a silent auction. Donations and sponsorships gratefully accepted! Play in PALS XXI either as: A team – maximum of 4 players. A single – you will be assigned to a team short a player or looking for a fourth. For more information contact Jimmy Vershbow at Patricks.Pals@comcast.net.

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Genes and Gems Fundraiser raises $40,000 for Fragile X Research

Genes and Gems Fundraiser raises $40,000 for Fragile X Research
On April 8, our fabulous friends of FRAXA in Ohio put on another great show as they held their Genes and Gems fundraiser at the St. Charles Preparatory School in Columbus. It was a night to bring together over 300 families, friends and supporters of fragile X research. The event included an inspiring presentation by the well-loved local fragile X physician and researcher, Dr. Craig Erickson, from Cincinnati Children’s Hospital. From the great conversations, delicious food, and the silent and live auctions (including a ride on the Goodyear Blimp!), it was clear that everyone had a wonderful time. We want to thank all those who attended Genes and Gems and made generous donations to the FRAXA Research Foundation. A very special thanks to the Planning Committee for their tireless work and commitment to putting on this special event. The Barden Family The Heiman Family The Frederick Family The Lafferty FamilyRead more

TD Bank invites Friends of FRAXA to Watch the Bruins

TD Bank invites Friends of FRAXA to Watch the Bruins

Fifty friends of FRAXA enjoyed an amazing night at the TD Garden in Boston on March 30. They gathered to watch the Boston Bruins take on the Dallas Stars. It was a great opportunity for us to unite the greater Boston fragile X community. We were able to convene and thank some of our local families and introduce them to university and biotech scientists who are working to find a cure for fragile X. The night was made available by a generous donation of the Garden View Room by TD Bank.

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Pierce Family raises $100,000 to Find a Cure for Fragile X

Pierce Family raises $100,000 to Find a Cure for Fragile X

The 1st annual Hope for the Holidays gala hosted by The Pierce Family Fragile X Foundation on Saturday December 10th near Boston, MA, at the Woburn Country Club. Kathan and Michael Pierce started their foundation just 6 months ago. Thanks to the generosity of their families, friends, and the communities they work and live in, their foundation was able to donate $100,000 to FRAXA. We are working together to find a cure for Fragile X! Hosted by The Pierce Family Fragile X Foundation Posted by Michael Pierce on Sunday, December 11, 2016 Watch Channel 5 video coverage here: http://www.wcvb.com/article/5-for-good-family-raises-100k-to-find-cure-for-fragile-x/8497416

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Boston Bruins Foundation Raffle Benefiting FRAXA Raises over $9000 to find a cure for fragile X syndrome

Boston Bruins Foundation Raffle Benefiting FRAXA Raises over $9000 to find a cure for fragile X syndrome

Bruins raffle benefits FRAXA Research Foundation at 2016 opening home game At each home game, the Boston Bruins Foundation hosts a 50/50 raffle with half the proceeds going to a lucky winner and the other half going to a worthy charity. The first home game of the 2016-17 season was on Thursday, October 20, at 7pm, against the New Jersey Devils. 35 volunteers for FRAXA sold $18,650 in tickets, which means they raised over $9000 to help find a cure for Fragile X syndrome. Thanks to the Bruins Foundation and all our volunteers for a great night! This was the second year that the Bruins hosted a raffle to benefit FRAXA. On Saturday, Nov 21, 2015, the Bruins played the Toronto Maple Leafs at Boston’s TD Garden. FRAXA volunteers (more than 50!) raised more than any other raffle during the year … over $25,000! In addition, the Boston Bruins has contributed $90,000 to FRAXA to fully fund

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Events Gallery – Raising Funds to Find a Cure for Fragile X

Events Gallery – Raising Funds to Find a Cure for Fragile X
Boston Bruins Step up their Game for FRAXA The Boston Bruins Foundation has supported FRAXA many times, notably through 50-50 raffles at Bruins home games at Boston's TD Garden. Thank you to Bob Sweeney and everyone at the Boston Bruins Foundation for your ongoing support. March 30, 2017 was an amazing night at the TD Garden in Boston. Fifty friends of FRAXA gathered to watch the Boston Bruins take on the Dallas Stars. It was a great opportunity for us to unite the local fragile X community in greater Boston. We were able to convene and thank some of our local families and introduce them to some scientists and biotech companies who are working to find a cure for fragile X. The night was made available by a generous donation of the Garden View Room by TD Bank. Patrick's PALS Annual Basketball Tournaments Patrick’s PALS 3-on-3 Basketball Tournament turned 21 in 2017!Read more