Other ways to help FRAXA

If you do not want to start by hosting an event, how about helping someone else? Contact us to see if there are families in your region who would like to work together.

In addition, we often need people who are computer-savvy to help us from home, so please let us know if this appeals to you. Contact Melissa Budek or call her at (978) 462-1866.

If you are a family member of someone who has Fragile X, or if you have Fragile X, there are registries you can join:

> The Fragile X Research Registry is a database of people who want to be notified about fragile X research studies at multiple universities.

> Our Fragile X World is a registry for families. Families enrolled in this registry agree that researchers at RTI International may invite them to participate in voluntary, confidential surveys about their experiences with Fragile X.