20
FEB
2015
Simon is weird and wonderful. He's friendly and curious and talks non-stop. He's an athlete and an artist. He's unbelievably generous and crazy stubborn. He often repeats sentences. When his mom reprimands him for something, he'll say,

Fragile X Portraits: Simon

Fragile X Portraits: Simon Simon is weird and wonderful. He’s friendly and curious and talks non-stop. He’s an athlete and an artist. He’s unbelievably...
19
FEB
2015
FRAXA investigator Sumantra Chattarji and India Prime Minister Shri Narendra Modi

India Prime Minister Narendra Modi visits FRAXA investigator Dr. Sumantra Chattarji

India Prime Minister Narendra Modi visits FRAXA investigator Sumantra Chattarji     India’s Prime Minister Narendra Modi visited FRAXA investigator, Dr....
23
JAN
2015
Fragile X discovery

Rare case uncovers missing clue to Fragile X

Here is another clue to the Fragile X Syndrome mystery, discovered by Dr. Vitaly Klyachko, a professor at Washington University School of Medicine in St. Louis, along with...
13
JAN
2015

Mark Bear shows mGluR5 blockers correct problems in autism model

FRAXA Scientific Advisor and researcher Mark Bear, author of the mGluR Theory of Fragile X, has now shown that mGluR5 blockers can correct memory problems in a new mouse model...
30
DEC
2014
Neuren Pharmaceuticals

Neuren seeks orphan drug status for Rett Syndrome treatment

Neuren seeks orphan drug status for Rett Syndrome treatment Neuren Pharmaceuticals (ASX:NEU) has submitted applications to the US Food and Drug Administration (FDA) for Orphan...
22
DEC
2014

Family’s Search For Fragile X Drug Finds Frustration, Hope

A Family’s Long Search For Fragile X Drug Finds Frustration, Hope on NPR Morning Edition by Jon Hamilton Read or listen here:...
22
DEC
2014
Fragile X Student teams at WPI help FRAXA Research Foundation

Students at WPI helping FRAXA Research Foundation

Students at WPI helping FRAXA Research Foundation Undergraduate students at Worcester Polytechnic Institute (WPI) complete what is known as the Interactive Qualifying Project...
12
DEC
2014
Elizabeth Berry-Kravis, MD, PhD

Informational webinar: Clinical trial of Alcobra’s MDX in Fragile X Syndrome

Clinical trial of Alcobra’s MDX in ages 15-55 with Fragile X Syndrome Webinar presented by Elizabeth Berry-Kravis, MD, PhD Rush University Medical Center Alcobra is...
share this Email this to someoneShare on FacebookShare on LinkedInTweet about this on TwitterShare on Google+Pin on PinterestShare on StumbleUpon