Recent News

26
JUN
2014

Fragile X Clinical Trial: Novartis trial results are in, and they’re not pretty

AFQ056 Fragile X Clinical Trial showed Negative Results <p”>This year’s Gordon Conference just finished, and Novartis presented their results for the first...
23
MAY
2014
USA Today logo

FRAXA Featured in USA Today: Disappointments aside, optimism for Fragile X drugs

On May 22, 2014, USA Today featured an article surrounding FRAXA’s optimism for continuing to seek effective treatments for Fragile X, despite negative results in...
28
APR
2014
Mike Tranfaglia, MD, FRAXA Chief Scientific Officer

FRAXA Science Update Teleconference: Latest news about Fragile X Clinical Trials

When 10:30 am Eastern Daylight Time on Wednesday April 30, 2014   Topics FRAXA Medical Director, Dr. Michael Tranfaglia will discuss the latest results from the Novartis...
24
APR
2014

Novartis Discontinues Development of mavoglurant (AFQ056) for Fragile X Syndrome

Novartis Clinical Trials in Fragile X Ended Novartis has announced that the company will be discontinuing its development program in Fragile X for its lead mGluR5 antagonist,...

Family Stories

08
NOV
2013
Elizabeth Higgins Clark

This Is My Brother, speech by Elizabeth Clark at FRAXA’s Fall X Ball

In a heartfelt, humorous and insightful speech, Elizabeth Higgins Clark imparts the inspiration and love she has received from her brother, David, who has Fragile X Syndrome. ...
23
AUG
2013

Fragile X » Local News » Valdosta Daily Times

Before support groups, one mother, son found their own community by Dean Poling, The Valdosta Daily Times VALDOSTA — June Lawson remembers a time before golf tournaments like...
07
JUL
2013

Darren’s Smile

Darren’s Smile – This is a very difficult post to write because it is about a son, Darren, who has passed away. Darren’s dad has written a memoir – a beautiful...
11
JUL
2012

Special Son – song in honor of Brett

Special Son – song in honor of Brett, who has Fragile X – by Mark Mindell Jul 4 2012 Special Son – this great mp3 is in honor of all special children like Mark’s son, Brett,...
12
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