12
DEC
2014
Elizabeth Berry-Kravis, MD, PhD

Informational webinar: Clinical trial of Alcobra’s MDX in Fragile X Syndrome

Clinical trial of Alcobra’s MDX in ages 15-55 with Fragile X Syndrome Webinar presented by Elizabeth Berry-Kravis, MD, PhD Rush University Medical Center Alcobra is...
26
NOV
2014

Neuren’s NNZ-2566 shows clinical benefit in Rett syndrome trial

Neuren’s NNZ-2566 shows clinical benefit in Rett syndrome trial Promising results in Phase 2 clinical trial by Michael Tranfaglia, MD FRAXA Medical Director This isn’t a...
18
NOV
2014

FRAXA Grants and Fellowships for Fragile X Research – 2015 Priorities

Funding Priorities for Feb 2, 2015 FRAXA Grant Cycle While FRAXA Research Foundation’s research goals remain largely unchanged, the landscape in which we operate has changed...
21
OCT
2014
Alex Kolevzon, MD Clinical Director, Seaver Autism Center Mount Sinai School of Medicine

Informational Clinical Trial Webinar: NNZ-2566

On October 15, 2014, FRAXA hosted an Informational Webinar about the Phase II Clinical Trial of the investigational new drug, NNZ-2566 from Neuren Pharma, for males who have...
23
SEP
2014
Kimberly Huber, Ph.D.

NIH awards $35 Million to three Fragile X research teams

The National Institutes of Health has just announced new awards of $35 million over five years to support three Centers for Collaborative Research in Fragile X. Investigators...
15
SEP
2014

Join Survey Study for Families with Fragile X

    Attention Fragile X parents: here’s an easy survey study you can join. No travel needed because it’s online! The study’s goal is to help design...
10
SEP
2014
roche

Roche reports clinical trial negative results

Roche has shared the sad news that their clinical trials in Fragile X have been unsuccessful. They will host a Webcast on Thursday, September 18, from 12:30pm –...
04
SEP
2014
FRAXA 2013 spending on programs (Research and Education) was 93%, with just 7% spent on overhead (Fundraising and Management).

FRAXA Update Sept. 2014

New Clinical Trials Open for Participants We are delighted to see more Fragile X treatment trials underway! Before approving any new medication, the FDA requires two...
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