Fragile X Clinical Trials Information Evening in NYC - New York, NY, 3/5/2013
Join us at the Seaver Autism Center for Research and Treatment at the
Icahn School of Medicine at Mount Sinai for drinks, hors d'oeuvres and a light dinner. We will get an update on clinical trials currently accepting participants with Fragile X in the New York City area.
Speakers are Dr. Alex Kolevzon, Dr. Ted Brown, Katie Clapp, and Debbie Stevenson. This is an informational session, not a fundraiser.
Invitation and details here
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Swing into Spring cocktail party - Boston, MA, 3/24/2013
at Stella Restaurant in Boston's historic and hip South End
More at fraxa.org/Boston
Food by renowned chef Evan Deluty
Music by the Mike Levesque Quartet
Silent and live auctions
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Wine Tasting Dinner at Trump National Hudson Valley - Hopewell Junction, NY, 4/20/2013
Amy and Ron Watkins are proud to host their First Annual wine tasting dinner at the beautiful Trump National Hudson Valley golf course to benefit FRAXA. Gather your spouse, friend, significant other or just someone who likes to have fun supporting a GREAT cause! This is a limited seating engagement! Only 60 seats available! Form your table of 6 today.
www.trumpnationalhudsonvalley.com
$100 per ticket
Please RSVP to Ron Watkins to reserve your seats or buy your tickets now by clicking the BUY TICKETS button.
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"Genes and Gems" Party - Powell, OH, 4/27/2013
Join us at the Bridgewater Banquet & Conference Center
Details at fraxa.org/GenesandGems
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FRAXA Fundraiser at Regis Royal in downtown Manhattan - New York City, NY, 9/21/2012
Attn, New Yorkers: join other FRAXA supporters at the friendly and elegant Regis Royal Ristorante-Bar: in the heart of downtown Manhattan’s financial district. Enjoy a full range of mixed drinks and martinis before or after dinner.
The owner, Regis, will charge an extra dollar per drink, then match that dollar and donate $2 to FRAXA. Come one, come all! http://regisroyal.com
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Makenzie Tough Mudder fundraiser - Winston Salem, NC, 10/27/2012
Four racers are taking on this challenge to raise money and awareness to Fragile X syndrome. If you want to be part of our team, please support our cause by making a donation in honor of our daughter Makenzie.
If you would like to support Makenzie just click on the link below:
www.fraxa.org/makenzie
Results: We are very pleased with the event and the money we have raised...the final amount is $5001! With the event and the hand made crafts, we have reached once again,
$10,000.00 this year!
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2012 6th Annual Walk for Fragle X - Bernville, PA, 6/23/2012
The 6th Annual Walk for Fragile X, in Bernville, PA hosted by the Mathias Family raised $7,888. We would like to give Special Thanks to: the Tulpehocken Area School District for allowing the use of their stadium facility and track, all the volunteers who helped and all the businesses and individuals who donated door prizes and refreshments, top business sponsor - Blue Mountain Metal Finishing, the top participants/walker - Team Mathias who raised $1,761.30 and Andy Tobias who raised $1,400! Events like this truly do make a difference in the lives of many.
Hosted by Jen Mathias at 610-488-1612 or 717-813-1289, or LukeJen97@aol.com.
See brochure
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Second Annual Fraxa Golf Tournament - Valdosta, GA, 8/24/2012
Please join us to play golf at the Francis Lake Golf Course in Valdosta, or support FRAXA Research with your sponsorship. For more information contact Patty Cosey at 229-244-9688 or
Patty Cosey
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FRAXA Race for the Cure Rally Team - 2012 race series - Annapolis, MD, 8/4/2012
Miguel Barbery and Robert Ward created the FRAXA Race for the Cure Team to compete in the 2012 Rally America National Championship and 2012 MaxAttack Rally 2WD Series.
The Annapolis Car show was August 4th at Koons Ford of Annapolis.
Team driver Miguel Barbery and co-driver Robert Ward returned from serving in Afghanistan, and put this team together to raise awareness and funds to find a cure for Fragile X.
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Mission to Lars benefit movie screening - Boston, MA, 7/12/2012
This 1-time showing at New England Aquarium IMAX Theatre is a very special event! Tickets limited and available in advance. More details at buyEventTickets.aspx
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Fragile X Luncheon - Canterbury Brook Inn - Cornwall, NY, 3/11/2012
The Canterbury Brook Inn serves continental cuisine with a swiss flavor. Map it
Sunday, March 11, at 1pm. Tickets are $75.00 per person.
The luncheon will include a
variety of appetizers, a salad,
choice of main dish, dessert and coffee or tea.
For more information, please email Gail O'Mara at gomara@hvc.rr.com.
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NYC Half Marathon Race - New York City, NY, 3/18/2012
"When sisters stand shoulder to shoulder, who stands a chance against us?" Together we are standing up and running for Sweet Baby James who has Fragile X.
Please join us as we run shoulder to shoulder around New York City's Central Park, through Times Square, down the West Side Highway and to the finish line at South Street Seaport. Help us stand up and fundraiser for a cause close to our hearts. Donate for James
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The X Ball - Columbus, OH, 4/28/2012
Special Guest: Storm Tracker and FRAXA Honorary Board Member Jim Cantore.
Martini party with heavy hors d'oeuvres
Live music
Silent and live auctions
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Annual Fragile X Golf Tournament - Litchfield, NH, 5/25/2012
Time: 7:30AM shot gun start
Place: Passaconaway Country Club (www.passaconawaycc.com)
This is the Fifth Annual Golf Tournament we've run to benefit FRAXA.
Cost is $125 per golfer, $500 per foursome. This includes a mulligan for each player and lunch after golf.
Format is a Bramble (Pick the best drive then play your own ball).
As always, there will be both a live auction and silent auction, so help us with any items you can get for our event!
Last year we had 28 foursomes, only 4 shy of a sellout. Let us know early as we are going to work very hard to sellout this year and want to allow past supporters first choice in joining us.
Hope to see you all in May! -- Pete Hall and Dave Hall
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16th Annual Patrick's Pals Basketball Tournament - Cambridge, MA, 6/2/2012
The 16th Annual 3-on-3 tournament is a great time for all - players and spectators alike. Teams of men and woman of all ages participate, and kids activities are plentiful. Silent auction of sports memorabilia too!
Please visit PatricksPals for more info.
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3rd Annual Cruise-In to benefit Fragile X Syndrome - Martinsburg, PA, 6/3/2012
This year's fundraiser was the most successful bringing in over $13,000 in donations!
News Article about the Kopco family (10-22-2012): Click here
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Ride for FRAXA - DeLand, FL, 6/1/2012
Help Emily Nichols meet her goal!
My goal is to ride a total of 3,000 miles. -100 miles a day for 30 days in June 2012. We hope to recieve $2.50/ every 100 miles as a pledge from each donor (so about $75 after the trip is over), but whatever amount you can contribute to the FRAXA cause is appreciated!
You can donate through Firstgiving or donate through our Website and please mention Emily Nichol's name on your donation form.
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8th Annual Fragile X Poker Run - Blue Ridge Parkway, NC, 7/20/2012
Dana and Jimmy Charlton and the gang have reserved the entire Five Star Freeborne’s Eatery and Lodge for this year’s event. The Thunder Valley Band is confirmed for Saturday night’s entertainment.
This is not just a two wheel event. Many come along for stunning roads and scenery that traverses NC, Tenn. and VA during the Poker Run.
All are welcome - please contact Jim or Dana Charlton at 703-946-3242, jimmycharlton@hotmail.com or danacharlton@gmail.com.
Links of interest:
www.freebornes.com
smokymountainrider.com/?p=838
www.blueridgeparkway.org
Friday morning - depart from N. Va and Atlanta, arrive Freeborne's Friday afternoon.
Friday Night - Beer
Saturday - Poker Run (app. 115 miles) from 10am - 3pm
Beer, Auction, Live Music by The Thunder Valley Band from 5pm til......
Sunday - breakfast and return home
My brother Scott will for the first time lead a group from the Atlanta area and Jimmy will again lead the group from N.Va.
We have reserved all of Freeborne's and there are other inns very close if we fill it.
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Mt. Rainier's Strongest Man & Woman 6 - Sumner, WA, 11/12/2011
Held at The Old Cannery. Organized by Laurie and Curtis Bowler.
Mt. Rainier's Strongest Man began in 2006 and has grown from 5 local competitors to 4 divisions of men and women, more than 40 competitors from 5 states, and has raised over $40,000 to date. In 2010, we added a CrossFit spin, saw a surge in interest and competitors, and knew we hit our mark with a fun, challenging event supported by our peers and the best people around- CrossFitters For more information and to register visit: http://www.mtrainiersstrongest.com/
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Golf Tournament to benefit FRAXA - Valdosta, GA, 9/30/2011
Please join us to play golf at the Francis Lake Golf Course in Valdosta, or support FRAXA Research with your sponsorship. For more information contact Patty Cosey at 229-244-9688 or
Patty Cosey or view flyer.
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Comedy Night: 4th Annual "Laughter for a Cure" - Saugus, MA, 8/11/2011
Enjoy a raucous, side-splitting evening of standup comedians at Prince Pizza in Saugus. Contact Randy Welch at rwelch16@comcast.net for more information and tickets. Included all-you-can-eat pizza & soda, and 4 comedians.
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FRAXA Investigators Meeting - Pathways to Treatment - Southbridge, MA, 9/18/2011
The goal: to further the mission of finding and implementing viable treatments for Fragile X. Attendees will be current or past FRAXA-sponsored researchers, along with investigators from academia, the NIH, and pharmaceutical companies
Read More
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5th Annual NJ Jackals Fundraiser for FRAXA - Yogi Berra Stadium, Little Falls, NJ, 6/23/2011
Yogi Berra Stadium is at Montclair State University.
Join us for Game and BBQ at 6pm
Hamburgers, Hotdogs, Chicken, Salads,
Fruit, Cookies, Beer, Soda, Bottled Water
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Chili Cookoff - Benmarl Winery, Marlboro, NY, 6/25/2011
The cookoff will run from 11am-3pm. All proceeds will benefit FRAXA. For more information please email Ron Watkins at rwatkins@fraxa.org.
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15th Annual Patrick's Pals - Cambridge, MA, 6/4/2011
The 15th annual 3-on-3 Pals Tournament hosted by Patrick's Pals was the best ever!
Everyone enjoyed a free t-shirt and hat, breakfast and lunch, refreshments throughout, contests with prizes, a chance to bid in a Silent Auction that includes sports memorabilia, tickets to sporting events and more, and a chance to play a lot of basketball!
Please visit PatricksPals for more info.
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Cruise-In - Martinsburg, PA, 6/5/2011
There was entertainment by live band - The Syrins and a free dash
plaque for the first 50 cars. Cruise-in cars were parked at Fox’s Pizza as well as Martinsburg
Milling and Kopp Drug. Pictures coming soon!
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Wine Tasting and Silent Auction - Florham Park, NJ, 3/3/2011
It was an evening of great wines and fun at the Brooklake Country Club.
Hosted by Denis and Kira Shmuler; shmuler@optonline.net
Please join us again next year!
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Sahara4x Challenge - London to Timbuktu - London, United Kingdom, 1/11/2011
They made it to Timbuktu! This crazy fundraising adventure involves thirty people, travelling in ten cars that cost less than £1,000 each, travelling from London, via the rough terrain of the Sahara desert, to arrive in Timbuktu. http://sahara4x.org/
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Mittens for FRAXA - Muskego, WI, 12/30/2010
Carol Burton writes: I'm making mittens out of old wool sweaters and selling them to friends, coworkers and family. All proceeds will be donated to FRAXA. All my friends at work are joining with me to help.
WANTED: please donate any old wool sweaters (at least 60% wool) and buttons (medium to large) to help lower costs of making the mittens. Contact Carol for details at scrappercb@gmail.com
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Fall X Ball - Poughkeepsie, NY, 10/22/2010
Over 200 people attended this year - a record success. At the gala, the Carvel Foundation presented FRAXA with a surprise donation of $100,000!
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Fragile X Fun Walk for Knowledge - Pittsburgh, PA, 10/3/2010
This walk is to honor Anthony Beckner and other Fragile X families. Hosted by Amy Beckner and Maggie Beckner.
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3rd Annual Robert Langell Gala & Golf Tournament - Ipswich, MA, 9/27/2010
Golf and dinner at the gorgeous Turner Hill mansion. Hosted by Barry Davidson and Didi Langell. Cocktails/Dinner
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Annual Clam Hut Fundraiser - HIghlands, NJ, 8/26/2010
Food, drinks, live band, and wine tasting on the water at The Clam Hut. Hosted by the Tichenor family.
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Comedy Night - Saugus, MA, 8/12/2010
4th Annual "Laughter for a Cure" -- a raucous, side-splitting evening of standup comedians at Prince Pizza in Saugus. Contact Randy Welch at rwelch16@comcast.net for more information. Included all-you-can-eat pizza & soda, and 4 comedians.
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6th Annual Fragile X Poker Run - Laurel Springs, NC, 7/18/2010
This beautiful route along the Blue Ridge crosses several states. Starts in Laurel Springs NC. Contact Jim Charlton at jim.charlton@netwitness.com for information about next year!
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4th Annual Fragile X Fundraiser - Vandalia, MO, 7/5/2010
The Schambach Family hosted their event at the Vandalia Pizza Hut. Read more about the Schambachs and the event at their fundraising page: www.firstgiving.com/carolschambach.
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Chili Cook Off - Marlboro, NY, 6/26/2010
Benmarl Winery. Chili and Salsa tastings and live music. Hosted by Victor Spacarrelli.
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2010 Walk for Fragile X - Bernville, PA, 6/19/2010
Held at the Tulpehocken Jr/Sr High School Track, 428 New Schaefferstown Rd, Bernville, PA, over 100 people participated, raising $9000 for research! Hosted by Jen Mathias at 610-488-1612, 717-813-1289, or LukeJen97@aol.com. Article in ReadingEagle newspaper
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Patrick's Pals Basketball Tourney - Cambridge, MA, 6/5/2010
The 14th annual 3-on-3 Pals tournament, hosted by Patrick's Pals
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Annual Charity Golf Tournament - Litchfield, NH, 5/28/2010
This tournament was held at the Passaconaway Country Club in Litchfield NH. Prizes, Barbecue. Hosted by Dave, Pete, and Dawn Hall. We welcome Shire Pharmaceutical as lead sponsor.
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Marathon - Edinburgh, United Kingdom, 5/23/2010
Lesley Jones ran the Edinburgh Marathon to support Fragile X research at the University of Edinburgh, in honor of her son Evan who has Fragile X.
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Fragile X Benefit - Rutherford, NJ, 5/7/2010
Elks Lodge, 48 Ames Ave, 4 Hours Open bar, Buffet, Music, Prizes, and more! Thank you to Denise Sabo and friends!
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Marathon - London, United Kingdom, 4/25/2010
Serge Kulisic is running the London Marathon to support FRAXA! Visit Serge's page at www.firstgiving.com/fraxaresearch and see how he did with his campaign.
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7th Annual Walk for Fragile X - Canton, IL, 4/17/2010
The walk is held each year in honor of Parker and Allison Roos, at Wallace Park in Canton.
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"Swing into Spring" Cocktail Party - Boston, MA, 4/11/2010
Our Swing into Spring, at Stella Restaurant in Boston's historic and hip South End, raised over $70,000!
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Jewelry for a Cure - Mason, OH, 3/7/2010
We had a trunk show of celebrity coveted jewelry by Stella & Dot, entertainment, PRIZES, food and friends - who could ask for more! Bring your mother, your daughter, your friends! Open House, Sunday, March 7th, 1:00 - 4:00 pm Young Chefs Academy 6649 Western Row Rd. 513-770-4267
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Vendor Show at Historic Southbury - Southbury, CT, 12/4/2009
Vendor Craft Show at Traditions Meeting House. A portion of the proceeds benefit FRAXA. Hosted by Marla Wayne and Jen Weitz.
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Wine Tasting and Silent Auction - Florham Park, NJ, 10/22/2009
Join us for an evening of great wines and fun at the Brooklake Country Club www.brooklakecc.com. Hosted by Denis and Kira Shmuler.
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Fall X Ball - Poughkeepsie, NY, 10/9/2009
This annual gala was held at the Dutchess Golf and Country Club. Hosted by Ron and Amy Watkins, with special guests Mary Higgins Clark and Dan Grimaldi.
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Boston Gala - Boston, MA, 10/8/2009
Gala at Boston's Seaport World Trade Center. Honoring Special Guest Doris Buffett. Featuring Dr. Mark Bear, authors Mary Higgins Clark and Mary Jane Clark, actor Dan Grimaldi, storm tracker Jim Cantore, attorney Harry Manion, and Boston news reporter Kelley Tuthill.
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Cocktail Party - Grandview, OH, 10/23/2010
This great Fragile X Cocktail Party was more successful than ever this year, with a host committee of several families all working together.
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