Our Mission and History

FRAXA's mission is to accelerate progress toward effective treatments and ultimately a cure for Fragile X, by directly funding the most promising research.

FRAXA also supports families affected by Fragile X and raises awareness of this important but virtually unknown disease.

When three parents founded FRAXA in 1994 there was no Fragile X website or listserv, and only a handful of scientists were studying Fragile X. Funding by the U.S. government for this disease was under $2 million per year, with only $30,000 of that devoted to treatment studies. As parents, we had to change that.

How We Work

FRAXA now funds grants and fellowships at universities all over the world. We have funded more than $20 million dollars in top-notch science. FRAXA's management expenses have always been less than 4% of income, as we have just one full-time staff, three part time staff, and hundreds of volunteer parents. Since FRAXA was founded, the Fragile X field has grown tremendously, due in large part to our grass-roots efforts. You can help us accomplish much more. FRAXA financial information and tax forms are available here:

Proof of IRS 501c3 tax-exempt status

Audited financial statements for 2010 2009 2008 2007 2006

Form 990 for 2010 2009 2008 2007 2006 2005

FRAXA Annual Reports and Newsletters