Where to Learn More about Fragile X

FRAXA blog - Family stories, research news, treatment, and more

Dr. Mike's psychiatry blog - Research & treatment notes by FRAXA co-founder, medical director, and FX parent, Dr. Mike Tranfaglia

Your Genes Your Health - About Fragile X
Multimedia site includes interviews with parents, a sister, and researchers. Flash videos to illustrate genetic concepts.

Fragile X site - Centers for Disease Control (CDC) Comprehensive site with multimedia for all audiences

FRAXA Listserv Join our Listserv to find other families, ask questions, share tips and stories

Fragile X - A to Z; A Guide for Families by Families
100+ page guide to help families cope with daily challenges of living with a child or adult who has Fragile X. These anecdotes were provided by parents, grandparents, friends, and professionals who participate in the FRAXA Listserv.

DevelopmentalFX website Coffee Talk articles by Tracy and Mouse and much more

Marcia Braden's website Lots of columns and resource pages on education for families

"Me and the X-Man" by Paul Solotaroff, published in Men's Journal, National Magazine Award best essay finalist

"ARCLIGHT Magazine" article about families who are living with Fragile X

Comprehensive book in Spanish about Fragile X published by the Real Patronage on Handycap, the association of profesionales GIRMOGEN and the Spanish Federation Fragile X Syndrome

New York Times April 2010 by Gardiner Harris

Bloomberg News September 2009 by Dermot Doherty

Good Housekeeping July 2011 short story by Michael Callahan

FRAXA Trifold Brochure

FRAXA Annual Reports and Newsletters
Research, advocacy, fundraisers, and FRAXA activities & strategy (pdf)
2010     2009     2008     2007     2006     2005     2004     2003     2002     2001     2000     1999     1998

NICHD Booklet - Families and Fragile X Syndrome
A comprehensive booklet on Fragile X, by the National Institute of Child Health and Human Development (NICHD).

Fragile gene switch impairs synapses December 2008: Comprehensive article on Fragile X and current research, in English, French, and German, by Roche Pharmaceuticals. Reprinted with permission from Roche.

American College of Medical Genetics Recommendations
Recommendations of the American College of Medical Genetics (ACMG) to assist health care professionals in making decisions regarding genetic diagnosis and testing. October 2005.

National Center for Biotechnology Information
allows you to search public databases including OMIM, GenBank, and PubMed for the most up-to-date scientific information and publications on fragile X.