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Home > Get Involved > Join us - help support research for a cure!
 
  • Jackals Game - Yogi Berra Stadium, Montclair, NJ - Thursday, June 25
    Game and BBQ. For information please call Denise Sabo at 201-978-6252 or 201-804-6110 or email her at Denise Sabo

  • 5th Annual Fragile X Poker Run - Laurel Springs, NC - Saturday, July 18
    Join in a bike run starting at Freebornes (www.freebornes.com) in Laurel Springs NC. For info, contact Jim Charlton at 703-946-3242 or jim.charlton@netwitness.com.

  • Bike Run - New Castle, Delaware - Sunday, July 26
    A bike run starting at Mike's Harley-Davidson in New Castle, followed by BBQ, live band and silent auction. Kid's activities, childcare, and fun and prizes for grownups too! Organized by Jen Nardo.

  • Mt. Rainier's Strongest Man & Woman 4 - Sumner, WA - Saturday, August 1
    Held at The Old Cannery. Organized by Laurie Bowler. Visit www.rainiercrossfit.com.

  • Comedy Night - Saugus, MA - Thursday, August 13
    Come to the 3rd Annual "Laughter for a Cure" -- a raucous, side-splitting evening of standup comedians at Prince Pizza in Saugus. Hosted by Randy and Chuck Welch. Email Randy at rwelch16@comcast.net by August 6th for tickets.

  • 2nd Annual Robert Langell Golf Tournament - Turner Hill, Ipswich, MA - Monday, September 28
    Golf and dinner at the gorgeous Turner Hill mansion. For tickets, contact Didi Langell at langelldidi@hotmail.com

  • Gala - Boston - Thursday, October 8
    Gala at Boston's Seaport Hotel. Honoring Special Guest Doris Buffett. Featuring Dr. Mark Bear, authors Mary Higgins Clark and Mary Jane Clark, actor Dan Grimaldi, storm tracker Jim Cantore, attorney Harry Manion, and Boston news reporter Kelley Tuthill. Sponsorships and tables now available. Hosted by Liz and Jason Mazzola, and Leslie and Michael Cheverie. Contact Becky Zorovic at bzorovic@fraxa.org

  • Gala - Poughkeepsie, NY - Friday, October 9
    This annual gala will be held at the Dutchess Golf and Country Club. For info, please email Ron Watkins at rwatkins@fraxa.org or call him at 845-797-0846.

  • Wine Tasting and Silent Auction - Florham Park, NJ - Thursday, October 22
    Join us for an evening of great wines and fun at the Brooklake Country Club www.brooklakecc.com. Tickets will be $100 per person. For more info, contact Kira Shmuler at shmuler@optonline.net

Get Involved: Join our efforts by planning an event or joining with a local group.


2009 Previous Events
  • Walk for Fragile X - Bernville PA - Saturday, June 20
    Held at the Tulpehocken Jr/Sr High School Track, 428 New Schaefferstown Rd, Bernville, PA. Organized by Jennifer Mathias LukeJen97@aol.com

  • Patrick's Pals Basketball Tourney - Cambridge, MA - Saturday, May 30
    Join us for the annual 3-on-3 Pals tournament, hosted by Patrick's Pals; contact Jim Vershbow.

  • 20th Annual Charity Golf Tournament - Litchfield, NH - Friday, May 22
    Held at the Passaconaway Country Club in Litchfield NH. Prizes, Barbecue. Hosted by Dave Hall with lots of help from Pete and Dawn Hall.

  • Cocktail Party - Boston, MA - Tuesday, April 28
    We raised $48,000 at Stella Restaurant in Boston's South End. Cocktails, hors d'oeuvres, silent auction, band.

  • 6th Annual Walk for Fragile X - Canton, IL - Saturday, April 18
    The walk was held in honor of Parker and Allison Roos, at Wallace Park in Canton. Live auction followed the walk. Hosted by Holly Roos.

  • Traditions at History Southbury - Southbury, CT - Friday, April 3
    1st Spring Vendor Show, 6-11pm, at Traditions Meeting House. A portion of the proceeds benefited FRAXA and the Southbury Food Bank. Hosted by Marla Wayne and Jen Weitz.

2008 Events
  • Coctail Party/Silent Auction - Grandview, OH - Saturday, November 1
    "BE BIG AND GIVE"
    Fragile X Cocktail Party and Silent Auction. Live blues music by Delta Sheiks Our Lady of Victory in Grandview, Ohio. To help next year, contact Judith Maloney

  • Fragile X 5K - Cumberland, RI - Sunday, Oct 26
    $24 day of race, or $20 online registration at www.fragileX5K.org. The Fragile X 5K Road Race started at 10 a.m. T-shirt for the 1st 200. Organized by Tom Bobrowski at tsbobrowsk@aol.com

  • Marine Corp Marathon - Washington DC - October 26
    FRAXA was an offical host charity of the Marine Corp Marathon. Thanks to the runners who supported FRAXA -- you ran a great race!

  • Gala - Poughkeepsie, NY - Friday, October 24
    This annual gala was held at the Dutchess Golf and Country Club. For details on the 2009 gala, email Ron Watkins at rwatkins@fraxa.org or call him at 845-797-0846.

  • 1st Annual Robert Langell Golf Tournament to benefit Fragile X Research     Turner Hill Golf Course - Ipswich, MA - Tuesday, September 30
    An 88-golfer event with dinner, raffles, and silent auction. In honor of Robert Langell of Georgetown, MA. Visit the golf course at www.turnerhill.com/

  • The X Ball: Black Tie Gala - Pittsburgh, PA - Friday, September 26
    The gala was held at the Omni William Penn in Pittsburgh and hosted by Michele and Jim Cox. For information email Michele Cox at michelemcox@comcast.net.

  • Clam Hut dinner - Highlands, NJ - August 21
    The Clam Hut donated 5% of dinner hour proceeds to FRAXA, thanks to Lisa Tichenor's brother-in-law!

  • Comedy Night - Saugus, MA - Thursday, August 7
    This was a raucous, side-splitting evening of standup comedians at Prince Pizza in Saugus. Hosted by Randy and Chuck Welch. This is an annual summer event so plan on coming next year! Email Randy at rwelch16@comcast.net for more info.

  • Golf Tournament - North Reading MA - Monday, August 4
    Held at the Thomson Country Club in N. Reading MA. Golfing, Golf Cart, Dinner, silent auction (sports memorabilia). Hosted by the Cashman and Miraglia families.

  • Mt. Rainier's Strongest Man & Woman 3 - Sumner, WA - Saturday, August 2
    Held at The Old Cannery. Organized by Laurie Bowler. Visit www.rainiercrossfit.com.
  • Jackals Game - Yogi Berra Stadium, Montclair, NJ - Thursday, July 10
    2nd Annual Fragile X Night at the Jackals Game
    and BBQ. Hosted by Denise Sabo.

  • Walk for Fragile X - Bernville PA - Saturday, June 21
    Held at the Tulpehocken Jr/Sr High School Track in Bernville, PA. Hosted by Jennifer Mathias

  • Patrick's Pals Basketball Tourney - Cambridge, MA - Saturday, May 31
    This was the 12th annual 3-on-3 Pals tournament, hosted by Patrick's Pals; contact Jim Vershbow.

  • 5th Annual Walk for Fragile X - Canton, IL - Saturday, April 19
    The walk was held in honor of Parker and Allison Roos, at Wallace Park in Canton. Hosted by Holly Roos.

  • 19th Annual Charity Golf Tournament - Litchfield, NH - Friday, May 23
    Held at the Passaconaway Country Club in Litchfield NH. Prizes, Barbecue. Hosted by Dave Hall with lots of help from Pete and Dawn Hall.




©1997-2009 FRAXA Research Foundation, 45 Pleasant St., Newburyport, MA 01950. Phone: 978-462-1866. Contact Us
Editor/writers: Katie Clapp, MS, and Michael Tranfaglia, MD. Updated 5/19/09. All rights reserved. Disclaimer Created by Icovia