Attend Events
Volunteer
Join Studies/Trials
Join our Listserv
Advocacy
Regional Contacts
Line
Home > Get Involved > Events
 
Join us at these events to support Fragile X Research!

View Larger Map

  • 19th Annual Charity Golf Tournament - Litchfield, NH - Friday, May 23
    Held at the Passaconaway Country Club, 12 Midway Ave., Litchfield NH. 8:30 AM Shotgun Start. Player entry fee includes a 18 Hole Greens Fee, Golf Cart, Prizes, and Chicken Barbecue. For more information email Dave Hall or call 603-494-0753. Visit the golf course at http://passaconawaycc.com/
     Signup form

  • Patrick's Pals Basketball Tourney - Cambridge, MA - Saturday, May 31
    This will be the 12th annual 3-on-3 Pals tournament, and they get more exciting every year! Contact Jim Vershbow.

  • 2008 Walk for Fragile X - Bernville PA - Saturday, June 21
    Held at the Tulpehocken Jr/Sr High School Track, 428 New Schaefferstown Rd, Bernville PA. Registration: 9:00am ,Walk Time: 10:00am-11:00am . Rain or Shine. For more information email Jennifer Mathias or call 717-813-1289.

  • Mt. Rainier's Strongest Man & Woman 3 - Sumner, WA - Saturday, August 2
    This will be held at The Old Cannery again this year. Organized by Laurie Bowler. Visit www.rainiercrossfit.com.

  • 2008 Golf Tournament - North Reading MA- Monday, August 4
    Held at the Thomson Country Club, 20 Elm St., N. Reading MA. Tee time: 1:30pm. Rain or Shine. Golfing, Golf Cart, and Dinner are included in ticket price. For more information call Jack Cashman at 978-777-0229.

  • The X Ball: Black Tie Gala - Pittsburgh, PA - Friday, September 26
    The gala will be held at the Omni William Penn in Pittsburgh and hosted by Michele and Jim Cox. For more information email Michele Cox.

  • 1st Annual Robert Langell Golf Tournament to benefit Fragile X Research     Turner Hill Golf Course - Ipswich, MA - Tuesday, September 30
    This will be an 88-golfer event with dinner, raffles, and silent auction. For more information email Didi Langell or call 978-352-8496. Visit the golf course at www.turnerhill.com/

  • Coctail Party/Silent Auction - Grandview, OH - Saturday, November 1
    "The Sun Shines on Fragile X Blues"
    Cocktail party/silent auction in Grandview, Ohio. With live music. For more info or to help, contact Judith Maloney

  • Get Involved

    Join our efforts by planning an event in your area or joining with a local group. More info


    2008 Previous Events
  • 5th Annual Walk for Fragile X - Canton, IL - Saturday, April 19
    The walk is in honor of Parker and Allison Roos, at Wallace Park in Canton. For more information email Holly Roos.

  • 2007 Events
  • Gala and Fashion Show - Newport Beach, CA - Friday, November 30
    Gala and La Perla fashion show at the Island Hotel to benefit FRAXA.
    Hosted by Andrea Shelly.

  • Gala - Poughkeepsie, NY - Friday, October 19
    Held at the Dutchess Golf and Country Club, and hosted by Amy and Ron Watkins. Featured author Mary Jane Clark, whose son David has Fragile X.
    See  invitation

  • Fragile X 5K Run/Walk - Cumberland, RI - Sunday, October 14
    The run/walk started at the Cumberland High School's Tucker Field, with raffle and refreshments follow the race. Hosted by Leslie and Tom Bobrowski at tsbobrowsk@aol.com.

  • An Exceptional Evening - Atlanta, GA - Saturday, October 6
    Atlanta Answers the Buffett Challenge
    An Exceptional Evening Benefiting Fragile X Research
    at the Sweetwater Brewing Company Headquarters raised over $150,000! Featured James Denton, who plays Mike Delfino, the world's sexiest plumber, on Desperate Housewives. Visit event website. Hosted by Michael and Elly Scott

  • Coctail Party/Silent Auction - Grandview, OH - Saturday, October 6
    "The sun shines on Fragile X Blues"
    Cocktail party/silent auction at Our Lady of Victory church in Grandview, Ohio, raised over $20,000. Entertainment by blues band The Delta Sheiks. Chaired by Judith Maloney

  • BarBQ - Omaha, NE - Saturday, October 6
    Organized by Kelly Randels and the Fragile X Association of Nebraska. The festivities raised over $20,000.

  • Buffett Cup Gala - Marblehead, MA - Thursday, October 4
    We raised $200,000 at the Corinthian Yacht Club on the coast in Marblehead, MA. Featured Special Guest Doris Buffett, Storm Tracker Jim Cantore, Boston News Reporter Kelly Tuthill, and Master of Ceremonies Roger Mudd.
     invitation

  • Concert - Asheville, NC - Saturday, September 29
    Cash for a Cure
    7-9pm, at the Graham Theater, Asheville School
    Admission Free; Goodwill offers collected
    Buddy, Carol, Jamie and their Vintage Band will perform songs of Johnny Cash, June Carter and the early stars of vintage country. All donations benefit FRAXA. Visit www.cashforacure.com or call John Gregory at (828) 254-6345 ext. 4024.

  • Golf Tournament - Uxbridge, MA - Sunday, September 9
    2nd Annual Find a Cure for Fragile X Golf Tournament.
    Blissful Meadows Golf Club, 801 Chockalog Road, Uxbridge.
    Shotgun Start. Coffee/Tea & pastry and steak dinner included. Organized by Gordon Cole, with special thanks to Jack Cashman.

  • 3rd Annual Motorcycle Ride for Fragile X - New Gloucester, ME - Saturday, August 25
    Ride was held in New Gloucester with lunch and a silent auction. Organized by Julie Gosselin.

  • Unlimited All-Stars Summer Nationals - Staley, NC - Saturday, August 11
    The UAS Summer Nationals will be held in conjunction with the King of Clay Series Race.to benefit FRAXA. Hosted by The North Carolina Unlimited All-Stars at the Liberty Raceway Park in Staley, North Carolina.
    Visit www.unlimitedallstars.org/2007sumnats.html.

  • NetWitness Annual Ride for Kids - Chantilly, VA - Saturday, August 11
    This motorcycle ride was hosted by NetWitness. Thanks to Jim Charlton and the entire organizing team, the ride raised over $10,000 for FRAXA!

  • Comedy Night - Saugus, MA - Thursday, August 2
    We enjoyed a fun evening of comedy - 4 comedians and a special appearance by Mo Pratt -- at Prince Pizza in Saugus. Hosted by Randy and Chuck Welch, this will be an annual summer event.

  • Bike Run - New Castle, Delaware - Sunday, July 22
    Our Bike Run has raised over $20,000! It was held at Mike's Harley-Davidson in New Castle. After the run, everyone enjoyed a BBQ with live band and silent auction at the DuPont Chestnut Run Pavilion, in Wilmington. Kid's activities, childcare, and fun and prizes for grownups too! Organized by Jen Nardo.

  • Mt. Rainier's Strongest Man 2 - Sumner, WA - Saturday, July 21
    Held at The Old Cannery, this years event featured a yoke race, overhead log press, deadlift, bus pull, and a stone loading, farmers walk medley. A great day of competition, silent auction, hot dogs, and fun at this unique community event. Organized by Laurie Bowler. Visit www.rainiercrossfit.com.

  • Comedy Shows featuring Paul and Storm - Peoria, IL - Friday and Saturday, July 20-21
    Comedians Paul and Storm provided a lot of fun and many laughs to celebrate Fragile X Awareness Day ALL WEEKEND at the Jukebox Comedy Club!
    More info at jukeboxcomedy.com

  • Jackals Game - Yogi Berra Stadium, Montclair, NJ - Thursday, July 19
    Game and BBQ. Hosted by Denise Sabo

  • Fragile X Golf Benefit and Dinner - Solon, OH - Monday, July 16
    A golf tournament and dinner/auction was held in Solon, OH, hosted by Ara & Leslie Bagdasarian and the Fragile X Alliance of Ohio. Mary Beth Busby was the keynote speaker. Over $250,000 was raised towards the challenge! Contact Leslie Bagdasarian for more information.

  • Picnic - South Dartmouth, MA - Sunday, July 15
    More than 2000 people attended the picnic at the Holy Ghost Grounds, on Allens Neck Road in South Dartmouth, MA. Over $10,000 was raised for FRAXA! We thank Castello Realty and Joanne and Lisa Thomas for making this happen!

  • Charity Poker Tournament - Port Aransas, TX - Sunday, July 15
    Grand prize was a chartered deep sea fishing trip. Contact CeCe Drake or visit the website for Fragile X Awareness in Central Texas at fxsfacts.com.




  • ©1997-2008 FRAXA Research Foundation, 45 Pleasant St., Newburyport, MA 01950. Phone: 978-462-1866. Contact Us
    Editor/writers: Katie Clapp, MS, and Michael Tranfaglia, MD. Updated 4/11/08. All rights reserved. Disclaimer Created by Hookumu